Anyone out there living with stage 4 lung cancer?

@loula, can I help you find something? You asked "what happened to the other site?" What are you looking for?

@loula- YAY for you! There are all sorts of weird things that you can feel during infusions. I also had to have an infusion before my port was put in and the chemical (or force of it) blew out a vein.

This is an updated Connect, fixing all sorts of blips! Don't you love it?

Thanks but I figured it out !

Hope I’m on the right site and place for a update on my NSCLC Stage 4 in my right lung, lymph nodes, head, spine & ribs. My oncologist in Arizona didn’t seem to think there was any concern for my severe breathing difficulties following 14 radiation treatments in Dec/Jan for a small 2.5cm tumor in my left lung. We returned to our home State 10 days ago and already had 1 appointment with my oncologist, a CT scan and 2 appointments with my pulmonary Dr. The CT scan shows the right lung, head, lymph nodes, spine & rib are still clean, cancer free, ALL GONE. The radiation treatments caused radiation pneumonitis in the left lung leaving me with only 30% lung capacity. They put me on 60mg of prednisone daily, temporarily suspended my immunotherapy, Keytruda, until the breathing improves and I’m weaned down to 10mg or less prednisone per day. After 3 days I feel like the prednisone is starting to alleviate some of the breathing difficulties. The fluid in my right lung is still persistent and we drain about 500cc off every 3 days. I can live with that and am not considering pleurodesis. Like my Dr’s agree, “you’ve beat the odds already, so why take a chance of not getting off the operating table?”. So, it’s all good news, I’m feeling very positive and encourage everyone to never give up!!! Dutch..

This is the perfect place for an update, @dutchw. While it's not a cake walk, your news is very encouraging.

Thanks Colleen. Had an appointment with my cardio Dr this afternoon with more good news. He’s pretty sure my breathing problem is not heart related, even though I have a stint, but we scheduled a stress test to completely rule it out. In the past when I’ve been on this high a prednisone dose I’m wound up as tight as a tick and sleeping has been difficult, Last night I slept a full 8 hours. This will make my neighbors happy as I won’t be awake mowing their driveway with a weed whacker at 2am LOL.. All positive.. Dutch

@dutchw, I'm glad to see your sense of humor has remained completely intact.

@loula- Good morning. I'm wondering how you are doing with your treatments. I hope that where you live is bright and sunny for you to enjoy.

Merry

Still having severe breathing issues after resumption of prednisone, 40 mg per day. It appeared to improve but all of a sudden went sideways on me, now I’m living at the end of air tubing and not handling it very well. The pulmonary and oncologist Dr’s are convinced it’s damage caused by the radiation treatments that were completed in mid January. A CT scan last week showed no malignancy and, according to the Dr’s, confirmed radiation pneumonitis. The possible side effects of the radiation treatments were never discussed or explained to me before hand, otherwise I may have explored other options. Can anyone shed some light on what I can anticipate in the future and/or how much longer this will last??.... Dutch..

I have stage4 Adenocarcinoma lung cancer I was diagnosed with stage 4 in 2019. I first had stage 3a in December 2017 had two right lobes removed, chemo then it was April 19th it reoccurrence I had it on my right adrenal gland and right diagram. I had 10 rounds of radiation and 5 treatments of Keytruda but I had a stroke and very bad arthritis couldn’t get out of bed no quality of life! Now I’m being watched and it is stable but growing a little.