Grover's Disease: What works to help find relief?

Thanks for sharing. I agree about heat being significant factor. Maybe that’s why it’s worse at night under covers when our body temp rises. Also summer is worse. Whoever mentioned using Selsun blue medicated shampoo thank you. I’ve been using as supplement to my body wash for past couple weeks as well as on scalp and seems to be helping.
I do consume too much sugar so need to cut back.

Our histamine levels are higher in the evening so our itching and inflammation is higher.
I have given up processed sugar for life. Try a 2-3 month detox of all processed sugar as a test. If you notice no difference then sugar may not inflammatory for you, it could be other factors.

I found a low sodium (95mg)chicken bone broth at Sprouts (store brand). It doesn't have a super strong flavor which makes it useful in smoothie. I use about 1/2c each day... I would estimate cost at about $10/month maybe? My issue with most bone broth is the very high sodium-some are close to 1000mg!!
Hopefully this helps with collagen replacement a bit.

You have my total sympathy ( and empathy!) It's a frustrating condition... I really did find relief with cilantro- not yet in remission but still hopeful. At least the constant breakouts and itching have stopped. Try the cilantro- you"ll get into a routine with it and it'll be easy:-)

That's a great idea! Saves the time of making a daily smoothie!
Were you in total remission after 6 weeks?? I'm still having breakouts after 8 weeks of cilantro- wishing and hoping for total remission soon...

I live in California and when we get the dry Santa Ana winds...that's a huge trigger for my GD. I increase the cilantro on those days and it seems to help somewhat. We are retiring next year to Ireland - I am so excited for the cold, humid weather!!! People without GD think I'm crazy but I just feel so much better in that climate!

No, not total remission; but compared to the worst that it was, it"s a huge improvement. Since I may never know for sure what the triggers are, I'm much improved. Actually I feel as if I have my life back. With any illness, a toll is taken on your body. Perfection may not be attainable; but I'm very grateful that Grover's is no longer ruining every precious day. Keep going, you are on the right track!!!

In my case the new breakouts slowed and stopped after 6 weeks but it took almost 6 months or longer for all the scabs to drop off permanently. They just stayed the same for months on end, less itchy and less painful, but if scratched off they would scab over. I thought I would be scarred for life, but that was not the case.

Hello all. I'm new to the group but so thankful I stumbled onto this site when looking up Grovers. I was diagnosed with Grovers disease in Feb 2021. I had what I thought was a heat rash under both breasts. My derm looked at it, suspected Grovers. This was confirmed by a biopsy and she also took my case to Grand Rounds and they all agreed it was Grovers with pics, hx and biopsy. It's been a very itchy, miserable couple of months. She had me try triamcinolone first, then we tried calcipotriene which actually seemed to make it worse. I had a really bad flare up about a week ago when I found your group and started reading. I've been doing daily cilantro smoothies and there has been a remarkable improvement. Itching is gone, redness is gone. Small bumps still visible but not irritated anymore. I am a middle aged women with history of asthma as a child, seasonal allergies. My history with vaccines is this:
Shingrix #1: 08/12/20
Shingrix #2: 10/26/20
Pfizer covid #1:12/29/20
Pfizer #2: 01/19/21

First call to my derm: 02/02/21

Thanks again for your suggestion of cilantro!

I agree about climate. As much as I’d like to live in Fl near friends I would not be able to tolerate the summers. Even slight climate change or high humidity causes outbreaks. I’m seeing what look like Grover lesions that resemble pimples on my arms and legs. I know they usually appear on trunk but for me no area is immune. I still think there is a connection with my stress and anxiety.