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Burning Mouth Syndrome. I have it very severe.
I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate
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I sent a request to join the group. Thank you for recommending it.
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1 ReactionTrying to join the group
@lorikat Go to Skin Health. There are hundreds of entries under BMS.
Dermatologist Dr Bruce at Mayo, Jacksonville put me on Amitriptyline-worked great for few months then stopped. Still searching
Burning mouth syndrome is a painful affliction, apparently with no treatment and certainly no cure. Since it is defined as a neuropathy, has anyone ever asked a neurologist about it? I have had it for 4-5 years: restricts eating, deformed my mouth, changed my life and nlo hope of ever improving.
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1 ReactionHi @jshdma,
I moved your message and combined it with this existing discussion. I did this as I thought it would be beneficial for you to connect with the many members who are discussing much of what you are experiencing. Simply click VIEW & REPLY in your email notification to find your post.
How are you managing your symptoms, @jshdma?
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1 ReactionWelcome to the group!
I think you will find everyone to be very supportive and compassionate.
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1 Reaction@meadowhouse Thank you. My question is: since BMS is known to be a "neuropathy," has anyone ever asked a neurologist for help? The Academy of Neurology posts dozens of articles about BMS, but I do not see any that offers a cure.
I liked your post. So all respond. That is a good idea, but I've never attempted to talk to a neurologist. I've had burning mouth syndrome almost four years now. Also, another idea is to be hypnotized. Another idea is to try amitriptyline. It's an old day antidepressant drug.
The thought is the drug will shut off the neuron transmitter from the throat to the brain and stop the discomfort in the throat. It is taken in a very low dose with virtually no side effects.
Regards,Stu
@jshdma Yes, I currently see a Neurologist who is also a pain management doctor. Everything he has recommended so far has not worked(amitriptyline)or
didn’t agree with me and had to stop(Tramadol and Topamax). Since I have had bms for 8 years 24/7 I have tried all the other meds everyone else has mentioned (Gabapentin, Clonazepam, etc. to no avail.
I think I’m going to ask him about B12 shots every month as someone suggested.
Here’s hoping you will find something that helps🙏🏻