I was diagnosed with microscopic lymphatic cystosis after 3rd colonoscopy. This occurred about 3yrs after gall bladder surgery. Still have diarrhea, 3 to 4 times a day.

@petepat3234 - it sounds like you still have the colitis inflammation- especially if you feel weak too. Has your doctor discussed any immunosuppressive medications?

I have been diagnosed with microscopic lymphocytic I colitis after 4 colonoscopies. I had gall bladder surgery 2015 and have had trouble with diarrhea since 2015.

@washalien - You have been sick for a long time- I know how that feels. Life passing by so fast. I had collagenous colitis initially and later on nondescript patches of inflammation throughout my GI tract. At first there was a trial of medication elimination, food elimination- no change. Budesonide was the best except for prednisone. By the way, I had breast cancer many years ago. I had severe intestinal reaction to chemo which finally was thought to have caused my chronic microscopic colitis. I decided to try immunosuppressive medication because I just could not live like I did. I was on it for several months and it worked. I got monitored monthly. I did have many infections, which is why I stopped it.
I’m happy it worked

What seems to help? Meds or diet or a combination of both? What should be completely avoided? Any supplements that help? Thx

@billie3 - Do you know what type of colitis you have? Also, how long have you had it, what are the symptoms and are you taking medication now?

I am waiting for the results of biopsies for microscopic colitis. Would like to hear about I can expect in regards to treatment and what I can expect long term . I am a 75 year old female.

Hi @turtlegalsandy, Welcome to Mayo Clinic Connect! You'll notice that I moved your message to this active discussion group called "Colitis – Microscopic/Lymphocytic/Ulcerative." The advantage to grouping these discussions is to help you meet members that have the same or similar conditions and can offer insight to what you can expect from this diagnosis. Can you tell us a little bit about your journey? When did you start displaying symptoms?

I cannot take antibiotics and have similar issues that you have. I have found no relevant medication to ease my problems and am now turning to herbal remedies.

@turtlegalsandy - What an ordeal you have been through!
I also had a sigmoidoscopy some years ago for severe diarrhea. The biopsy showed collagenous colitis - about same as lymphocytic colitis.
I was treated with weekly injections of Metothrexate for a month. The diarrhea disappeared. I was told that it might return. Not yet. It can also be treated with steroids.

Did you ever have a full colonoscopy and endoscopy? CT scans or MRIs?
I hope you can be treated shortly.
Please follow up with us!