Wow, good for you. Glad you can tolerate the steep decline in Pred. Do be watchful of any head (temple) or jaw discomfort, stiffness. ‘These are classic GCA symptoms. Mine were triggered when I tapered a bit too steeply. I had to go backup to 15 and now very slowly at 9, 5 months later.
But yes, it’s great to have this forum right? It’s a strange disorder, we don’t have much to go on and the moderators, esp John have been so helpful in directing us to articles that might expand our understanding. I feel like a hatch was opened and we fell into this “clubhouse” of sorts. None of us wanting to be here, but glad to have some company as we try to sail through these choppy waters.

Jump to this post