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@kathyg

Hello, Kate

What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with MAC, found out via a phone call from my Mayo doctor last night. I have been coughing for over 14 months and I just kept trying to get someone to tell me why..... Now that I have the diagnosis, what do I do? My first reaction was to try to get more information and that is how I stumbled across your posting. My doctor, Dr. Mullen at Mayo in Rochester, is a very nice man and he explained that some of the side effects of the treatment can be worse than the disease. So, I rejected the idea. When I saw your post saying that the reality may not be as bad as the hype, it gives me a different perspective. Would you be willing to share more of your experience with me? The doctors can only tell you what the books tell them unless they have had a patient who has gone through the process. Even then, different folks can have differing reactions. I am a 58 year old, recently retired (in part due to the coughing with the embarrassing results), I am overweight so the shortness of breath was attributed to that.....

Thank you, Kathy

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Replies to "Hello, Kate What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with..."

@mariposa Sorry
to hear that your partner had a shortened life. It sounds like he totally
enjoyed his job. I had also heard that pilots tend to get cancers because of the
altitude putting them closer to the ultra violet rays of the sun (radiation). I
just hate it when I hear of people who worked hard their whole lives and then
don't live to enjoy many yrs of retirement. Hugs - Terri M.
 

@heathert Wow
Heather! Who would have 'thunk' it? That folding newspapers would be that
damaging? I know that any repetitive motion done with your hands can cause
carpel tunnel. I have a friend who was a grocery store cashier for 20 yrs; she
too ended up with surgery for both wrists from carpel tunnel.
 

@mariposa Andree,
you lived the life I WISH I had led! You have had an awesome run
girl!   - Terri M.
 

 
@mariposa Andree,
do you still travel? I want to and am a little fearful nowadays. My main worry
is lack of energy and it has become such a hassel these days. I used to have to
schlep my Eclipse Oxygen concentrator and four heavy extra batteries onboard
because my Co2 levels would drop too low mid-flight. (and it was not the small
portables they have today, mine was the size of a small carry-on suitcase) If I
go overseas, I may get the small one and rent the bigger one when I get to my
destination. Also, I thought about renting an apartment through AirB&B for a
month and use it as a home-base because I know I would not be able to keep a
normal tourist pace. Admittedly, I am afraid of foreign germs to my body also.
If it's out there, I am the first to catch it!
 

@heathert Hi
Heather. I am taking a poll from our forum participants on what everyone's
occupation was/is. I am seeing an overwhelming majority of teachers and
healthcare workers. Some other jobs too had mass exposure to the public. Thank
you!
 

Count me in your stats.  I've been an RN for 34 years.  The last 9 years in the classroom setting.

Cindy

 

 

@cindyrnc Thank
you Cindy. I actually already had you on the poll list because you had mentioned
that you were an RN in a previous post. Others had as well, that is what peaked
my interest in knowing what everyone's occupation was.
 

Great.  Thank you.

Cindy

 

 

Hi Terri,

I spent three weeks in France last summer,went on a riverboat on the Seine river, they start from the South and stop in many cities on the river going up to the North , this is a good way to travel if you don't want to move too much with the suitcases but you have to make sure that they can turn off your air conditioning in your room. I saw an allergy Dr. a while ago and he said that if you have lung issues ,always make sure that you cruise on a boat that is less than two years old. I prefer if you can turn the whole thing off and just open the balcony door..fresh air.

Europe is a pretty safe place to travel too as far as bugs are concerned but only drink bottle water . Renting a place for a month would be fun too.
The small portable oxygen for the flight would be OK or you can also order oxygen from the airline , at least you use to, would have to double check for that. If you had your own small
bottle and ran out ,that would not be a problem,the have lots of them on board.
Also ,you should wear a mask when you go on the flights, the orientals have been doing this for a long time, it makes sense.

As much as would like I would not go to India or similar places, way too dangerous for us.
I tell people that I'm like the boy in the bubble , from now on I will have to be very careful too.

Best, Andree

Mariposa/Andree....loved reading about your journeys and life style....no " would've...could've ...should'ves" you experienced it all....and with a kindred partner. As I read, I envisioned a TV series. tdrell aka Terri