Chronic inguinal pain

Posted by Keri @keri, Oct 17, 2011

I am 38 years old & have suffered an injury to my ilioinguinal/hypogastric nerves after a gynological surgery. My nerve pain is in my right groin & right pubic area, occasional travels down my inner thigh. I am on Gabitril (antineuroleptic), methadone, tramadol & Zoloft for pain control. I had a peripheral nerve stimulator implanted in my abdomen, but it needed to be removed a yr later due to a chronic infection @ my incision site. It relieved about 30% of my pain but could have helped more if it didn’t get the infection. My life has completley changed. The pain has limited me on doing things I used to do.
I have an appt. next month in Rochester, Mayo w/ Dr Mathew Pingree, @ the pain clinic.
Has anyone suffered this type of pain? Has anyone had pulse RF or RF ablation done? I’m scared to have an ablation or a chemical ablation due to the risk of developing an neuritis that could make my pain worse.

Liked by Karri

Did anyone knows how much a nerve block coat

REPLY
@ando

Hi there, I am not sure you will see this as this is an old post but I am going through similar circumstances and I wanted to reach out to seek some help/advice.

Quick update on mine: 4/2015 had RT inguinal hernia repair. Three weeks later went in to have the RT inguinal nerve removed (denervation). This didn’t resolve shit. A few weeks afterwards they went in to remove the RT testie (sorry if that is TMI). Since then I have been treating with a pain management MD that has tried 10+nerve blocks, steroid injections, multiple different nerve medicines, pain medicines, etc.
I am closing in on a spine cord stimulator (possibly in the next few weeks). At this point it is starting to affect daily functions, work, and everything else about being a father and husband

Any advice or opinions?

Jump to this post

Please how much does a nerve block cost

REPLY
@olaperi

Did anyone knows how much a nerve block coat

Jump to this post

Do you mean cost? If so it all depends on a persons insurance & the deductible

REPLY
@olaperi

Did anyone knows how much a nerve block coat

Jump to this post

Yes Keri, I mean cost, you just made my day by your response…The doctor I used want to charge $5,500 cash for MRI guided nerve block because he is out of network on my insurance

REPLY
@olaperi

Did anyone knows how much a nerve block coat

Jump to this post

ask your primary doc for an out of net work referral.to who this doc is you want to see. if your insurance accepts it then it ill be charged as an in-network cost. call your insurance company, they will be able to give you your options.

REPLY

Okay, thanks Keri, I had an MRN done 2 weeks back and it came back I had an ilioinguinal nerve entrapment on my right groin after the C-section in 2013, how has your treatment and pain, I am new in this even though I have been trying to know my diagnosis for 4 years..I have moved round doctors!

REPLY
@olaperi

Okay, thanks Keri, I had an MRN done 2 weeks back and it came back I had an ilioinguinal nerve entrapment on my right groin after the C-section in 2013, how has your treatment and pain, I am new in this even though I have been trying to know my diagnosis for 4 years..I have moved round doctors!

Jump to this post

since I saw a pudendal nerve specialist in AZ i have gotten better. best of luck in getting relief from you ilioinguinal entrapment. You have gotten to one of the best parts in your pain management, a correct diagnosis. Best wishes!

REPLY

Thanks Keri, you gave me hope that I can feel better too since you are doing better now

REPLY
@olaperi

Okay, thanks Keri, I had an MRN done 2 weeks back and it came back I had an ilioinguinal nerve entrapment on my right groin after the C-section in 2013, how has your treatment and pain, I am new in this even though I have been trying to know my diagnosis for 4 years..I have moved round doctors!

Jump to this post

Hi! I’ve been on a similar road for a long time. Mine is not nerve entrapment, though. There is no clear cause. It is primarily the hypogastric nerves that are problematic. I’ve done every possible medication. I had steroid injections (although to ilioinguinal… the wrong nerves for me) and radio frequency ablation. The RFA actually sent the pain into a tail spin and created pain where there wasn’t any previously, and then other providers confirmed what I suspected. Healthy nerves were killed. I still had the same old pain across my entire lower abdomen. By the way, mine was also caused by C-section in 2012. Most recently, I wound up having abdominoplasty (tummy tuck). The idea was to cut away the hypogastric nerves. I am still in need of pain medicine to manage, but have slowly and gradually become more functional since the RFA mess in Oct 2015. I just wanted to say hello, you aren’t alone, and you must keep pushing for answers. I am still in the care of a Neurologist (was only seeing OB/GYN pelvic pain specialist for many years until I grew tired of not getting anywhere and referred myself out after the last straw of RFA). The plastic surgeon actually refused to file an insurance claim until literally yesterday (surgery was April 20, 2016). I had to basically back him into a corner to have it done. I doubt the insurance will reimburse me for it, but it never hurts to try. I encourage you to keep fighting the good fight. I have no answers; only sympathy. Oh, have you consulted with a plastic surgeon regarding scar revision? Maybe that could release the nerve to help it heal? I do believe that procedure is likely to be covered by insurance with adequate doctors’ office notes. Best to you!

REPLY
@olaperi

Okay, thanks Keri, I had an MRN done 2 weeks back and it came back I had an ilioinguinal nerve entrapment on my right groin after the C-section in 2013, how has your treatment and pain, I am new in this even though I have been trying to know my diagnosis for 4 years..I have moved round doctors!

Jump to this post

Hi Katrina, thanks for reaching out to me…It is indeed a lonely road with few travellers! I have two issues, nerve compression at the rib cage and nerve entrapment at the point of C-section, all this after childbirth, but I noticed my nerve was actually stretched when the doctors was pulling the baby out during the surgery, I guess it defines the compressed nerve but poor surgeon skill caused the entrapped nerve, the first MRN scan I did confirm the entrapped nerve at the point of incision and show little of where the nerve was compressed because the imaging did not focus on the compression, I am planning to have a 2nd MRN done which will focus on where the nerve compression was exactly, then I can now plan on how to resolve all at a go…It is emotionally, financially and time draining…But I will keep fighting!

REPLY
@olaperi

Okay, thanks Keri, I had an MRN done 2 weeks back and it came back I had an ilioinguinal nerve entrapment on my right groin after the C-section in 2013, how has your treatment and pain, I am new in this even though I have been trying to know my diagnosis for 4 years..I have moved round doctors!

Jump to this post

By the way did you ever see a neurosurgeon or is it only the plastic surgeon and what exam did you do that show your diagnosis, also did you experience weakness in your limbs like me

REPLY

Ive forgotten about this site for awhile. Nobody in minnesoda or texas could help me. (2012-2016) Im back in alaska now and they finally figured out i have adhesion growing all over abdomen. They believe my main right nerve in groin is being strangled? I guess or entrapped. I guess the last couple years cryoablation has been helping in pelvic area wheras in the years before drs tended to stay away from that area. …might be a light at end of tunnel finally. I meet new doc next week and he will try to establish what nerves are involved and if im good candidate for cryoablation . From what ive read on it , the pain is worse then steroid shots, but people that its worked on said it was worth less pain. Depending on the person and how fast the nerves grow back, might have to have it redone every 6 months. Some can go longer. I hope it works ive had this pain since 1995 and around the clock pain since 2012..____2 c sections, 1 of them with infection 1990__pain started 1995—– 3 nerves cut in groin in 2010—tubes n ovaries taken out and dr. Verfies adhesions everywhere 2012

REPLY

Wao, so sorry @prissysharon, you have been through a lot like me, so sorry to hear this, did the nerve block help your pain and what test did you do that show your entrapped nerve.

REPLY
@olaperi

Wao, so sorry @prissysharon, you have been through a lot like me, so sorry to hear this, did the nerve block help your pain and what test did you do that show your entrapped nerve.

Jump to this post

Nerve block helped partially for a day. I think just the numbing stuff worked. When doc cut 3 nerves she saw one on femoral i believe . Ill find out more next week ,been so long i dont remember. I do remember her saying its one she couldnt cut because i would be without the use of my leg.

REPLY

The problem I have is that I am not in too much pain because I used ice and b12 shot to controlled nerve inflammation…The nerve just kept flaring up, and lots of swelling inside my body, my pain is unbearable when I am ovulating or cramping for menstruation…I have to get DEPO shot last week to stop my period drama, I want to remove my uterus, ovary and tube to stop my period but really afraid after I realise a lot of people also join this group following complication from hysterectomy…Really confused

REPLY
Please login or register to post a reply.