1. < Skin Health

Burning Mouth Syndrome. I have it very severe.

Posted by mygrigio @mygrigio, Aug 5, 2011

I am a 76 year old women and have had this condition for almost a year. it is getting worse everyday. been to many doctors and not one of them has heard otf it, I am getting desperate

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lauren123 | @lauren123 | Mar 20, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

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Hello @sheetrock0131, this is the first time I remember you having trigeminal neuralgia as well as b.m.s. What do you use for the TN? Do you have TN1 or TN 2? Thanks. Hope to hear from you soon. Lauren

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sheetrock0131 | @sheetrock0131 | Mar 22, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

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Would like to know how you are doing???
I to have bms for many many years.Tried everything.
Maybe you have some news to share.I would greatly appreciate it.

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lauren123 | @lauren123 | Mar 22, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

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Hi Sheetrock, did you see my note from a few days ago? I don't have any news, unfortunately. Have you tried Botox for your TN? Do your have TN 1 or TN2 (Atypical TN)?

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destinnana | @destinnana | Mar 23, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

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I was diagnosed with burning mouth syndrome and central sensitization at Mayo in Jacksonville. This has been going on for over 2 years. I’ve had many bouts of candida in my mouth and espohogas as well and suffer from acid reflux. They seem to all run together. I have no answers and just try to cope and act like everything is normal. It’s not and very painful. I get tired of putting up a front. I’m wondering if it could be the synthroid I take or maybe some food sensitivity that makes it worse? Currently I juice celery every morning and try to get my acid reflux under control. Hoping that will help as I don’t wanta take the heavy meds with so many side effects doctors recommend. I am always open to trying new things. Any suggestions?

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twentyfour7 | @twentyfour7 | Mar 23, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

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@Destinana: Your anguish is understandable. It seems every med, every remedy, every intervention disappoints. I was recently told by a practioner that some cases of BMS might be caused by dental galvanism, and it appeared my situation was one of them. A quick search of the term will result in a dead end — fake science. But I looked into the treatment anyway which was to have all your fillings replaced with nonconductive materials. Very costly if you have a metal-filled mouth, but desperation may ultimately drive BMS sufferers to it. I haven’t gone that route yet.
For the reflux, I read an article that recommended freezing a whole lemon then grating a tablespoon or two of it ( rind included) into boiling water and drinking like tea. Apparently reflux can be caused by not having enough of the right kind of acid in your system. Maybe this could help you. I have tried it, tastes good and doesn’t make anything worse....

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rgpadilla | @rgpadilla | Mar 23, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

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More than a reply is a question to you since you mentioned Jacksonville in Florida. Do they treat BMS patient like in Rochester, Minnesota or Scottsdale Arizona. My wife has been suffering with the Burning Tongue only, 24/7

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destinnana | @destinnana | Mar 23, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

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I’m not sure what you mean? Be more specific.

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rgpadilla | @rgpadilla | Mar 23, 2018
In reply to @lexie "I am a 55 year old woman who has had this for 13 years. It is..." + (show)
@lexie

I am a 55 year old woman who has had this for 13 years. It is devastating and has completely changed my life...I belong to a group of woman on line who have this and we are trying to figure out how to treat this. I have decided to go to a holistic dr to get bioidentical hormones. I think it's either that or from GERD, something going on in our digestive track. will be gettng my kit for hormonal testing...will post my results.

Jump to this post

The Mayo Clinic in Scottsdale, Arizona treats patients with BMS, they don't give numbers on how many have been cure. They do not accept government insurance. The Mayo Clinic in Rochester Minnesota treats patients with BMS, they do accept government insurance.
You mentioned that you were diagnosed with BMS at the Mayo Clinic in Jacksonville, Florida, do they treat patients with BMS.

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destinnana | @destinnana | Mar 24, 2018

We’ve had no problem with our BCBS paying in Florida.

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rgpadilla | @rgpadilla | Mar 24, 2018

Do they treat BMS in Florida. Is that BCBS Medicare Insurance?
Thank you...

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