Hope I’m on the right site and place for a update on my NSCLC Stage 4 in my right lung, lymph nodes, head, spine & ribs. My oncologist in Arizona didn’t seem to think there was any concern for my severe breathing difficulties following 14 radiation treatments in Dec/Jan for a small 2.5cm tumor in my left lung. We returned to our home State 10 days ago and already had 1 appointment with my oncologist, a CT scan and 2 appointments with my pulmonary Dr. The CT scan shows the right lung, head, lymph nodes, spine & rib are still clean, cancer free, ALL GONE. The radiation treatments caused radiation pneumonitis in the left lung leaving me with only 30% lung capacity. They put me on 60mg of prednisone daily, temporarily suspended my immunotherapy, Keytruda, until the breathing improves and I’m weaned down to 10mg or less prednisone per day. After 3 days I feel like the prednisone is starting to alleviate some of the breathing difficulties. The fluid in my right lung is still persistent and we drain about 500cc off every 3 days. I can live with that and am not considering pleurodesis. Like my Dr’s agree, “you’ve beat the odds already, so why take a chance of not getting off the operating table?”. So, it’s all good news, I’m feeling very positive and encourage everyone to never give up!!! Dutch..

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