Member Spotlights feature interviews with fellow Connect members. Learn more about members you’ve connected with and some you haven’t met yet. Nominate a member you think should share the spotlight.
JOHN: Teresa, what brought you to Mayo Clinic Connect? What motivates you to take part in the community?
@hopeful33250: I came to Mayo Clinic Connect after the diagnosis of my third neuroendocrine tumor (NET). I was feeling discouraged and had not been successful in finding others with this rare form of malignancy. I Googled support groups for NET and saw a posting for Mayo Clinic Connect.
I am motivated to take part in the community because I feel it introduces me to people who are dealing with very difficult situations in life — both physical and emotional. I find strength in their stories. Once in awhile, I’m even able to support others who are feeling burdened by their situations — I consider it a win-win relationship.
Connect is a safe place to converse with others. The moderators maintain an environment that reflects kindness and support. They manage to keep the ground of Connect cultivated so that we can all grow stronger together.
JOHN: What groups do you participate in?
@hopeful33250: The two groups that I work with as the volunteer mentor are the Neuroendocrine Tumors (NETs) and Parkinson’s Disease groups, as I have personal experience with both. However, I also venture into other areas where I find strong people who share their experiences, their struggles and, of course, their strengths.
I especially enjoy following and posting with the Transplants group and the Mental Health group. In these groups there are many very strong members dealing with significant problems, and sometimes lifelong problems, who are working on building up their own strength and support system for their lives. I am pleased to watch their growth (and mine) as we share together.
JOHN: What surprised you the most about Connect?
@hopeful33250: What surprised me was the way so many people are willing to share just where they are at the present time (and often that changes from day to day) as they face different challenges in their lives. I also appreciate the way the community of Connect strengthens each member. Members help each other, give encouraging words of advice and share from their own experiences. In this way, no one ever feels alone in their personal health challenges.
JOHN: What energizes you, or how do you find balance in your life?
@hopeful33250: I’m energized by living a balanced life. I’m somewhat of an introvert, so I do find energy by finding some time alone — that includes reading and devotional time. I also find balance by exercise. I belong to several exercise groups, including a Parkinson’s dance class and a sitting Tai-Chi class, which all help with coordination, balance and range of motion, which are important to those of us who have chronic health problems and are aging.
In addition to alone time, I have a great group of friends and family that I get together with. We enjoy conversation, movies, plays and music. My relationships at church are especially important to me, as it helps me to grow my faith.
JOHN: Tell us about your favorite pastime or activity.
@hopeful33250: I also enjoy music and activities surrounding music. I’m part of a therapy choir that brings music to folks with closed head injuries as well as other neurological problems. Music has a way of bringing a lift to everyone’s health as well as their spirits.
Since I love to read, I’m also part of a book discussion group at the local library. This encourages me to read at least one book a month (but usually I read more than that).
JOHN: Do you have a favorite quote, life motto or personal mantra?
@hopeful33250: Knowledge is power and attitude is everything!
JOHN: What do you appreciate the most in your friends?
@hopeful33250: Their kindness, their loyalty and their support. It sets an example for me to do likewise.
@johnbishop Thanks for the links, John. I definitely fit in the extroverted introvert category at times, and at times I am just a simple introvert. In the article one of the few things that did not fit me was talking on the phone. I enjoy having a good chat with someone I am close to, probably more than an in person chat because you can escape more easily when that time comes!
JK
Thanks, @contentandwell
It looks like you are posting a new picture these days. I like the hairstyle!
Teresa
@hopeful33250 Thanks, that was on Christmas Eve at a friend's home. It was actually part of a whole family picture but I have very few pictures of me because I am always the one taking the pictures!
It can be difficult to get my son and daughter to let me take pictures of them, particularly my daughter, but I think she allowed it this time because there were no family pictures at her wedding reception despite that being something the photographer was supposed to do and she knew how disappointed I was.
JK
Personally, Teresa has been a major lifeline for me. The virtual support and suggestions gave me a lifeline when I was scared, scrambling, panicked, struggling to understand and accept my cancer diagnosis. There are no words to truly express how much of a difference Teresa and Colleen made in the outcome of my treatment.
@vsinn2000 Vicky
Thank you for the kind words. It was a great honor to be there for you! I am glad that through Mayo Connect you found a lifeline - that's what Connect is all about.
Teresa
To hopeful...Thank you for your comments about neuroendocrine cancer. It has only been through these kind of support groups that I ended up at Mayo Clinic where I was diagnosed and my life saved. I have been involved with The Carcinoid Cancer Foundation and The Neuroendocrine Foundation. You might be interested in State if CT bill #5297 advocating additional medical education for doctors to detect rare gastro and other cancers.
@musicflowers4u I am glad that this website has been helpful to you! Thank you for the information about the bill that would advocate additional medical education for doctors to detect rare cancers - that is certainly needed. I am glad that you were treated at Mayo and found good care.
How are you doing now?
Teresa
I just had a Gallium 68 Dotatate scan and my Dana Farber oncologist reports no new neuroendocrine cancer from the top of my head to my knees. I do have pain but I have a lot of adhesions and a large abdominal hernia which are chronic problems. I sent in my report to Mayo as they requested regarding any returning cancer. Thanks for your concern.
My comment to these conversations would be-- funding research on ALL rare (or any) diseases should come before drug rehab, sex-change operations, and a lot of the other nonsense that the government spends tax dollars on.
@musicflowers4u What a wonderful report! All of us who have dealt with NETs can appreciate this good news.
How do you deal with the pain from the adhesions? Is there any possibility that you can treat the large abdominal hernia and thereby reduce the pain from that?
Teresa