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@ste44

Hi all. I am happy to have found you. I have PMR and will receive my second Pfizer shot next Wed. It took me more than a month to lower my prednisone from 20mg to 10mg, which my Dr and the hospital provider wanted. I did okay with the shot, sore arm, but my PMR is flaring. Taking Tylenol to get through this, but I am really sore. Will be happy to get through next Wed and the 2 weeks building immunity. Then,I can deal with the PMR again. It is painful but worth it

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Replies to "Hi all. I am happy to have found you. I have PMR and will receive my..."

Welcome to the club we would all prefer not to be in but here we are. Great information here and extremely helpful members to go with it. Trust your journey is at best, mostly uneventful.

Wow, good for you. Glad you can tolerate the steep decline in Pred. Do be watchful of any head (temple) or jaw discomfort, stiffness. ‘These are classic GCA symptoms. Mine were triggered when I tapered a bit too steeply. I had to go backup to 15 and now very slowly at 9, 5 months later.
But yes, it’s great to have this forum right? It’s a strange disorder, we don’t have much to go on and the moderators, esp John have been so helpful in directing us to articles that might expand our understanding. I feel like a hatch was opened and we fell into this “clubhouse” of sorts. None of us wanting to be here, but glad to have some company as we try to sail through these choppy waters.