Mac question: Arikayce Inhaler Antibiotic

Posted by jr2366 (Jennifer) @jr2366, Dec 26, 2020

hi all I have a question does anyone know if the medication from arikayce made them sort of feeling little bit more congested and do you think in a few months from being on this inhaler antibiotic pain in the lung will get better in time. i'm only on it for about 9 days now. getting frustrated already I feel like crying I have no voice and not sure if it will come back. I feel like I'm holding back from going to see family sometimes because I can't even speak with hardly no voice. I'm going to call the pharmacist today about those lozenges called strepfen to see if its safe to try them. has anyone found there voice was much better from trying them? I definitely need my voice I'm getting so frustrated thanks to anyone who can help thank you so much.

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Thanks for all the responses.

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@jr2366

Where did you buy strepfen? Thanks

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@jr2366 Hi Jennifer Here in New Zealand we get them from the chemist otherwise online. Take care Heather

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@judyjo

Thank you Heather. The hoarseness doesn't bother me that much but I'm a bit worried it won't subside after I stop the Arikayce. It also makes me cough pretty harshly and productively in the middle and at the end of the treatment. I'm beginning to think the cough is contributing to the hoarseness. I'll try your suggestions.

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@judyjo My voice came back completely after stopping Arikayce, with the coughing try to get something up and out of your lungs, if it really bothers you have a glass of water next to you and sip on that, it helps. Take care Heather

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@irene5

@judyjo I have been on daily Arikayce since 6/8/2020. I am also on the Big 3. The hoarseness did go away for me. My throat is always sore after each treatment, but a nice bowl of Friendly’s vanilla bean ice cream helps me. Good luck. @irene5

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Ha Ha. Ice- cream- the best cure-all. Thanks!

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@jr2366

I cough the same after treatment with Arikayce but I do gargle afterwards they say it’s good for your throat I suck in lozenges also

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Thanks Jennifer, good to know I'm not the only one coughing my heart out on the Arikayce. I'll hang in there-gargle, lozengers and ice-cream 🙂 and try and exercise as much as I can.

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@heathert

@judyjo My voice came back completely after stopping Arikayce, with the coughing try to get something up and out of your lungs, if it really bothers you have a glass of water next to you and sip on that, it helps. Take care Heather

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That makes me feel better. Thanks.

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@heathert

@jr2366 Hi Jennifer Here in New Zealand we get them from the chemist otherwise online. Take care Heather

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thanks ok i will look on line

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@judyjo

Thanks Jennifer, good to know I'm not the only one coughing my heart out on the Arikayce. I'll hang in there-gargle, lozengers and ice-cream 🙂 and try and exercise as much as I can.

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yes joanne we are in the same boat it sucks!!

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@heathert

@judyjo My voice came back completely after stopping Arikayce, with the coughing try to get something up and out of your lungs, if it really bothers you have a glass of water next to you and sip on that, it helps. Take care Heather

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how long were you on the arikayce Heather must be great to not have to do anymore what now i was just wondering do you also have the bronchiectasis? i do lucky me.

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@jr2366

how long were you on the arikayce Heather must be great to not have to do anymore what now i was just wondering do you also have the bronchiectasis? i do lucky me.

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Hi I was on Arikayce for a year, I had a year off then had to go back on the big 3, fun, Yes I also have bronch, lucky us!Take care Heather

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