Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

Profile picture for chezpl69 @chezpl69

Hi. Did your neuropathy increase with the first or the second shot? Mine came back after five years with the first shot and didn't go away yet. I am do for the second shot friday( I have already postponed twice) Not sure what I'll do.

Jump to this post

My neuropathy increased more after the first dose (on 2/10, Pfizer) but still a pretty good increase after the second (3/4). Symptoms have leveled off, but are significantly higher than pre-vaccine. My neuropathy is fairly recent, following a liver transplant in August. The neurologist doesn’t know what initially started the neuropathy, although it might be related to Primary Biliary Cholangitis, an autoimmune disease, which led to my liver cirrhosis. I’d suggest speaking with your neurologist prior to getting the next dose. I don’t know how many people in this discussion have neuropathy due to an autoimmune disease, but after what my neurologist said, I might have reconsidered getting the vaccine. Although, I so want this pandemic to end and to escape lockdown!

REPLY
Profile picture for joeyd5641 @joeyd5641

Hi. I have a history of nueropathy that was dormant the last few years. the pfizer vaccine brought it back the next day. it went away after a week from the first shot, but like an idiot i went for the 2nd shot and it came back even worse,11 days out and its constant burning and itching.

Jump to this post

Hi have your symptoms improved? I got symptoms three weeks after the first pfizer shot. I have burning in thighs and face. some needles in my arms hands and legs It seems like every day I get a little more. I have already postponed the second shot twice. My neurologist suggested today that I go for the second shot. I'm not convinced.

REPLY

Best of luck to you. Please let us know how you are doing?
I know I am scared to get it. What kind of vaccine did you get?

REPLY

I understand your concerns. I would feel that way too.

REPLY
Profile picture for chezpl69 @chezpl69

Hi have your symptoms improved? I got symptoms three weeks after the first pfizer shot. I have burning in thighs and face. some needles in my arms hands and legs It seems like every day I get a little more. I have already postponed the second shot twice. My neurologist suggested today that I go for the second shot. I'm not convinced.

Jump to this post

Hi I feel the same as you. I began having neuropathy symptoms ( burning, tingling, cold/hot sensations) the day after the first Pfizer shot. Tingling for a few days, then burning and other sensations. I went to two doctors - primary care and an oncologist that I see. Both expressed surprise at my symptoms but thought it might be related to an auto immune condition. I, too, have postponed the 2nd shot once and plan to postpone it again. As much as I want to get the vaccine over with, I can't see adding more of this vaccine to my body just now - not when, in my opinion, my immune system is still apparently over reacting. I wish you the very best with your decision - it is so difficult when we have very little, if any, data to guide us.

REPLY

I wish I would have never taken the second shot. I didn’t know at that point what was causing my issues but it went rapidly and drastically downhill after the second shot.

REPLY
Profile picture for chezpl69 @chezpl69

Hi have your symptoms improved? I got symptoms three weeks after the first pfizer shot. I have burning in thighs and face. some needles in my arms hands and legs It seems like every day I get a little more. I have already postponed the second shot twice. My neurologist suggested today that I go for the second shot. I'm not convinced.

Jump to this post

You have a terrible neurologist. If you had that reaction to the first you're going to have a way worse reaction to the second. I'm six weeks out and it's become manageable it's gone from terrible to mild but I do a heavy dose of supplements

REPLY
Profile picture for StephanieT @slturley

I wish I would have never taken the second shot. I didn’t know at that point what was causing my issues but it went rapidly and drastically downhill after the second shot.

Jump to this post

It took about 5 or 6 weeks after the second shot to start calming down but that's with heavy B12 alpha lipoic and pea pure use

REPLY
Profile picture for joeyd5641 @joeyd5641

It took about 5 or 6 weeks after the second shot to start calming down but that's with heavy B12 alpha lipoic and pea pure use

Jump to this post

joey, I too am still not back to pre COVD vac symptoms, it has improved, but now I have some new issues. How much B12 do you take and is the pea pure part of your normal daily regimen? I was thinking of adding it if you think it’s hugely beneficial. Glad you’re doing better. Helen

REPLY
Profile picture for joeyd5641 @joeyd5641

It took about 5 or 6 weeks after the second shot to start calming down but that's with heavy B12 alpha lipoic and pea pure use

Jump to this post

I’m more than a year out and my symptoms are still severe. I’m on Tegratol and high doses of Gabapentin. I wish I could get off of them but still, even with them, I can barely walk. I am praying that this will eventually go away.

REPLY
Please sign in or register to post a reply.