Newly diagnosed: IDC Tubular Carcinoma of the Breast

@sueriener

Hi, Sue, and welcome to MayoConnect. I have posted below two websites which will give you an idea of your diagnosis and which also may help you develop questions for your oncologist.

https://www.mayoclinic.org/diseases-conditions/breast-cancer/in-depth/breast-cancer/art-20045654
https://www.breastcancer.org/symptoms/types/tubular

Thank you!

I second @elizm welcome to Mayo Clinic Connect. I am sorry to hear that you were diagnosed with infiltrating ductal carcinoma tubular.

Can you tell me a little more about your diagnosis and what they have offered you?

I was just diagnosed with the exact same as you on the March 15th. Had biopsy and was also in my underarm lymph node. I see a surgeon this Thursday. I am scared and nervous. I need an MRI to see if it's spread to other parts of my body. Most fear I've ever experienced. They suggested flap surgery for reconstruction. I'll let you know what the Surgeon suggest after I see him. Prayer's for you and I. BIG HUGS!

Oh Linda I'm so sorry! I met with the surgeon yesterday and she is extremely capable and actually very hilarious. I talked about what I didn't want, and she was pretty funny about talking me into things. What I found out in the sixteen years my husband has had cancer, is that you will be treated with Loving Hands. I'm very preoccupied with the information I got yesterday. She said this particular cancer is not aggressive, but because of the way it hides in the milk ducts and the tubular form it's hard to know how far to go when they take it out, to get clear margins. They will go in and do a lumpectomy, but if the margins aren't clear, they have to go back in. Breast cancer is very curable nowadays, so put your mind at ease for now. Let me know how it goes and I'll do the same. God bless you

I met with the surgeon yesterday, and they are going to do an MRI and a lumpectomy for starters. She did say that this cancer it's hard to find because of the way it hides in the milk ducts, instead of being a hard lump. She was excellent in drawing me timelines and different scenarios. Best case is lumpectomy with clear margins, if not we're looking at more surgery, radiation, and medication for ER and PR positive but her2 negative cancer.

@mick2 @sueriener
Dear Linda and Sue. You both are in our prayers. You have joined a large, but understanding sisterhood (one in every seven American women) who have acquired breast cancer. Thankfully, we live in an age where the oncology community knows how to handle this malady more successfully than ever before. Do your homework (knowledge is power) to learn as much as you can so that you are able to generate a helpful (to you) discussion with your oncology team, and to plan your life ahead. Statistics are in your favor that your life will be long and health-filled, and your MayoConnect community is here to walk beside you.

@elizm beautiful stated. We are all here with you, @mick2

Thank You so very much. I will be having a total removal of breast. I just read where you can not get tubes wet. The more I read the more I fear. Mine is invasive and I have too much to learn in such a short time. Will I be able to care for my self at home? etc. Big Hugs and God Bless you also

Thank you!! I'm sure gonna need you! If I can type???? I'm on a tablet computer......