Chronic inguinal pain
I am 38 years old & have suffered an injury to my ilioinguinal/hypogastric nerves after a gynological surgery. My nerve pain is in my right groin & right pubic area, occasional travels down my inner thigh. I am on Gabitril (antineuroleptic), methadone, tramadol & Zoloft for pain control. I had a peripheral nerve stimulator implanted in my abdomen, but it needed to be removed a yr later due to a chronic infection @ my incision site. It relieved about 30% of my pain but could have helped more if it didn't get the infection. My life has completley changed. The pain has limited me on doing things I used to do.
I have an appt. next month in Rochester, Mayo w/ Dr Mathew Pingree, @ the pain clinic.
Has anyone suffered this type of pain? Has anyone had pulse RF or RF ablation done? I'm scared to have an ablation or a chemical ablation due to the risk of developing an neuritis that could make my pain worse.
Interested in more discussions like this? Go to the Chronic Pain Support Group.
@majel
How are you doing? Wondering if you are experiencing pain relief? Since your last post on this site have you tried other treatments?
Hi there, I am not sure you will see this as this is an old post but I am going through similar circumstances and I wanted to reach out to seek some help/advice.
Quick update on mine: 4/2015 had RT inguinal hernia repair. Three weeks later went in to have the RT inguinal nerve removed (denervation). This didn’t resolve shit. A few weeks afterwards they went in to remove the RT testie (sorry if that is TMI). Since then I have been treating with a pain management MD that has tried 10+nerve blocks, steroid injections, multiple different nerve medicines, pain medicines, etc.
I am closing in on a spine cord stimulator (possibly in the next few weeks). At this point it is starting to affect daily functions, work, and everything else about being a father and husband
Any advice or opinions?
Welcome @ando. I moved this thread into the Chronic Pain group to bring this conversation to the attention of the currently active members. As you noted this thread is older, but I'm hopeful that the members who were participating in this discussion will return to Connect, which is now an active community again. @keri @tomb1 @telvaker @katrinaramquistwesson and anyone else reading this, if you have any problems logging in or joining the conversation, please send me a quick note using this form https://connect.mayoclinic.org/contact-a-community-moderator/
Ando, I can understand the fear of getting treatment that could potentially make the pain worse. Many in this group understand that apprehension.
Does anyone know about an endoscopic surgical intervention to oblate the nerve or for that matter any procedure to oblate the genitofemoral nerve or the other nerves involved with night mare we share?
i did a trial with the new St Jude stimulator it was a very bad experience and didn't work
hi @tomb1 I suffer since 5 years ago a pudendal nerve chonic pain. I heard about this Mayo Clinic program to relieve pain and as I live in argentina is very expensive for me make treatments in the US or in Europe, but this program sound good if people recommend it. because is not invasive and for sure has no side effects. how much would yyou recomend it?
can you tell me how to refer this treatment in the Mayo Clinic? I can find it in their web and whant to know more about it. I live in argentina so if I go to US I have to have all the information, can you help me?
Hi Alicia. Here is further information about the Pain Rehabilitation Clinic at Mayo Clinic's 3 campuses: Florida, Arizona and Minnesota http://www.mayoclinic.org/departments-centers/pain-rehabilitation-center/overview
You can call to find out more information and to consider scheduling an appointment http://mayocl.in/1mtmR63.
thanks coleen! Y spoke with them by telephone and are waiting for another call in orther to have more information
Fabulous. Do keep us posted on when you start and how it goes.