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DiscussionAnybody diagnosed with microscopic colitis?
Inflammatory Bowel Disease (IBD) | Last Active: 4 hours ago | Replies (341)Comment receiving replies
Replies to "I am looking for others diagnosed with microscopic colitis. I'm new to the group and the..."
<p>I have MC. Drs. are saying it might be caused by an Autoimmune condition. Does anyone know about this.</p>
Welcome to Connect, @mjgarr. I moved your message to this existing discussion about microscopic colitis in the Digestive Health group so that you can meet other members talking about MC. According to this article from Mayo Clinic, autoimmune diseases such as rheumatoid arthritis or celiac disease may cause microscopic colitis http://mayocl.in/2bmyFqr Here's additional information from the National Institute of Health https://www.niddk.nih.gov/health-information/health-topics/digestive-diseases/microscopic-colitis/Pages/facts.aspx
Do you also have an autoimmune condition?
Hi all! I have collagenous colitis. Found out 3 months ago. I am suffering with distention daily. After I eat I get distended and I also have PFD. My colitis is in remission right now but I still have distention!! I can't wear jeans. I have fatigue. Also no period in 2 years and I'm 33. I'm seeing a reproductive endocrinologist next month to see if this is auto immune related etc .... Been dealing with this for so long! Anyone have similar distention?
If you have been diagnosed with IBS, I believe you may have fructose intolerance/malabsorption. Eliminate carbs and sugars for a month and see how your belly goes down and you feel better.
Hi @mkenn, I moved your message to this existing discussion, as I believe you were responding to @shosh37 about her abdominal distension. I want to ensure she saw your reply.
- Shosh, have you had any issues with IBS in the past?
- @mjgarr you mention having mast cells. Here's some information about mast cells http://www.mastcellaware.com/mast-cells/about-mast-cells.html
What changes have any of you made to your diet since being diagnosed?
My 91 year old mother was diagnosed with microscopic colitis 20+ years ago. For the past 28 years she had very severe food intolerances, ie milk, gluten, beef, most processed foods and more. Her diet was severely limited. 1 1/2 years ago my mom was put on Asacol by a new gastroenterologist, when she was hospitalized for open heart surgery. Since then she can eat many more foods that she previously couldn't eat. The quality of her life improved tremendously now that her food intake increased. She still is a bit of a picky eater but thanks to the Asacol and the many foods she can now eat, ie. Regular bread, beef, cake, cookies cheese and much more, the quality of her life has improved.
Welcome back to Connect @kristimotch and @ekoltun6! You'll notice that Connect has a new design and a lot more activity since you last were here. Coming back and sharing your updates and experience about managing microscopic colitis with diet is so valuable for newer members. Thank you!
@kristimotch What vitamin supplement are you taking? Did your doctor recommend it?
@ekoltun6 that is a remarkable turn around for your mother, which I'm sure is an incredible relief to you. I hope you can keep up with her 🙂
Have either of you, in managing MC, experienced the distention or bloated stomach that @shosh37 is experiencing?
I was diagnosed with CELIAC 6 years ago, to follow MC, I have been prescribed Budesinide, of which the cost in the USA is $1050.00/3 months, I sent my prescription to Canada, now I pay only $95.00 for 3 months, and it is working awesome!!!!!!!!!!!!!!!!!!!1
I'm tagging in to follow this post. I had a CT scan for something else a few weeks ago, and the scan also found diffuse thickening of the colon wall with the suspicion of colitis. All lab tests, like C Diff, came back negative, and I actually just had my colonoscopy today. My doctor said that the inflammation wasn't visually-apparent today (even though it was at Mayo last January though those biopsies returned negative). Now I'm just waiting for the pathology to return.
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Kristi, I was diagnosed about 4 months ago with Lymphocytic colitis after weeks of discomfort. I was able to get it under control with probiotics, decreasing my caffeine intake and watching what I ate. Another doctor recently put me on antibiotics for another problem and now the colitis has flared up again. Like you, I am new to this, and would appreciate any help others have to offer.