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Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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sunnyflower | @sunnyflower | Mar 19, 2021
In reply to @sunnyflower "Hello Elizabeth, so sorry it took me so long to get back to you! 😔 I've..." + (show)
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Hello Elizabeth, so sorry it took me so long to get back to you! 😔 I've now had over 600 emails from the Neuropathy group. I 'm also a member of other groups too.

I' m so happy to hear you bought and love your new walker!! I hope it makes your life easier and more safe as you will be lifting it. Pretty amazing only 11#! Yep, now you will be glam and hip as you roll in style!

The akate Spade sunglasses sound very glam

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Battery dying, more later

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mawagner13 | @mawagner13 | Mar 19, 2021
In reply to @tigreyes2004 "How do you keep your Neurpathy under control? Nothing is helping me & I was just..." + (show)
Profile picture for tigreyes2004 @tigreyes2004

How do you keep your Neurpathy under control? Nothing is helping me & I was just wondering what you were doing to feel better? Thanks
Genie

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I was on gabapentin 2 yrs ago when it first started after taking levaquin. But I mega dosed b12 via injections for 3 mo. Also took numerous other supplements. The regimen was put together by a physician knowledgeable about levaquin toxicity. I was able to stop the gabapentin and it was mostly dormant. But after getting the covid jab I’m back on gabapentin and supplements again. Hoping to get off the gabapentin in time.

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bustrbrwn22 | @bustrbrwn22 | Mar 19, 2021

@lacy2 Hi, June - do you remember where you ordered this DNA test from that tests your reactions to medications? I think it would be good for me to do this. Thanks - Jen

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wilcy | @wilcy | Mar 19, 2021
In reply to @kathleen123 "I have (small fiber) non-length dependent neuropathy. I had my first Pfizer Covid-19 vaccination 2 1/2..." + (show)
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I have (small fiber) non-length dependent neuropathy. I had my first Pfizer Covid-19 vaccination 2 1/2 weeks ago. It exacerbated my neuropathy symptoms. I’m scheduled for my 2nd shot on Wednesday but I don’t know whether to get it since the 2nd shot is much more likely than the first to have significant adverse effects. I called Pfizer and they claim that Covid-19 vaccination is not related to any neurological side effects although I have read elsewhere it can exacerbate PN. My internist says there is just no data to know whether the 2nd shot is likely to make my symptoms worse.

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You actually believe big pharma?

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maczorro | @maczorro | Mar 19, 2021

Pfizer #1 I had zero side effects.

I got Pfizer #2 on Wednesday mar 17: I felt great that night, but over the next two days my PN leg pain increased drastically, along with my clumsiness; limbs felt like they weighed 100 lbs. FWIW, I have chemo induced PN from 2007. I’m hoping this increase is temporary, but it’s pretty unbearable.

Best of luck to future vaccine patients

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ronmartin76 | @ronmartin76 | Mar 20, 2021

katbaloo100 I'm glad to hear that your symptoms are getting better. What was your timeline from your first event? My first shot caused awful neuropathy. 10 days later it just got manageable then another flare started on its own. How many days have you been going through this ordeal?

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alexgindin | @alexgindin | Mar 20, 2021
In reply to @joeyd5641 "Hi. I have a history of nueropathy that was dormant the last few years. the pfizer..." + (show)
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Hi. I have a history of nueropathy that was dormant the last few years. the pfizer vaccine brought it back the next day. it went away after a week from the first shot, but like an idiot i went for the 2nd shot and it came back even worse,11 days out and its constant burning and itching.

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Hi, sorry to hear about the aftermath of the second shot! How are you feeling now? Did symptoms get better? I keep delaying my second shot.. wasn’t feeling too great after the first one! Thank you for sharing

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trieste | @trieste | Mar 21, 2021

I'm 71 and received the Moderna vaccine. After the first shot I had a minor increase in pain, however, with the second shot I really reacted. Intense leg pains kept me up all night and the entire next day. Add to that entire body aches, chills, and a strange headache and I felt pretty punk. After a relatively "good" night sleep the 2nd night, I awoke all back to normal. One and a half days down but all worth it! Everyone has a different immune system though and only about 25% react significantly to the second vaccine (if I recall the figure correctly).

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ess77 - Elizabeth | @ess77 | Mar 21, 2021
In reply to @trieste "I'm 71 and received the Moderna vaccine. After the first shot I had a minor increase..." + (show)
Profile picture for trieste @trieste

I'm 71 and received the Moderna vaccine. After the first shot I had a minor increase in pain, however, with the second shot I really reacted. Intense leg pains kept me up all night and the entire next day. Add to that entire body aches, chills, and a strange headache and I felt pretty punk. After a relatively "good" night sleep the 2nd night, I awoke all back to normal. One and a half days down but all worth it! Everyone has a different immune system though and only about 25% react significantly to the second vaccine (if I recall the figure correctly).

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@trieste good for you! I had much the same rections as you, basically nothing after first shot, a bugger after 2nd, with 2 pretty ill days with fever, lots of pain all over, and that strange headache. But, once fever broke, I began to improve and was better in hours. I'm thrilled to think i have all these wonderful antibodies helping me stay healthy, I'm not going to get ill with covid! And, I will get my life back as it was but better!!!! Determined to get better in every way.....You keep up the good work, too. blessings, elizabeth

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tigreyes2004 | @tigreyes2004 | Mar 21, 2021

which vaccine did you get?

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