C Diff

Posted by TiaraDee @tiaradee, Jul 11, 2012

I first got sick on May 1st thinking it was the stomach flu. I weight 157lbs and every er that I went to told me to sleep it off and that the longest it could last is two weeks. Two weeks later no difference. I finally saw a gastroenterolgist sometime in June. At that point it was 1 month of no appetite, nausea and diarrhea with tons of mucus(sorry to be so graphic). I did a stool test and he said I had inflammation somewhere and to eat bland and it would go away. It didn't so finally he said I could have Giardia due to having yellow poop since march 🙁 so he put me on flagyl and ciprofloxacin. I guess I put all my eggs in one basket and hoped and prayed that would be it. I started feeling better until one day after I ate I had the urge to throw up. No nausea or anything. Finally had a colonoscopy on June 19th. Got diagnosed with C. Diff colitis. He put me on flagyl three times a day for two weeks. I had my good days and bad days. Fourth of july came around I had a hot dog and pasta salad and that's the last day I ate something delicious. Since that day I've felt horrible. I finished my antibiotics that Saturday and I've become worse. All I taste is blood now. Anything I drink makes me want to throw up. I have to sleep sitting straight up :(. I'm miserable and I currently weight less than 120. So to go from 157-120 in a matter of two to three months is taking its toll on my body. I'm losing hope. I'm 22 years old and Monday April 30th was the last time I was actually happy. If anyone has information or anything to help me please respond. I know I could have something way worse but to go from being perfectly healthy to being labeled anorexic because you want to eat but you can't is really hard. I'd love to hear other peoples stories on this horrible infection.

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Hi all, my GI tested me (PCR only) and it came back positive. He does not preform EIA (toxins) testing. I have no loose stools but still have fatigue, stomach feeling super full after eating and most of the time no appetite although I still push myself to get in at least 1500 calories a day (sometimes 2000 by the hardest). I actually went from 96-100 pounds in a couple of weeks but I’m now fluctuating between 98-99lbs.

How am I supposed to know if I require further treatment without toxin testing? How do I know that I do not have an active infection? I’m so anxious with all of this. I’ve read many times people are active but do not have diarrhea and need treatment.

Thanks

REPLY
Profile picture for 5chances @5chances

Hi all, my GI tested me (PCR only) and it came back positive. He does not preform EIA (toxins) testing. I have no loose stools but still have fatigue, stomach feeling super full after eating and most of the time no appetite although I still push myself to get in at least 1500 calories a day (sometimes 2000 by the hardest). I actually went from 96-100 pounds in a couple of weeks but I’m now fluctuating between 98-99lbs.

How am I supposed to know if I require further treatment without toxin testing? How do I know that I do not have an active infection? I’m so anxious with all of this. I’ve read many times people are active but do not have diarrhea and need treatment.

Thanks

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Side note, I’m 7 weeks post vanco

REPLY
Profile picture for 5chances @5chances

Hi all, my GI tested me (PCR only) and it came back positive. He does not preform EIA (toxins) testing. I have no loose stools but still have fatigue, stomach feeling super full after eating and most of the time no appetite although I still push myself to get in at least 1500 calories a day (sometimes 2000 by the hardest). I actually went from 96-100 pounds in a couple of weeks but I’m now fluctuating between 98-99lbs.

How am I supposed to know if I require further treatment without toxin testing? How do I know that I do not have an active infection? I’m so anxious with all of this. I’ve read many times people are active but do not have diarrhea and need treatment.

Thanks

Jump to this post

Hello It will take a while for your stomach to regulate. I felt all these symptoms still 3 months after CDIFF. The feeling full and no appetite and the nausea. I am now 5 months post antibiotic and still feel awful some days and I still don’t have a great appetite and get the dull stomach pain this is all inflammation from the infection.
How many bowel movements are you having per day? It is a good sign that your stool is not loose but even if they are loose doesn’t mean there is an infection it will take time.
Are you taking any probiotic and are you watching your food? What’s your diet like?

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Profile picture for mhi @mhi

Hello It will take a while for your stomach to regulate. I felt all these symptoms still 3 months after CDIFF. The feeling full and no appetite and the nausea. I am now 5 months post antibiotic and still feel awful some days and I still don’t have a great appetite and get the dull stomach pain this is all inflammation from the infection.
How many bowel movements are you having per day? It is a good sign that your stool is not loose but even if they are loose doesn’t mean there is an infection it will take time.
Are you taking any probiotic and are you watching your food? What’s your diet like?

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Hi, and thanks for responding. I have 1 to 2 bowel movements in the morning, on rare occasion 3. Quite honestly my diet is horrible. Potatoes, sweet potatoes, carrots, green beans, eggs, oats, kefir, kraut, almond butter, pasta, bananas, peeled apples, orgain protein, collagen, bone broth, avocado sorts of things.
I do take Jarrow s. Boulardii, klaire labs vital 10, and align every few days along with digestive enzymes and I add high resistance potato starch to smoothies.

I did test positive and it kind of scares me due to the fact that after 2 months I still have odd symptoms.

REPLY
Profile picture for 5chances @5chances

Hi all, my GI tested me (PCR only) and it came back positive. He does not preform EIA (toxins) testing. I have no loose stools but still have fatigue, stomach feeling super full after eating and most of the time no appetite although I still push myself to get in at least 1500 calories a day (sometimes 2000 by the hardest). I actually went from 96-100 pounds in a couple of weeks but I’m now fluctuating between 98-99lbs.

How am I supposed to know if I require further treatment without toxin testing? How do I know that I do not have an active infection? I’m so anxious with all of this. I’ve read many times people are active but do not have diarrhea and need treatment.

Thanks

Jump to this post

It will take a while for your body to regulate. I am 5 months post cdiff and still not feeling great. I recommend seeing a nutritionist to help you with the food. I have been seeing one and it definitely does help. But again it will take time I am still not feeling perfect and have similar bowel movements to yours mostly 2 to 3 per day. Do you have nausea at all?

REPLY
Profile picture for mhi @mhi

It will take a while for your body to regulate. I am 5 months post cdiff and still not feeling great. I recommend seeing a nutritionist to help you with the food. I have been seeing one and it definitely does help. But again it will take time I am still not feeling perfect and have similar bowel movements to yours mostly 2 to 3 per day. Do you have nausea at all?

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I am seeing a dietitian currently. She is focusing more on gut healing right now, slippery elm, marshmallow root. I reached out to her about the positive PCR and we were going to do biocidin and gi detox to try and get rid of it, but I’m worried it stirs up another infection.

REPLY
Profile picture for 5chances @5chances

I am seeing a dietitian currently. She is focusing more on gut healing right now, slippery elm, marshmallow root. I reached out to her about the positive PCR and we were going to do biocidin and gi detox to try and get rid of it, but I’m worried it stirs up another infection.

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The slippery elm and marshmallow root will help with the leaky gut and inflammation I have taken GI revive worked with a naturopathic doctor and I was on that. And we did as well a herbal anti microbial after my second round of antibiotics because I was still feeling awful and my stool wasn’t right. But now I am only still taking probiotic and prebiotic powder for two weeks only because I am trying to stay away from gluten.
Go with what your gut tells you and what you feel comfortable with only you know your body and will start knowing what works and what doesn’t, every person is different and responds differently to supplements. Did you ask your doctor about the GI detox?? Maybe you want to check with your doctor on that... good luck and please keep me posted with the results and what you decide.

REPLY
Profile picture for mhi @mhi

The slippery elm and marshmallow root will help with the leaky gut and inflammation I have taken GI revive worked with a naturopathic doctor and I was on that. And we did as well a herbal anti microbial after my second round of antibiotics because I was still feeling awful and my stool wasn’t right. But now I am only still taking probiotic and prebiotic powder for two weeks only because I am trying to stay away from gluten.
Go with what your gut tells you and what you feel comfortable with only you know your body and will start knowing what works and what doesn’t, every person is different and responds differently to supplements. Did you ask your doctor about the GI detox?? Maybe you want to check with your doctor on that... good luck and please keep me posted with the results and what you decide.

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Did you have negative pcr before starting gi detox? This scares me due to the fact that I’m still positive pcr. I read that biocidin can also kill off good bacteria and someone mentioned that it caused cdiff to get worse due to this. That’s really scary!

REPLY
Profile picture for 5chances @5chances

Did you have negative pcr before starting gi detox? This scares me due to the fact that I’m still positive pcr. I read that biocidin can also kill off good bacteria and someone mentioned that it caused cdiff to get worse due to this. That’s really scary!

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This is the supplements

REPLY
Profile picture for 5chances @5chances

Hi all, my GI tested me (PCR only) and it came back positive. He does not preform EIA (toxins) testing. I have no loose stools but still have fatigue, stomach feeling super full after eating and most of the time no appetite although I still push myself to get in at least 1500 calories a day (sometimes 2000 by the hardest). I actually went from 96-100 pounds in a couple of weeks but I’m now fluctuating between 98-99lbs.

How am I supposed to know if I require further treatment without toxin testing? How do I know that I do not have an active infection? I’m so anxious with all of this. I’ve read many times people are active but do not have diarrhea and need treatment.

Thanks

Jump to this post

Heard good thing about both. I would check with your doctor first and see what he says because any antimicrobial could kill good gut bacteria. I have never done a PCR test only repeated the toxin test twice and came back negative this was after I did the antimicrobial.
Is the PCR a regular stool test as well? Do you experience nausea sometimes?? Because I still do sometimes and no appetite sometimes still there.

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