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@kathyg

Hello, Kate

What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with MAC, found out via a phone call from my Mayo doctor last night. I have been coughing for over 14 months and I just kept trying to get someone to tell me why..... Now that I have the diagnosis, what do I do? My first reaction was to try to get more information and that is how I stumbled across your posting. My doctor, Dr. Mullen at Mayo in Rochester, is a very nice man and he explained that some of the side effects of the treatment can be worse than the disease. So, I rejected the idea. When I saw your post saying that the reality may not be as bad as the hype, it gives me a different perspective. Would you be willing to share more of your experience with me? The doctors can only tell you what the books tell them unless they have had a patient who has gone through the process. Even then, different folks can have differing reactions. I am a 58 year old, recently retired (in part due to the coughing with the embarrassing results), I am overweight so the shortness of breath was attributed to that.....

Thank you, Kathy

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Replies to "Hello, Kate What a coincidence that my first name is Katherine/Kathy. I was just diagnosed with..."

Mariposa....so sad....your loss....his loss! Now the cockpits are even more sealed up for security...so will exposure be greater!? Tdrell aka Terri

Heathert....my hands ache reading about all that foulding! Tdrell

Mariposa/Andree....your voyage in France sounds delightful...the two places on my bucket list are Russia and China...studied their histories in High School...shouldve gone 11 years ago when I retired! Tdrell aka Terri

@windwalker I worked in insurance many years ago and now I work from home, so no mass exposure to the public except I did catch public transport(train and bus) 2 hours a day for many years.

@windwalker yip I think it was the pressing of the hand on them, I always had newsprint on my hands. It took alot of my time thats for sure.

@tdrell Hi Terri, China is on my bucket list too. I have been to Japan
twice. I love Asian countries. Hopefully, I will feel like traveling
again.
 

Andree, I was thinking along the same lines. If I do travel, only going to Europe and maybe lesser touristy places in China. I feel like some places are too exotic with exotic germs. My hubby has wanted to go on a cruise for years. I keep saying no. I am terrified of the amount of germs. There are just too many people onboard.

Yes Terri, we had one friend who died from melanoma due to the cockpit radiation.
Hopefully they are doing some changes in these last years to protect the pilots.
Andree

@tdrell , @windwalker I grew up in Beijing, China but have lived in the Midwest (Wisconsin) for over 30 years. I came here in my early thirties. I had never had any allergy or lung troubles when I lived over there. The problem started showing up about 7-10 years after I've moved to Wisconsin. My mom, who is 96, and one of my brothers still live in Beijing. I travel every year to visit them. The best time to go, in my opinion, is last week of April - first week of June, or September - October for Beijing (don't know what the south is like at that time as I haven't traveled there during these times for a very, very long time). The smog is most likely present in winter. And dusty wind occur mostly in early spring (March - April). That's why I've not tried to go there in winter, except in 2006 when my dad died in January. I never get sick on my trip (I usually stay for 4 weeks). Even though I know the air quality is much worse than Wisconsin, somehow I never have any problem with that. At least no more than what I normally have over here, thick mucus. Absolutely no drinking water from the faucet, of course.

Ling123....do you live in SE wisconsin? I think that is where American Thoracic Society says is an NTM hotspot.Isnt the trip to Beijing like 24 hours from here? Wow....a 96 year old mom!!!! good maternal genes! has she ever come over to USA?
Tdrell