Is it safe to get the Corona Virus (COVID-19) vaccine with PMR?
Just wondering if anyone has found out if it is okay to get the corona virus vaccine once it comes out. I'm 78, so past the 65+ age for early vaccinations, plus having the autoimmune diagnosis. I don't see my rheumatologist for another two months but guess I'll call him to find out if t comes to that. Just thought I'd see if anyone else has found out. I had no problem with the flu shot.
Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.
@peggyp.. Before I had the second Moderna shot, I was very worried too, but it wasn't that bad. I had a sore arm, but then I got it even with the flu shot. I'm on blood thinner too, also no problem. I did have a low grade temperature, I didn't even know I had it until my son called and asked me if I tested my temperature. I did not need to take Tylenol. My bp and HR was higher but that's to be expected. It's good to have some reaction, it means the vaccine is working. All in all, it was tolerable. So don't worry too much. The benefits outweigh the discomfort.
Hi. I am not chris@1949. Help
Hi all. I am happy to have found you. I have PMR and will receive my second Pfizer shot next Wed. It took me more than a month to lower my prednisone from 20mg to 10mg, which my Dr and the hospital provider wanted. I did okay with the shot, sore arm, but my PMR is flaring. Taking Tylenol to get through this, but I am really sore. Will be happy to get through next Wed and the 2 weeks building immunity. Then,I can deal with the PMR again. It is painful but worth it
Welcome to the club we would all prefer not to be in but here we are. Great information here and extremely helpful members to go with it. Trust your journey is at best, mostly uneventful.
Mayofeb, Thanks for the update on your experience. I’m getting the second Pfizer shot this coming Wednesday. Expecting some discomfort and likely fever but hoping that’s all I get. At 9 mg now and perhaps tapering to 8.5 in a couple of weeks. Taking it very slowly this time around.
Wow, good for you. Glad you can tolerate the steep decline in Pred. Do be watchful of any head (temple) or jaw discomfort, stiffness. ‘These are classic GCA symptoms. Mine were triggered when I tapered a bit too steeply. I had to go backup to 15 and now very slowly at 9, 5 months later.
But yes, it’s great to have this forum right? It’s a strange disorder, we don’t have much to go on and the moderators, esp John have been so helpful in directing us to articles that might expand our understanding. I feel like a hatch was opened and we fell into this “clubhouse” of sorts. None of us wanting to be here, but glad to have some company as we try to sail through these choppy waters.
Thx for the reply. i am 76 and need the vaccine. The vaccine is effective with less prednisone. My Dr and the medical center here want it to be 10 mg or less. It took me a month plus, lowering 1 mg at a time. I am just notably sore in my shoulders, lower back, etc. muscles—all the usual places. I will go back up after the shot.
Thanks for posting your Drs and medical centres preference for the Prednisolone dose as I am finding that information hard to come by due to lack of information on the effectiveness of the vaccine with Prednisolone. Being in Oz we are in a far better position to be able to wait a little longer before getting our shots. Take care.
Kristem2020. I have a very good friend in England who just had her first Pfizer vaccine and also scheduled for 2nd one 12 weeks from first one. She does not have PMR but it seems all British citizens no matter what have to wait 12 weeks. I wonder if they know something we don't. Anyway, I'm 78, have PMR, had both my Pfizer vaccines with no problem whatsoever. Not even a sore arm. I'm only on 4 mg. Prednisone right now. Had PMR for 1 year.
Hello,
I also got PMR immediately (like the next day) after getting my 2nd Shingrix vaccine. I read quite a few of these, and thought about it, and got my first Covid vaccine (Pfizer) this past Saturday with no issues. I figured if the Covid vac. flared up the PMR, they can just bump my prednisone back up to 20mg (am currently at 12.5, tapering down 2.5 every 2 wks),