1. < Skin Health

Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

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jshdma | @jshdma | Apr 7, 2019
In reply to @ristu "Hi everyone. So, I see there's a number of studies that are available on the internet..." + (show)
@ristu

Hi everyone. So, I see there's a number of studies that are available on the internet on what they call a low level laser. The results in some of the cases appear to be an 80% Improvement in the pain management for burning mouth syndrome. If anyone has had this treatment, and is free of pain more than three months, I'd like to hear from you. Regards Stu

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@ristu and anyone else-- about 1 year ago I read that a doctor had used some kind of "deep brain stimulation" (or deep brain something), which had 100% success in relieving BMS, and caused no side effects. There was a published paper on his research. He was in a university in the mid-southeast. At the time I tried to look him up but did not find him. Since BMS is neurological, this approach would seem to make sense. Anyone else ever heard of this?

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Ethan McConkey, Moderator | @ethanmcconkey | Apr 7, 2019

Hi @ristu, you may have noticed that I merged your post to this existing discussion on burning mouth syndrome so that other people with BMS experience can see your post. Simply click VIEW & REPLY in your email notification to find your post.

Back to you @ristu. Have you been able to find research on it's effectiveness?

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1 reply
destinnana | @destinnana | Apr 8, 2019
In reply to @ethanmcconkey "Hi @ristu, you may have noticed that I merged your post to this existing discussion on..." + (show)
@ethanmcconkey

Hi @ristu, you may have noticed that I merged your post to this existing discussion on burning mouth syndrome so that other people with BMS experience can see your post. Simply click VIEW & REPLY in your email notification to find your post.

Back to you @ristu. Have you been able to find research on it's effectiveness?

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Please add me to any information regarding burning mouth syndrome.

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ristu | @ristu | Apr 8, 2019
In reply to @ristu "Hi everyone. So, I see there's a number of studies that are available on the internet..." + (show)
@ristu

Hi everyone. So, I see there's a number of studies that are available on the internet on what they call a low level laser. The results in some of the cases appear to be an 80% Improvement in the pain management for burning mouth syndrome. If anyone has had this treatment, and is free of pain more than three months, I'd like to hear from you. Regards Stu

Jump to this post

Hi Ethan.
OK thanks. I have found a few small studies that had 80 % success rate. So,,it has some promise. Regards,Stu

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Ethan McConkey, Moderator | @ethanmcconkey | Apr 10, 2019

Hello Burning Mouth Syndrome discussion members, you may have noticed I moved the Burning Mouth Syndrome from the Just Want to Talk group to the Skin Health group as Mayo Clinic is classifying BMS in dermatology.

I'd also like to take this time to check in on the members of this group to see how they are handling their symptoms. @mollyquilter @lauren123 @mamajomclane and @donnaclabaugh how are you all handling your symptoms?

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1 reply
lauren123 | @lauren123 | Apr 10, 2019
In reply to @ethanmcconkey "Hello Burning Mouth Syndrome discussion members, you may have noticed I moved the Burning Mouth Syndrome..." + (show)
@ethanmcconkey

Hello Burning Mouth Syndrome discussion members, you may have noticed I moved the Burning Mouth Syndrome from the Just Want to Talk group to the Skin Health group as Mayo Clinic is classifying BMS in dermatology.

I'd also like to take this time to check in on the members of this group to see how they are handling their symptoms. @mollyquilter @lauren123 @mamajomclane and @donnaclabaugh how are you all handling your symptoms?

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@ethanmethanmcconkey, could you inform us as to why Burning Mouth syndrome has been moved to dermatology?

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Ethan McConkey, Moderator | @ethanmcconkey | Apr 10, 2019

Hi @lauren123 here is more information on the treatment options: https://www.mayoclinic.org/diseases-conditions/burning-mouth-syndrome/care-at-mayo-clinic/mac-20350921

As for the specifics as to why it is classified in dermatology is because the specialists who treat this condition are in the dermatology department. ENT specialists may also be a part of the care team as well.

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ristu | @ristu | Apr 10, 2019
In reply to @sheetrock0131 "I share your pain.Iam an 18yr sufferer.I have been to 3 neurogilists,oral specialists,dentists,had mri's ct scans.I..." + (show)
@sheetrock0131

I share your pain.Iam an 18yr sufferer.I have been to 3 neurogilists,oral specialists,dentists,had mri's ct scans.I have been on seziure meds.and many more i can't even remember.I have been to the best in the Boston area..No to much is known about this condition.I feel for you..I am 62yrs old,just retired and have this to look forward in my golden yrears..This is sad...

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Hi Shellb. Unfortunately, most of the medical practitioners have not heard of burning mouth syndrome, or they do not know how to diagnose it.
I'm in the same boat, as I have tried pretty much everything. I'm waiting to see how people respond to laser treatment. treatment.regards Stu

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mamajomclane | @mamajomclane | Apr 10, 2019

I have had 2 Class 4 Laser treatments this week, Monday and today. My schedule has been filled with out of town company this week so hard to determine if any improvement yet....I will advise next week. Joyce

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3 replies
ristu | @ristu | Apr 10, 2019
In reply to @mamajomclane "I have had 2 Class 4 Laser treatments this week, Monday and today. My schedule has..." + (show)
@mamajomclane

I have had 2 Class 4 Laser treatments this week, Monday and today. My schedule has been filled with out of town company this week so hard to determine if any improvement yet....I will advise next week. Joyce

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Hi Joyce. I hope it works for you. I'm sure everyone's anxious to know. Please post in a few weeks if you see any noticeable results. Thanks Stu.

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