COVID vaccines and neuropathy

How is everyone who got a new onset or worsening of neuropathy from the vaccine doing now? I seem to be having some let up the last few days , but I am megadosing Alpha Lipoic acid, b12 and Vitalituses Palmitoylethanolamide . These have worked in the past for me also. I recommend for anyone with Neuropathy. I did report my case to VAERS. Let me know if any of you are feeling better after the neuropathy induced by the vaccine. If there are 15 or so of us here, there must be so many more suffering after the shot also. I am glad though to be protected from Covid, but holy cow there should be a warning for the neurological possiblities. Does anyone know anyone who didnt have any previous neuropathy that now has it from the shot? Regards, Joe

About 11 years ago I had symptoms that were never diagnosed but definitely seem like sensory peripheral neuropathy. They went away spontaneously in about 3 or 4 months. After the 1st Covid 19 shot ( Pfizer), it all came back. It's been almost 3 weeks and nothing has changed, maybe a bit worse. I have an app't with my primary care but dread the response as it appears any association with the vaccine is being discounted. I can't see getting the 2nd shot with symptoms still going on but feel so unsure where that leaves me as far as the vaccine requirement is concerned. I'm hoping things will calm down but I'm not sure where to go from here. I'm thinking of trying ALA and Vitamin B12.

I have idiopathic small fiber neuropathy with burning, numbness, and lots of pain in my feet and legs. After I got my 2nd Moderna vaccine I had a slight headache and increased pain in my legs the next day (yesterday). So far today I think my leg pain has subsided to it's normal level (still not good but better than yesterday). Hopefully the vaccine has not had any lasting affect on my neuropathy. I am looking forward to not worrying about Covid-19 now. My neurologist approved me getting the vaccine.

Hello @lucyrennell, Welcome to Connect. Thank you for sharing your experience with the Moderna COVID vaccine. I too am looking forward to not having to worry about COVID-19 and all the fear that comes with it. Hoping the vaccine doesn't have any long term affect on your neuropathy also. I was fortunate with my small fiber neuropathy in that the COVID vaccine I took (Pfizer) had no affect other than the minor reported ones. Have you thought about reporting your side affect?

– Report an Adverse Event to VAERS: https://vaers.hhs.gov/reportevent.html.

Hello @cosette1968, Welcome to Mayo Clinic Connect. I'm sorry to hear you had adverse side effects from the 1st Pfizer COVID vaccine. There is a way you can report an adverse side effect yourself. Here is the website where you can find out how - Report an Adverse Event to VAERS: https://vaers.hhs.gov/reportevent.html.

My wife and I both had the 1st and 2nd Pfizer vaccine but only had a sore arm from the first one and extreme fatigue the day after the second one. We also used the V-safe After Vaccination Health Checker where we registered after we received the shot and they send you a text message daily for a week to answer a few questions about any side effects and how you are doing. It's really easy to respond to the short survey via your cell phone and hopefully the data will help everyone.

V-safe After Vaccination Health Checker: https://www.cdc.gov/coronavirus/2019-ncov/vaccines/safety/vsafe.html

Can you ask your primary care doctor what they recommend when you have your appointment?

Thank you for the welcome and the information. I used the V-safe text message to report my symptoms. All I got was automatic replies ( even though I indicated peripheral neuropathy) with the final one telling me it's time for my second shot. I think the VAERS would be more complete but I still need to take the time to do that. I will be asking my primary care doctor what her advice is - going today. I also have a chronic form of leukemia and have a long standing app't with my oncologist tomorrow so will ask him as well. My gut feeling is that this vaccine triggered some sort of autoimmune response. It's just a gut feeling but I'm 75 years old and I know my body pretty well. My question to the doctors I will see and anyone out there who has an idea is - is there anything that can be done to calm down/reverse/halt this overactive immune response?

Thank you for the welcome and the information. I used the V-safe text message to report my symptoms. All I got was automatic replies ( even though I indicated peripheral neuropathy) with the final one telling me it's time for my second shot. I think the VAERS would be more complete but I still need to take the time to do that. I will be asking my primary care doctor what her advice is - going today. I also have a chronic form of leukemia and have a long standing app't with my oncologist tomorrow so will ask him as well. My gut feeling is that this vaccine triggered some sort of autoimmune response. It's just a gut feeling but I'm 75 years old and I know my body pretty well. My question to the doctors I will see and anyone out there who has an idea is - is there anything that can be done to calm down/reverse/halt this overactive immune response?

Thank you for the welcome and the information. I used the V-safe text message to report my symptoms. All I got was automatic replies ( even though I indicated peripheral neuropathy) with the final one telling me it's time for my second shot. I think the VAERS would be more complete but I still need to take the time to do that. I will be asking my primary care doctor what her advice is - going today. I also have a chronic form of leukemia and have a long standing app't with my oncologist tomorrow so will ask him as well. My gut feeling is that this vaccine triggered some sort of autoimmune response. It's just a gut feeling but I'm 75 years old and I know my body pretty well. My question to the doctors I will see and anyone out there who has an idea is - is there anything that can be done to calm down/reverse/halt this overactive immune response?