1. < MAC & Bronchiectasis

White mucus in lungs without cough

Posted by adam11133 @adam11133, Oct 5, 2020

Hi , my name is adam , I have been suffering with excessive white mucus coming from lungs with out coughing 8 months ago.
I find difficulty to expel continually accumulating mucus coming from my lungs to throat. I have no other symptoms like fever, cough, chest pain etc , pls help me i am losing hope

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Moderator
Colleen Young, Connect Director | @colleenyoung | Nov 1, 2020
In reply to @adam1131 "Hello everyone I am going to told you what happened So doctor told me e I..." + (show)
@adam1131

Hello everyone I am going to told you what happened
So doctor told me e I have Mac infection in my upper lung with Bronchiectasis after hearing that I don't know what to do is doctor give me medicines for immunity boosting he also give me single antibiotic but after taking all this medicines for 4 weeks I did not see any improvement so please tell me what should I do I think three antibiotics or at least two antibiotics will help me , and my blood test reports shows high amount of hemoglobin and and also high serum HGG I don't know what to do anymore please help me I think I am going to die

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Hi @adam1131, I know this is very scary, but now you have a diagnosis and you can get proper treatment. I have moved this discussion to the MAC & Bronchiectasis group. Click this link https://connect.mayoclinic.org/group/mac-bronchiectasis/

In the MAC & Bronchiectasis group you will find many informative discussions and get support from many members who live well with MAC and & bronchiectasis. Your on the right path and will see that several members have been helped by taking antibiotics, like @windwalker @sueinmn @testlady @auntnanny and others.

See this discussion:
- Long-term Antibiotics for Bronchiectasis & MAC https://connect.mayoclinic.org/discussion/bronchiectasis-mac-antibiotics/

REPLY
Merry, Alumni Mentor | @merpreb | Nov 2, 2020
In reply to @gaylesunflower1 "If I had brought a bat with me I would have hit him in the head..." + (show)
@gaylesunflower1

If I had brought a bat with me I would have hit him in the head - I was so upset. It was the 5th doctor that actually is helping me - long wait but well worth it. He spent an hour and 10 minutes talking and listening to me. He told me to stop taking the wixela and use the albutorol as needed. He told me that he trusts that my lungs will get better and that I will get on track with being healthy and physically active. He told me that we are going to take it one step at a time. Side Note - purple is both of our favorite colors.
He said I should walk 30 minutes a day 3 times a week. That is hard for me to do - have back problems - I hit a semi head on and that is another story. I checked YouTube and there are some good exercises for the lungs - one is called respiratory muscles exercises. I'm looking into getting a treadmill so I can walk inside. Thanks Merry

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@gaylesunflower1- Am checking in to see how you are doing. Have you checked with the doctor who treats your back what exercises will help get your back feeling better? I bought a nustep. Did you buy a treadmill?

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1 reply
Mentor
Sue, Volunteer Mentor | @sueinmn | Nov 2, 2020
In reply to @adam1131 "Hello everyone I am going to told you what happened So doctor told me e I..." + (show)
@adam1131

Hello everyone I am going to told you what happened
So doctor told me e I have Mac infection in my upper lung with Bronchiectasis after hearing that I don't know what to do is doctor give me medicines for immunity boosting he also give me single antibiotic but after taking all this medicines for 4 weeks I did not see any improvement so please tell me what should I do I think three antibiotics or at least two antibiotics will help me , and my blood test reports shows high amount of hemoglobin and and also high serum HGG I don't know what to do anymore please help me I think I am going to die

Jump to this post

Hello, MAC is a scary diagnosis at first, but as you will learn here, we all learn how to live with it in time. Feel free to ask all the questions you have. We are not doctors, but we can certainly share our experiences with you.

I'm curious, who made your diagnosis? With bronchiectasis and MAC it is very important to see a pulmonologist and/or infectious disease (ID) doc who are familiar with the complex and long-term treatment needed. Not every doctor is familiar with MAC and the treatment protocols.

Sue

REPLY
Jane S. Brown | @macjane | Nov 2, 2020

You are always supportive. Jane Brown

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gaylesunflower1 | @gaylesunflower1 | Nov 2, 2020
In reply to @merpreb "@gaylesunflower1- Am checking in to see how you are doing. Have you checked with the doctor..." + (show)
@merpreb

@gaylesunflower1- Am checking in to see how you are doing. Have you checked with the doctor who treats your back what exercises will help get your back feeling better? I bought a nustep. Did you buy a treadmill?

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Hi Merry - thanks for checking in - bought a walking treadmill - waiting for it to be delivered

REPLY
1 reply
Merry, Alumni Mentor | @merpreb | Nov 3, 2020
In reply to @gaylesunflower1 "Hi Merry - thanks for checking in - bought a walking treadmill - waiting for it..." + (show)
@gaylesunflower1

Hi Merry - thanks for checking in - bought a walking treadmill - waiting for it to be delivered

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@gaylesunflower1- That's great. Have you thought of any other exercises that you might want to try that go along with walking? You can sit and do upper body exercises. Have you ever tried bicep or tricep curls sitting down?

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