Hydrocephalus: Anyone had a shunt?

Posted by ameena @ameena, Aug 24, 2020

My husband has had two lumbar punctures in the last 5mths. The second one more fluid than the first was removed. Dr does not know the cause but wants to implant a shunt or stent. I want to hear a testimony of someone who has had one implanted

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@catharbert

I had a one week trial of InterStim several years ago. The procedure was done in my urologist's office but if I were to have it permanently installed I would have had to go to the hospital. I personally did not like the feeling of the stimulation. I also have problems with my spinal cord and I could foresee needing MRIs of my lower spine in which case I would have had to have the InterStim removed. My bladder issues have continued to worsen but not so much that I want something implanted. I have to self catheterize 4 to 5 times a day because I cannot completely empty my bladder. I have urge incontinence and cannot always get to the bathroom in time. I am 76 and retired and don't need to be out of my house for long periods of time and I manage with cathing at home and wearing pads 24/7. It's not ideal but I've gotten used to it. I do get tired of having to catherterize but I am managing for now. My bowel problems are mainly constipation and that is manageable most of the time with Benefiber and Miralax. I hope you find a solution that works for you.

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Thank you.

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