Hydrocephalus: Anyone had a shunt?

Posted by ameena @ameena, Aug 24, 2020

My husband has had two lumbar punctures in the last 5mths. The second one more fluid than the first was removed. Dr does not know the cause but wants to implant a shunt or stent. I want to hear a testimony of someone who has had one implanted

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@catharbert

I had a one week trial of InterStim several years ago. The procedure was done in my urologist's office but if I were to have it permanently installed I would have had to go to the hospital. I personally did not like the feeling of the stimulation. I also have problems with my spinal cord and I could foresee needing MRIs of my lower spine in which case I would have had to have the InterStim removed. My bladder issues have continued to worsen but not so much that I want something implanted. I have to self catheterize 4 to 5 times a day because I cannot completely empty my bladder. I have urge incontinence and cannot always get to the bathroom in time. I am 76 and retired and don't need to be out of my house for long periods of time and I manage with cathing at home and wearing pads 24/7. It's not ideal but I've gotten used to it. I do get tired of having to catherterize but I am managing for now. My bowel problems are mainly constipation and that is manageable most of the time with Benefiber and Miralax. I hope you find a solution that works for you.

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Thank you.

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three weeks ago because i have been having walking it was adjusted down to a three. at first i had headaches for 4 days then they stopped now for the last 6 evenings the headachs are back today i go in for a ct. wondering if i should call the mayo to mention it thanks in advance

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@johns92118

three weeks ago because i have been having walking it was adjusted down to a three. at first i had headaches for 4 days then they stopped now for the last 6 evenings the headachs are back today i go in for a ct. wondering if i should call the mayo to mention it thanks in advance

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Definitely call your physician at Mayo.

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@johns92118

three weeks ago because i have been having walking it was adjusted down to a three. at first i had headaches for 4 days then they stopped now for the last 6 evenings the headachs are back today i go in for a ct. wondering if i should call the mayo to mention it thanks in advance

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Agree! Call your physician as soon as you possibly can!

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@johns92118

three weeks ago because i have been having walking it was adjusted down to a three. at first i had headaches for 4 days then they stopped now for the last 6 evenings the headachs are back today i go in for a ct. wondering if i should call the mayo to mention it thanks in advance

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Shunts can get clogged up and stop working resulting in increased intracranial pressure. This may or may not show up on a CT and may require a lumbar puncture to measure the pressure. It’s essential to see your physician ASAP to assess the situation. I hope this has already been done. Other signs of increased intracranial, pressure are visual disturbances, nausea and vomiting. I hope the cause of your headaches is something else, simpler to treat.

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@slkanowitz

Shunts can get clogged up and stop working resulting in increased intracranial pressure. This may or may not show up on a CT and may require a lumbar puncture to measure the pressure. It’s essential to see your physician ASAP to assess the situation. I hope this has already been done. Other signs of increased intracranial, pressure are visual disturbances, nausea and vomiting. I hope the cause of your headaches is something else, simpler to treat.

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i did see the doctor and they readjusted my shunt back to a 4 it was at 3 now no headaches but go in for another brain scan in two weeks to see if everything looks ok

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@johns92118

three weeks ago because i have been having walking it was adjusted down to a three. at first i had headaches for 4 days then they stopped now for the last 6 evenings the headachs are back today i go in for a ct. wondering if i should call the mayo to mention it thanks in advance

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Great! Glad that fixed the headaches 😀

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@johns92118

i did see the doctor and they readjusted my shunt back to a 4 it was at 3 now no headaches but go in for another brain scan in two weeks to see if everything looks ok

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I also have a shunt due to hydrocephalus and a few months ago, I had trouble walking. Same problem that started the whole thing. I knew something was wrong with my shunt. Went to doctor who sent me to ER (big mistake) where I collapsed. Woke up in hospital bed. Third day I was there, the doctor arrived to re-set my shunt. Will never use that doctor again. Thankfully, Medicare paid for everything. Probably due to the fact that I passed out in the ER.

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@maxine50

I also have a shunt due to hydrocephalus and a few months ago, I had trouble walking. Same problem that started the whole thing. I knew something was wrong with my shunt. Went to doctor who sent me to ER (big mistake) where I collapsed. Woke up in hospital bed. Third day I was there, the doctor arrived to re-set my shunt. Will never use that doctor again. Thankfully, Medicare paid for everything. Probably due to the fact that I passed out in the ER.

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that would be scarey, so far i havent passed out but had some pretty intense falls, since they readjusted my shunt my headaches are gone, sometimes a little bit if i exert myself. how long have you had hydrosephalus, i am fairly new only 3 years but shunt keeps getting adjusted seems like every 6 months

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