New to living with Mild Cognitive Impairment (MCI)

Posted by Janie @dougjanehaltom, Nov 20, 2020

I have recently been diagnosed with MCI and I'll be attending Mayo Clinic group on this. Each day just seems to bring me challenges. I have days when I get depressed because I feel like I'm being a burden to others. I will be attending MCI seminar at Mayo Clinic in January. I need help and support in this area.

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Profile picture for Sarah @emyliander

I’ve just written a reply in the box at the bottom of the screen and posted it. But I don’t know where it went.

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Correction – I've just verified with the sender and it was text only and no picture. I thought the picture disappeared.

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Profile picture for Ellen @helenfrances

You are a strong woman. Thank you for sharing your positive attitude about your diagnosis.

I also have MCI (mild cognitive impairment). After testing my neurologist assured me that I do not have Alzheimer’s. Yet?
I was prescribed Clonazapam for a head tremor. I became dependent on this pharmaceutical..I did not know that it affects memory and mood!
I am now tapering off of Clon with the help of Escitalopram.
I am looking forward to meeting a (referral) psychiatrist who will counsel and manage the decrease in medication. 🙏 please

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I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

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Profile picture for dorty @dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind --long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety - don't need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example--these are all things I have been really good at -- until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. "not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am "to remain concerned but not consumed over these results", call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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today our children came for my husbands 80th birthday ,our kids are college professors, one 28 year old grandson and his wife. The conversations went like this, "do you remember what's his name? Used to live on what's that street that was just right off highway something" Remember the guitar player that was popular, oh you remember, he had a mustache and we saw him in Nashville" I have taken Xanax for 30 years, three of us take omeprazole, one takes a pill for epilepsy. Docs tell me mine is stress related, I have a brain tumor, my husband never took a pill in his life so I don't worry about it. I asked the doc about omeprazole and she said forget everything they said about it, new studies show it doesn't cause memory loss. Everyday things change.

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Profile picture for Sarah @emyliander

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

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Hi, @emyliander - would you consider contacting the medical center for an update on your appointment? How are your symptoms lately?

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Profile picture for Sarah @emyliander

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

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I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

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Profile picture for flind @flind

I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

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@flind Clonazepam is one of the benzodiazipines. Medical information for doctors is to reconsider use of benzos for the elderly as they may cause some problems. It is not an order, but something for doctors to consider when deciding what to prescribe. Your doctor or pharmacist should be able to tell you more about any possible side effects.

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Profile picture for flind @flind

I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

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Profile picture for Sarah @emyliander

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

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Thinking of you, @emyliander, and hoping the doctor's office has called and set up the testing appointment(s) now?

@rachelanne - I'm wondering how things are going for you? Are you noting any MCI symptoms?

@beverlymarks and @lindaburdett - would love to hear from you about how the memory-related symptoms are going.

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Profile picture for Sarah @emyliander

Thank you to all that have enquired after me. Yesterday I noticed the “ view more “ box, I was thinking that no one was writing anymore, I should have known. I called the referred Dr’s office weeks ago and was told they do so many referrals a month, guess it hasn’t been my month yet. Now with COVID 19 all appointments we had have been postponed. My memory problems continue, my husband keeps telling me “ you don’t listen to me” trouble is he talks so much, I have a hard time filtering out what I really need to listen to. I have to laugh sometimes at the things I do. I made a meal for a man who’s wife had died and called to ask what time he would like me to bring it. I didn’t hear from him so just took it when it was ready. A few weeks later I was listening to my messages on my cell phone and found the message for the man. Apparently I called from our home phone and left the message on my cell phone, no wonder he didn’t answer. 😬 our house goes on the market in 11 days, we’ve been unable to find a place in NY, complicated by having 2 cats and a dog. Also trying to get our daughter set up with a day program to attend. Some days are better than others.

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I don’t seem to have a very good memory. I marvel at my friends but I have always been a bit that way about details. I self diagnose myself with mild attention deficit disorder at 65. Something in my mind tells me I don’t need that info especially when people get long winded. A lot has to do with my anxiety and being in the present moment. Of course, it is a part of aging. Hope I don’t sound like a know it all. These are thoughts I have regarding me personally. Maybe it can help others. As always, it pays to have a good sense of humor if your issues aren’t extreme.

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Profile picture for Sarah @emyliander

I guess I didn’t wait long enough !

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I do the same. We are only human 🤝

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