Anyone had a problem with neuropathy after receiving the vaccine?

Posted by cue @cue, Feb 15, 2021

I am 85 with small fiber neuropathy that is getting worse. My neurologist thought it would be a good idea for me to wait with the covid vaccine and not be first in line to see how it affected other people with neuropathy. Probably because it is a new technology. Has anyone had a problem with neuropathy after receiving the vaccine? If so, which vaccine?

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Profile picture for athenalee @athenalee

Hi everyone, I received this as an email from The Foundation for Peripheral Neuropathy. It’s not on their website yet and it didn’t work to paste the registration link here...sorry. When you register there is a space to ask a question. So, I put in a question regarding my neuropathy symptoms increasing after the first Covid vaccine. Since I can’t get a concrete answer about the correlation from anyone I’ve decided to risk it and get the second shot tomorrow. I’m just so tired of being in strict lockdown and living in fear of getting the virus. Wish me luck!

Ask the Expert: Managing Peripheral Neuropathy AND a Pandemic
April 1, 2021 2:00-3:00 p.m. ET
Dr. Shanna Patterson, M.D., FPN’s Patient Education Advisor, is Assistant Professor of Neurology at Mount Sinai West in New York City.

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@athenalee - Here's the registration link for the Ask the Expert: Managing Peripheral Neuropathy AND a Pandemic
April 1, 2021 2:00-3:00 p.m. ET
https://register.gotowebinar.com/register/5493381507243281933

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Profile picture for sunnyflower @sunnyflower

Hi Hank, my 2nd dose was last Saturday. No Sxs except for a lot of pain and a little swell at the site. Then, on Monday it started to itch and my muscles became extremely weak and painful if I tried to use them. Other than that, no Sxs. So strange how this didn't happen until two days after my shot of Moderna. Please forgive if this is a repeat. I have 383 emails in my neuropathy group. Oy vei!

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I spoke too soon. Haven't felt well since Monday, two days after my 2nd dose. Flu-like; malaise, muscle pain and weak. No fever. Hope it doesn't last long. Have you and Linda gotten your 2nd dose yet? Sorry, I think you've said when. Stay well, feel well I pray! Warmest hugs to you both, Sunnyflower

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Sorry to hear that @sunnyflower. I am praying the effects of the vaccine don’t last much longer. Hope you feel better soon. Hang in there. Toni

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Profile picture for avmcbellar @avmcbellar

Sorry to hear that @sunnyflower. I am praying the effects of the vaccine don’t last much longer. Hope you feel better soon. Hang in there. Toni

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Thx Toni, I appreciate your sentiment and taking the time ❤️

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Profile picture for busch @busch

Yes. Definitely with radiculopathy. Severe negative reaction with 1st Moderna shot, continuous ice cold feet and up to waist, sudden extreme pain and hightened numbness, started 3 to 4 days after vaccine. Experienced strange feeling of nerve agitation, strong burning/tingling sensation, approx.15 minutes after vaccine shot. Confusing, no literature for any such side effects.

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@busch @sunnyflower When I had my first vaccination with Moderna last month, I was given a card, COVID-19 Vaccination Record Card put out by HHS and CDC. It states, "You can report possible adverse reaction following COVID-19 vaccination to the Vaccine Adverse Event Reporting System (VAERS) at vaers.hhs.gov

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Profile picture for sunnyflower @sunnyflower

Hi Hank, my 2nd dose was last Saturday. No Sxs except for a lot of pain and a little swell at the site. Then, on Monday it started to itch and my muscles became extremely weak and painful if I tried to use them. Other than that, no Sxs. So strange how this didn't happen until two days after my shot of Moderna. Please forgive if this is a repeat. I have 383 emails in my neuropathy group. Oy vei!

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@sunnyflower Hi, Sunny, how are you feeling today in relation to your 2nd dose of the vaccine?

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Profile picture for steeldove @steeldove

@busch @sunnyflower When I had my first vaccination with Moderna last month, I was given a card, COVID-19 Vaccination Record Card put out by HHS and CDC. It states, "You can report possible adverse reaction following COVID-19 vaccination to the Vaccine Adverse Event Reporting System (VAERS) at vaers.hhs.gov

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Profile picture for bustrbrwn22 @bustrbrwn22

@sunnyflower Hi, Sunny, how are you feeling today in relation to your 2nd dose of the vaccine?

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I feel better as far as the general malaise flu like symptoms go. Thank you so much for asking!

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Profile picture for steeldove @steeldove

@busch @sunnyflower When I had my first vaccination with Moderna last month, I was given a card, COVID-19 Vaccination Record Card put out by HHS and CDC. It states, "You can report possible adverse reaction following COVID-19 vaccination to the Vaccine Adverse Event Reporting System (VAERS) at vaers.hhs.gov

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Hello, thank you for your concern. I have the same information but I am doing better today so I'm not concerned about it. I did not have a fever just general malaise which is to be expected rather nothing out of the normal. Take good care and thanks again, Sunny flower

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Hello, @sunnyflower, @avmcbellar, @athenalee, @artscaping , @everyone else....I'm so sorry you've had a tough response to the 2nd shot, Sunny. I did too. I wrote about it in Feb after I got the 2nd Moderna shot and had a very rough 18 hours. It began after about 4-6 hours, with extreme fatigue, all over pain, bones/muscles/head......everything hurt pretty badly. I was purely miserable for 18 hours, with a fever for several hours. I got so ill I went back to bed, which I never do unless I'm really not feeling well. I slept for several hours, sweat profusely and woke up fever free and almost pain free. It took me a day or so to regain my strength and be able to function somewhat normally.

I hope you have far less reaction and it gets better NOW! No fun, but I reminded myself this was for my health, my body was making antibodies to help me stay healthy and beat any possible Covid19 infection. That thinking helped me get through those hours. My good friend just got her 1st shot, Phizar, has some arm discomfort, feels drained and fatigued, resting, no fever. I had no 1st shot reaction.

Sunny....I will love you forever, my friend! I just ordered and have ready to put together my very own posh, hot pink, rollater w/black and white zebra pattern seat bag and back bag!!!! I've been looking for this for years!!!! I refused to use a walker forever, but when forced to get one, it had to be red. all they had was burgundy, and now everyone has one.....and it's boring~ I'm up town, hot mama now, my friend. Love it. AND, got glasses w/prisms for double vision. Kate Spade, big black w/red roses, sunglasses.....Tiffany black weird shape with silver glitter on bottom and gold arms. Am I investing in a fun rest of my life? I had to let you know since we seem to be sisters in bling!

Blessings, feel well and be safe and look stunning as we toddle around! elizabeth

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