fibro

Hello everyone, I totally understand what everyone is saying about the pain and the depression. Currently I am 20 years old and was diagnosed with Fibro when I was 16. For about 6 years prior to being diagnosed I went from doctor to doctor being told that nothing was wrong with me and I just needed to stop making things up. (That obviously did not help with the depression that I was already facing.) When I was a senior in high school I decided to do a presentation for one of my classes on Fibro because I wanted people to understand what people with Fibro go through. I did not want any sympathy from the kids that I went to school with I just wanted them to understand that just because I look normal and act normal does not mean that I am. The psychologist that I go to took my presentation to a meeting she was talking at and wanted to share it with other psychologists. I understand what you guys mean when you say that doctors don't always know what Fibro even is. That part really SUCKS!!!!!!! I have tried Lyrica in the past but it did not work well for me so currently I am not taking anything to manage the Fibro, which once again SUCKS!!!!!! I am praying for you all and hope that relief comes to everyone dealing with this.

Hi Momma 73~ I was reading your Entry and So I joined and wanted to share with you,, I to was told for years I was too fat etc. My Pain was Really bad, Finally a Dr. told me I Had Fibromilgia , Never heard of it~ well I read about it and cryed for days , yes that is what it was, The releif to know what was wrong, So I found an answer for me, I Take 5000MG of MSM at a time Some times four times a day when it is kicking up, <It stops the spasums for me in about 10 minutes,, I also Drink Yarrow tea. a wild plant and it helps too, Another thing I did Acupunture and that helped a bit.. they say extersize is good ~Well The more I do the more I hurt, I work full time here on our little farm so I don't do extra exersize.. You can Buy MSM At any Drug store. Not expensive. I hope this will help someone. I have and do suffer untold Hell with this and Yo find relief is a miricle.

I also suffer with the same issues.......for a very long time. Its really hard, I want to try medications but I am afraid it will just make things worse.

Its wearing me down...........I want to be normal again

Have had Fibro diagnosis about 10 years. Cymbalta, morphine, vicadine seem to be my most effective meds. Aqua arobics helps a lot. It's a VERY difficult condition to treat and from what I've read everyone has very different symptoms and most work their way through many treatments to find the one best of them. God Bless.

I was diagnosed in February 2011 with fibryo....however, my doctor tells me there is absolutely no reason I should need any type of pain pills. It has been a hard battle with him as it is the family doctor. The arthritis specialist; whose partner diagnosed the fibryo; I have been seeing (the specialist) since may 2005.....i have had the fibryo symptoms for 2 years before being diagnosed. The specialist doesnt want to be the one responsible for prescribing any meds beyond what she gives me to treat the arthritic sarcoidosis......(My husband calls me a medical nightmare!!!). In July I had xrays taken due to major pain in spinal area ..... i was told I have bone spurs in neck and thoracic spine area.....I also have degenerative discs in my nexk and back....yet he still doesnt want to give me anything more than hrydocodone 7.5...I am taking that as well as cymbalta. Anyone else out there having same doctor problems....don't want to start "doctor shopping" for pain meds, but am REALLY tired of having pain 24/7....it has severly affected my life style....I used to be extremely active...now I dont want to do anything. Any advice would be great.

I have had Fibro for more than ten years. It was first thought to be Parkinson's! I seem to have less pain now. I am presently on Molipaxin (anti-depressant) which seems to help with pain, except when rain is due! I am changing over to Cymbolta soon. Am busy moving house, so quite stressed. Am also taking Pur Blocka, which slows the system down, so less pain. I also take Trepeline 5mg at around eight in the evening. Helps pain and sleep. I was originally on 10mg (advised by a Rheumatologist) but got very constipated. Nothing worked to ease this, so dropped the dose, and have lots of cooked but fresh vegetables every day. More veg than meat actually. This really helps. Frozen is not as good. The thing that is presently worse for me than pain, is the tiredness, especially from the waist down. I can stand up for around five minutes at best, and then my knees begin to burn and then I have to crawl just to get anywhere and do anything. Very limiting! Any advice would be welcome! As I get older it is becoming more difficult, and my husband has had to take over shopping and cooking and a lot of the housework. My specialist (Rheumatologist) seems to just feel the pressure points on my back and says I'm fine. He doesn't offer any other advice except to walk. He charges a lot too - R675.00 a session! (I live in South Africa.) Really deep sleep is important, and not to do too much. Soon I will be more able to do the latter!

First of all find a good orthopedic surgeon and have the bone spurs removed. I found those before I was diagnosed with fibryomyalgia. Had to spend one night in the hospital and wear a soft collar for a week mine was C5 and C6 was the best surgery I ever had no problems after that. I was diagnosed with fibromyalgia in Feb of 2011 on my birthday. I was taking Cymbalta but my second visit to Mayo got changed to Pristiq. I have to wear a Duragesic patch but still have breakthrough pain and I am going to Mayo on the 11th and something is going to have to change. I have had to quit work and right now trying to get disability.

How can you stand the pain. It is hard to get other to understand because we look normal, I think my depression has gotten deeper since my diagnoses because I have had so much heartache in my life and I ask myself what more do I have to be put through in my life, haven't I suffered enough. I would love to read your presentation if you still have a copy of it and it is something that you can e-mail. If it is something you can e-mail could you e-mail me a copy to gdmixon@yahoo.com. Maybe it will help me get others to understand.

I would love to me normal again also, but I don't see any chance of that happening unless they find a cure.