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Replies to "I have c diff and have had it for almost 2 years I am finally getting..."
Welcome @dpete19743, I added your message to the Digestive Health group where you'll also find these discussions on C-difficile:
I'd also like to bring in fellow members @pines @plm2019 @sue6408 @annapocono @ngorman25 @sarasally2 along with @fotula into this discussion.
Pete, when will you have the fecal microbiota transplant (FMT)? Have you noticed the cognitive issues only since contracting c-difficile?
@dpete19743 I developed Cdiff after taking Clindamycin for a sinus infection. I went through 4 Cdiff episodes in 2018 before taking Dificid (fidaxamicin) which finally worked for me. Prior to that I took Vancomycin for the 2nd and 3rd bout. For the 3rd bout, I did the Vanco pulse and taper for 6 weeks. The only real side effects from the meds are now I have a ringing in my ears. (Tinnitus) And I also have terrible gas late and night and early in the morning when I first get up which I think is related to Cdiff. I also now take Florastor or a probiotic with S Boulardii which was recommended by my gastroenterologist.
If you don’t mind me asking. How are what fmt are you getting. Last I heard the fecal transplant was suspended due to a death in July, 2019 in St. Louis Missouri (where I live ) . I was supposed to get one in 2017 and need now but cannot afford but I might get a option soon and am curious if the status moved from suspension.
I have not had C. Diff but I had chronic autoimmune inflammation of the gastrointestinal system. However, after being treated with immunosuppressive medication for several months I found myself with memory and cognitive issues- very scary for me. I assume it was secondary to the chronic stress of being ill plus the treatment. I had several infections then too. I started doing crossword puzzles etc. Now, 3-4 years later I feel my cognitive function restored, have some problem remembering names, words etc. and my brain gets tired.
I had c.diff for a year, only physical symptoms.
I have pain what seems like all the time if I eat, or don't eat. I'm sick of c diff
Thank you so much
@dpete19743 I also had cdiff from September, 2018 thru March, 2019 in which I relapsed 4 times and took vancomycin each time. Then I got the fmt. I have been ok since that time. I am 72 years old but I did not notice any difference with regard to my memory or any confusion before or after cdiff.
I cannot seem to open a new thread so hope this is not to out of the scope of this one but just had an FMT in Jacksonville, yesterday (because of recurring C-DIFF) and am concerned about whether I should continue to take probiotics or not ? Does not seem to be a medical consensus on this.
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I didn't have any issues other than the weight loss and belly pain. I was on antibiotics for roughly 29 days for a UTI that was misdiagnosed. I developed C-diff as a result of this and lost 20 pounds in less than 2 weeks. I was placed on vancomycin for approximately 60 days and that took care of the problem. I was also taking Bio-K plus probiotics for approximately 3 months and now take Florastor daily and have had no further issues. I hope this helps. I know how miserable C-diff is.