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@kathyg

Hello, Kate

What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with MAC, found out via a phone call from my Mayo doctor last night. I have been coughing for over 14 months and I just kept trying to get someone to tell me why..... Now that I have the diagnosis, what do I do? My first reaction was to try to get more information and that is how I stumbled across your posting. My doctor, Dr. Mullen at Mayo in Rochester, is a very nice man and he explained that some of the side effects of the treatment can be worse than the disease. So, I rejected the idea. When I saw your post saying that the reality may not be as bad as the hype, it gives me a different perspective. Would you be willing to share more of your experience with me? The doctors can only tell you what the books tell them unless they have had a patient who has gone through the process. Even then, different folks can have differing reactions. I am a 58 year old, recently retired (in part due to the coughing with the embarrassing results), I am overweight so the shortness of breath was attributed to that.....

Thank you, Kathy

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Replies to "Hello, Kate What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with..."

Hi @tdrell I have had carpet tunnel operations on both wrists, so if you have any questions , dont hesitate to ask.

@tdrell Terri, of the 22 people that I have written down to keep track of
on this forum, 6 were nurses, 3 were teachers, 13 unknown professions. I feel
like there have been other teachers and nurses post on this forum, but I have
not written them into my book. I am seeing a pattern though, a lot of people
with MAC have worked in a facility where they would come into contact with lots
of other people, many of them being sick. It is years of exposure to patients,
and kids coming to school with colds, flues, and who knows what else. I have a
theory, that these institutions have stringent janitorial guidelines and have
used some pretty strong cleaning agents and that perhaps that caused some
strains of resistant MAC - a stronger MAC. Follow me? I am not writing this to
get anybody stirred up, I just have an analytical mind. I may ask the NTM
Foundation if they are interested in these statistics. But, I have a feeling
they are probably already aware.
 

@heathert Heather,
did you get your carpel tunnel from your profession? I started to get it in my
right hand from my job as an electrical systems designer. I'd spend 10 hrs a day
drafting on the computer. I went on disability right at the time that I started
to develop the C.T. It took yrs for my hand and wrist to stop hurting.
 

@tdrell Terri,
I caught my MAC in Tucson, I lived there for 20 yrs. Arizona is one of the five
HOT SPOTS in our country for MAC.
 

@tdrell Ha
ha ha! Terri, you sound like a sexy vision of loveliness when retiring to bed.
Just like me, with my oxygen nose cannula and nightstand full of pills and
kleenex! I hope you don't mind me joking a bit about it. I have to
laugh....
 

@windwalker For your record, I work in IT (computer programmer). So I'm not a nurse nor a teacher.

@tdrell Terri,
seriously, I do not know how people can still work and deal with this stupid
disease. I guess it depends on the severity, I would probably be dead by now
if I had not gone on disability. Besides stress and catching illnesses from
co-workers; I never would have had time to find better healthcare (Mayo) or
felt comfortable taking off all of the time I have had to for testing etc. My
boss would not have stood for that amount of time
off.
 

@ling123 Thank
you for checking in Ling. I will make note of that.
 

Hello again Windwalker,
Just want to add another profession to your list. I was a Flight Attendant for 30 years working on International routes.
12 hours in a metal tube with the same air recycling in so so filters,with an airplane packed with people with different problems brought on lots respiratory illnesses throughout the years.
My immune system is very glad that I have retired !
But I was very lucky to have worked for a wonderful airline and had a really nice career.
Hugs to all, Andree

@mariposa Andree,
Stewardess, that is interesting. I know you ARE glad not to be breathing that
circulated air anymore! Thank you for contributing to my poll. Hope you are
having a good day.  Hugs  - Terri M.