← Return to Severe stomach pain
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Replies to "I have had acute abdominal pain since April 2011 and it has escalated over the months....."
Did you ever get a diagnosis @lz5b00 or isolate a cause? I am having the same symptoms and experience at the moment.
I'd like to invite, @smiles444 @edda @lucie2 and @sousou to join this discussion as well; I'm certain they have much insight to share.
My dad has been very ill and in and out of the hospital for 4 months and the doctors cannot determine the cause for his pain.
My dad started out with a constant and throbbing lower, left side abdominal pain. Then he had the abdominal pain plus nausea , which then became abdominal pain, nausea, and vomiting. Doctors thought he had gastritis, an ulcer, diverticulitis, abdominal aneurysms, and spasms . All of the above do have his symptoms listed, but the doctors say he does not have any of those things (although he does have 2 tiny abdominal aneurysms but they say they are so small and can’t be the cause of the pain). Meanwhile, he has had multiple CT scans, a colonoscopy, that thing where you go in through the throat with a tube and look for ulcers, ultrasound, different medications for all of the above diseases because they thought that’s what he had…time has gone by and my dad has lost about 30 lbs. He has become so frustrated, weak, angry, discouraged and sad. My dad is 77 years old, a smoker, he has a weak heart and had a massive heart attack about 20 years ago. He has a defibrillator. He also cannot taste his food. He can taste things at first but than gets a metallic aftertaste. Could be the smoking but probably all the meds. I think this began when he first received anti nausea meds.
He is still in the hospital but soon to be released. Since he is always nauseous, he is hardly eating and was hooked up to parenteral nutrition. The doctors have given up and I feel like my dad has too. Please help. We are desperate...
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@daughter It is sad for me whenever I hear of someone with the sort of stuff your dad is going through. I have had most of those, and know the bad stuff that comes with living that way. But it is also an opportunity to try to help. I suggest that he might have his ANA, BUN, SERUM LightChain protein, and his proteinuria checked . You see, the symptoms you list are classic symptoms of several different forms of Amyloidosis, and these two tests will help sort it out. It is called a rare disease, but that is mostly because few doctors know how or have the facilities to diagnose it. You can get good info from Mayo Videos done by Martha Grogan, Morey Gertz or Angela Dispenzieri, or from Alnylam Pharma. You can also download free or read online my own story at https://bit.Ly/1w7j4j8 "Amyloidosis Dossier..." The particular symptoms I see that are like mine: 77 (so am I), abdominal pain, nausea, vomiting, weak heart, attack, loss of taste, metallic aftertaste, multiple doctors that cannot find the reality, weight loss, all the failed tests so far. When you check it out, make sure the lab is a top lab, such as Mayo-(Rochester) Quant, ARUP, Mass General, etc.
My 77 year old father has been very ill and in and out of the hospital for the past 4 months and the doctors cannot determine the cause for his pain.
My dad started out with a constant and throbbing lower, left side abdominal pain. Then he had the abdominal pain plus nausea , which then became abdominal pain, nausea, and vomiting. Doctors thought he had gastritis, an ulcer, diverticulitis, abdominal aneurysms, and spasms . I have become an expert of looking up diseases. All of the above do have his symptoms listed, but the doctors say he does not have any of those things (although he does have 2 tiny abdominal aneurysms but they say they are so small and can’t be the cause of the pain). Meanwhile, he has had multiple CT scans, a colonoscopy, that thing where you go in through the throat with a tube and look for ulcers, ultrasound, different medications for all of the above diseases because they thought that’s what he had…time has gone by and my dad has lost about 30 lbs. He has become so frustrated, weak, angry, discouraged and sad. My dad a smoker, he has a weak heart and had a massive heart attack about 20 years ago. He has a defibrillator. He also cannot taste his food. He can taste things at first but than gets a metallic aftertaste. Could be the smoking but probably all the meds. I think this began when he first received anti nausea meds. Because he is unable to keep things down or eat much, he recently received parenteral nutrition. Doctors are talking about sending him home or to rehab because they have given up on finding a solution. Please help! We are desperate for an answer.
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Thank you, @oldkarl.
Hello @daughter,
I too, am sorry to hear about your father; it is so difficult to watch a loved one struggle with their health. We're glad you've joined Mayo Clinic Connect.
I'd like to share a few links to discussions that you may find helpful. Feel free to click on the links, read through them, and participate where you feel comfortable:
– Abdominal pain with severe constipation and weight loss https://connect.mayoclinic.org/discussion/abdominal-pain-since-july-2017-with-severe-constipation-and-weight-los/
– Mesenteric Panniculitis or Sclerosing Mesenteries https://connect.mayoclinic.org/discussion/mesenteric-panniculitis-or-schlerosing-mesentertis-auto-immune-around-small-intestine/
Since you mentioned he has 2 small abdominal aneurysms, I'd like to invite Mentor @kariulrich for her thoughts about your dad's pain. You can read her and other members' experiences here:
–Median Arcuate Ligament Syndrome (MALS) https://connect.mayoclinic.org/discussion/median-arcuate-ligament-syndrome-mals/
@daughter, did your dad take any steroids (like Prednisone) or such medicines to relieve pain? Often, some cardiac medications, when taken longterm, can cause a metallic aftertaste; have you asked the doctors about any drug induced conditions? Mentor @kdubois may have more insight about this, as well.
@daughter .. Has your dad had any previous abdominal surgeries?
No he has not. It seems like it is more the nausea that is bothering him and he is only able to keep liquids down. He is receiving IV nutrition because he cannot eat.
Please look into Median Arcuate Ligament Syndrome - Abdominal compressions!!
Does is feel like it's muscular in nature or is the pain originating from inside your stomach, intestines or other organs?