1. < Chronic Pain

Ask your doctor or pain clinic

Posted by wishingtobepain @wishingtobepain, Nov 19, 2020

Just recently moved back to Missouri from Washington state when I found out my pain clinic here was not prescribing narcotics any more.
I asked them for listing of doctors or clinics in area that still do, they had no issue with printing out for me. I found a wonderful doctor, that I'm very comfortable with that prescribes narcotics.
I was taking 15mg of extended release morphine up to 3 times a day. Now I am taking 2 50mg tramadol up to 3 times a day. I honestly think it works better than morphine.
Just a thought since most of us our dealing with not getting meds we've been on. I was on morphine for over 12 years, the pain clinic just says no and doesn't offer anything for pain or offering to help with withdraws. I really didn't have much withdraw symptoms, but went 3 weeks without pain meds, and it was not fun!!

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Mentor
Ginger, Volunteer Mentor | @gingerw | Nov 21, 2020
In reply to @faithwalker007 "As much as I would love to talk to my pain specialist like that, she doesn’t..." + (show)
@faithwalker007

As much as I would love to talk to my pain specialist like that, she doesn’t understand that. Her scale is 1-10 Pain with 10 being the worst ever felt, 0 no pain at all.
The worst pain I’ve ever felt? I would love to be able to say childbirth, after all I was in labor for 54 hours with contractions 2 minutes apart for better part of 43 hours, but no. The worst pain of my life I set the 10 mark at is the worst Migraine of my life.
It hit without warning—no aura or premonition as I usually have— and my head felt like the right side of it was instantly was being split open with an axe. The pain sliced through my right eye and back toward the back of my head hard as if someone had shoved an ice pick through my skull.
I took my meds— Demerol 50mg and Promethazine 100mg and stretched out in my bed in the dark praying for some relief only for my mouth and face and right arm to instantly begin to buzz and go numb.
I knew nothing was going to stop.
I stumbled out into the brightly lit living room (not realizing not a light was lit and it was dusk), to meet my husband and son and tell them... something.
The rest of the evening is a literal blur.
I remember only bits and pieces: the piercing glare of the ER overhead lights before they went out, the nurse asking for my pain on a scale on 1-... and stopping and answering a 10 on the chart herself and then simply turning to my husband and mumbling something and walking out of the trauma room, and wanting to scream but knowing if I did I wouldn’t be able to stop the nausea from becoming more.
After that I woke up in my own bed and my eighteen year old son was sleeping beside me, holding my hand where he had been for the last three days.
That is my ten.

So when I say an eight or a nine, maybe the doctor or you have a clue to the pain I live with each day.

Jump to this post

@faithwalker007 I would wager that all of us reach a 10 at some point. And hopefully we don't experience something greater so that we have to re-evaluate our levels and come up with a new pain level of 10. My oncologist's assistant will ask me my pain level overall. And then asked me where I hurt the worst at that moment. Many times it's pretty obvious from my face that there is discomfort somewhere in my body. Most recently I have been suffering severe headaches from the lesions caused by multiple myeloma. There is nothing that will relieve that, and as those who have experienced bad headaches can attest to, nothing seems to relieve it and everything seems to magnify it simply by being contained in the head.

My heart aches for you, just on the experience you related here.
Ginger

REPLY
bustrbrwn22 | @bustrbrwn22 | Nov 21, 2020
In reply to @faithwalker007 "As much as I would love to talk to my pain specialist like that, she doesn’t..." + (show)
@faithwalker007

As much as I would love to talk to my pain specialist like that, she doesn’t understand that. Her scale is 1-10 Pain with 10 being the worst ever felt, 0 no pain at all.
The worst pain I’ve ever felt? I would love to be able to say childbirth, after all I was in labor for 54 hours with contractions 2 minutes apart for better part of 43 hours, but no. The worst pain of my life I set the 10 mark at is the worst Migraine of my life.
It hit without warning—no aura or premonition as I usually have— and my head felt like the right side of it was instantly was being split open with an axe. The pain sliced through my right eye and back toward the back of my head hard as if someone had shoved an ice pick through my skull.
I took my meds— Demerol 50mg and Promethazine 100mg and stretched out in my bed in the dark praying for some relief only for my mouth and face and right arm to instantly begin to buzz and go numb.
I knew nothing was going to stop.
I stumbled out into the brightly lit living room (not realizing not a light was lit and it was dusk), to meet my husband and son and tell them... something.
The rest of the evening is a literal blur.
I remember only bits and pieces: the piercing glare of the ER overhead lights before they went out, the nurse asking for my pain on a scale on 1-... and stopping and answering a 10 on the chart herself and then simply turning to my husband and mumbling something and walking out of the trauma room, and wanting to scream but knowing if I did I wouldn’t be able to stop the nausea from becoming more.
After that I woke up in my own bed and my eighteen year old son was sleeping beside me, holding my hand where he had been for the last three days.
That is my ten.

So when I say an eight or a nine, maybe the doctor or you have a clue to the pain I live with each day.

Jump to this post

Renee that story broke my heart. Did it ever happen again? Jen

REPLY
1 reply
Faithwalker007 (Renee) | @faithwalker007 | Nov 21, 2020
In reply to @bustrbrwn22 "Renee that story broke my heart. Did it ever happen again? Jen" + (show)
@bustrbrwn22

Renee that story broke my heart. Did it ever happen again? Jen

Jump to this post

Never to that degree again. I've had migraines again and have had to take my meds and close myself in my bedroom and sleep for 2-3 days but thankfully, I've been able to focus through the pain and deal with it. The migraine has never reached an all-consuming mind-numbing level of a 10 as that night.

REPLY
ZeeGee | @fourof5zs | Nov 25, 2020

I didn't leave this conversation.. just not much brain to think the past few days. My son, daughter-in-law, three grandchildren here in Georgia.. but not in same town as me and my husband.. . and my brother and his wife out in Washington state have been dealing with having covid. My brother the worse was in the hospital and he had diverticulitis at same time with an abscess. Thankfully he was able to come home Monday evening.

I had gone to my pain specialist and was diagnosed with sacroiliac joint dysfunction. I had an injection Monday. It was very hard to place a number to pain. It always is. I think because I have had extreme pain.. the worst ever after open abdominal surgery in 2015. I had 3 loops of my intestines come up into my chest.. push my lung against my ribcage.. partially collapsing my lung. Yep, that was painful, but the surgery more painful. I was sliced from sternum to my back just below my left shoulder blade.One rib was cut and one cracked and muscle cut through so the two surgeons could get to everything they needed to for repair.

My ribs are what I judge worse pain by now. They do not hurt as much as they first did after surgery, still most days I feel like I fell down a flight of stairs.. pulling rib muscles and cracking ribs. Yes, I have done that before. That is why I live in a home with no stairs.. no steps really to speak of.. two inches to step up or down anywhere. Sometimes my ribs burn a bit too and that puts them at a 10.. without the burn an 8.

I put this sacroiliac joint dysfunction pain at an 8 and after the injection a 2. Right now a 5. I will take a pain pill in a few minutes and my pain level will go down.

To some degree I probably perceive pain less than most.. at least according to my other half. Some of it is natural and much acquired. I would try to outdo my brother.. the one out in Washington state. He is just 17 months older than I am. He always cried when we got shots when we were children.. I made up my mind I wasn't going to cry over having a shot when I was about 5. He did cry.. but next time he didn't. 😁 My daddy would hurt himself.. bandage up and carry on.. so some of it learned from him. Most of it is just doing the best with whatever comes before me. Crying .. nothing wrong with it. It can release pain. I don't remember it after my 2014 surgery.. the one before the open surgery.. I had a leakage of my intestine and have not much memory of a week, but my husband says I cried with pain and they had to convince me to take some pain medication. My stubbornness abounds.

I am hoping in about 10 days I can report to my pain specialist that this sacroiliac joint dysfunction pain is gone or is at least diminished to a lower level.

Our day tomorrow will be quiet.. a small meal for us two.. and Ziggy (the dog). We will count our blessings.. they are countless.

Wishes for a delightful and happy Thanksgiving to you all.

Zee Gee

REPLY
1 reply
bustrbrwn22 | @bustrbrwn22 | Nov 25, 2020
In reply to @fourof5zs "I didn't leave this conversation.. just not much brain to think the past few days. My..." + (show)
@fourof5zs

I didn't leave this conversation.. just not much brain to think the past few days. My son, daughter-in-law, three grandchildren here in Georgia.. but not in same town as me and my husband.. . and my brother and his wife out in Washington state have been dealing with having covid. My brother the worse was in the hospital and he had diverticulitis at same time with an abscess. Thankfully he was able to come home Monday evening.

I had gone to my pain specialist and was diagnosed with sacroiliac joint dysfunction. I had an injection Monday. It was very hard to place a number to pain. It always is. I think because I have had extreme pain.. the worst ever after open abdominal surgery in 2015. I had 3 loops of my intestines come up into my chest.. push my lung against my ribcage.. partially collapsing my lung. Yep, that was painful, but the surgery more painful. I was sliced from sternum to my back just below my left shoulder blade.One rib was cut and one cracked and muscle cut through so the two surgeons could get to everything they needed to for repair.

My ribs are what I judge worse pain by now. They do not hurt as much as they first did after surgery, still most days I feel like I fell down a flight of stairs.. pulling rib muscles and cracking ribs. Yes, I have done that before. That is why I live in a home with no stairs.. no steps really to speak of.. two inches to step up or down anywhere. Sometimes my ribs burn a bit too and that puts them at a 10.. without the burn an 8.

I put this sacroiliac joint dysfunction pain at an 8 and after the injection a 2. Right now a 5. I will take a pain pill in a few minutes and my pain level will go down.

To some degree I probably perceive pain less than most.. at least according to my other half. Some of it is natural and much acquired. I would try to outdo my brother.. the one out in Washington state. He is just 17 months older than I am. He always cried when we got shots when we were children.. I made up my mind I wasn't going to cry over having a shot when I was about 5. He did cry.. but next time he didn't. 😁 My daddy would hurt himself.. bandage up and carry on.. so some of it learned from him. Most of it is just doing the best with whatever comes before me. Crying .. nothing wrong with it. It can release pain. I don't remember it after my 2014 surgery.. the one before the open surgery.. I had a leakage of my intestine and have not much memory of a week, but my husband says I cried with pain and they had to convince me to take some pain medication. My stubbornness abounds.

I am hoping in about 10 days I can report to my pain specialist that this sacroiliac joint dysfunction pain is gone or is at least diminished to a lower level.

Our day tomorrow will be quiet.. a small meal for us two.. and Ziggy (the dog). We will count our blessings.. they are countless.

Wishes for a delightful and happy Thanksgiving to you all.

Zee Gee

Jump to this post

@fourof5zs I cannot imagine how painful that surgery must have been! I definitely would have begged for anything to get rid of the pain.

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