Heat Intolerance: Symptom of Neuropathy?

Hello @kyc117, You will notice I changed your discussion title a little so that members that have noticed the same symptoms can share their experience with you. I've always been sensitive to heat and sweating even before my neuropathy but I do notice that the Winter time bothers me the most with the cold temperatures affecting my legs. While we wait for other members to share their experience with heat intolerance and neuropathy, I did find an interesting article that discusses the topic.

"For example, some sensory nerve damage can cause patients to lose their senses of pain and temperature changes. This numbness can place patients at risk of contracting sunburn without being able to feel it. Other autonomic nerve symptoms may include heat intolerance and increased sweating.May 6, 2020"
-- How Neuropathy Patients Can Manage the Return of Warm Weather: https://fapnewstoday.com/2020/05/06/neuropathy-warm-weather-hot/

You posted earlier that you had an EMG test and are waiting for results. Can you provide an update when you have a diagnosis?

I too was out in the sun for about 40 minutes but I didn't feel uncomfortable. Then without warning, I felt I was starting to faint and get nauseous. My husband rushed to my side, put me in the car and was on the way to the ER. I was breathing heavily and fast.. heatstroke he said. We were not home but 40 min. from home. Before we got home, I was breathing all right, but still sick and headachy and chest pain. Is that what you suffered, kyc117? I think we may be more sensitive to the heat than we were before neuropathy.

@kyc117 Hi. Sorry to hear you are experiencing difficulties with heat as a result of your neuropathy, I too have issues with the heat. I discovered it while I was cooking. Don’t forget we don’t have our full detection mechanisms(nerve cells) so our bodies are getting mixed signals and try to compensate. I too become sweaty and nauseous. Anytime I feel that way, constant deep breaths(like lamaze) seems to help me shortly before I take a break. Your body is telling you it can’t tolerate the conditions. I get the same feeling any time my body gets heated i.e. when I do housework like vacuum, or go outside. I plan my chores daily to make sure I get enough rest in between and not to over do it. Being here in Florida, I stay outdoors briefly(10 minutes) in the summer time and when I do I stay away from the sun. The rest of the months are fine for me especially winter. Luckily my husband likes cold temperatures too so we only turn on the heat in the winter for nights below freezing which rarely happens. I have 3 house rabbits which run loose in my living room. They prefer cold temperatures as well. I will be happy to answer any more questions. Best wishes to you!

Thx John. I'm in bed so much that my computer, Gladys, is too heavy and takes up my entire bed tray. My MS Surface Tablet, Mildred, is what I use mostly. But, the tip I was mainly talking about is how to achieve a balance on the blog. I have come to recognize I can't be as active as I want and need to quit worrying that I'm neglecting anyone or their posts. It's impossible not to! Again, trying to be perfect. That gets me in so much trouble! I'm just compelled to fluff up everyone's world and make them feel validated, cared about and comforted. My limitations are so great. I have to RELINQUISH. Maybe this should be in the mental health section. Oh my. So yes, if you have any tips that way, b/c you are really present for everyone, please send them my way! Balance on a blog that is. Again, thanks so much John. Your input is so valuable. Forgive if you've already commented on this aspect of my request. I've heard I'm getting quite a few emails since beginning to type this. Talk later, Sunnyflower

Thx John. I'm in bed so much that my computer, Gladys, is too heavy and takes up my entire bed tray. My MS Surface Tablet, Mildred, is what I use mostly. But, the tip I was mainly talking about is how to achieve a balance on the blog. I have come to recognize I can't be as active as I want and need to quit worrying that I'm neglecting anyone or their posts. It's impossible not to! Again, trying to be perfect. That gets me in so much trouble! I'm just compelled to fluff up everyone's world and make them feel validated, cared about and comforted. My limitations are so great. I have to RELINQUISH. Maybe this should be in the mental health section. Oh my. So yes, if you have any tips that way, b/c you are really present for everyone, please send them my way! Balance on a blog that is. Again, thanks so much John. Your input is so valuable. Forgive if you've already commented on this aspect of my request. I've heard I'm getting quite a few emails since beginning to type this. Talk later, Sunnyflower

@sunnyflower
Sunny, I have the same problem. There are way more lovable people here than there are hours in the day.

I am trying to organize my time here on Connect. Here is what I think I want to do:

1. Schedule a certain time (or set of different times) each day to do Connect. Try to stick to those times if possible.
2. Try to get to the point a little quicker. That is HARD.
3. Follow @bustrbrwn22 brown's extremely wise advice, "Assume Good Intent". And do not feel others are assuming anything different about me. If I don't get to everyone's posts, I don't. It's all in God's hands, not ours, ultimately.
4. Oh and here is a REALLY good one: don't respond to a post until I have read the responses other people have already written to that post. Good chance someone else has already given a great answer to that person and there is no need for me to.

OK, not going to let myself write another book. Maybe my list will help you, I sure hope it helps me!

Best to you Sunny, Hank

@sunnyflower -- Ah...that kind of tip is what you were asking about, my bad. One thing that I think is most important for every member - your own health is job #1. Before you can help others, you must take care of yourself. If you miss a post, well that happens. I miss a lot of posts. Not because I'm not interested or don't care about someone but it is sometimes overwhelming for all of us and we have to step back for awhile. Another problem is that if you are not tagged in a reply with your "@ membername", it's very easy to miss a reply or a post meant for you to see. That is one of the reasons I try to ensure that I always use the member name when replying to a post.

There are a couple of discussions that are a great resource for newer members and a refresher for those of us that have been on Connect a long time.

[TIP] How to Use Connect: Step-by-step Instructions:
-- https://connect.mayoclinic.org/discussion/tip-how-to-use-connect-step-by-step-instructions/

Tips for Participating in an Online Community:
-- https://connect.mayoclinic.org/page/about-connect/newsfeed-post/tips-for-participating-in-an-online-community/

Hope you are having a great and sunny day!

That must be hard to deal with in Florida! I’m from northwest Indiana, so it will be cooling off very soon. Thanks so much!