Internal vibration with "nerve firing"

@brayimee Regarding your lifestyle and health change...you've said it perfectly, you cant mom like you used to. I was incredibly blessed that my son was in college and daughter was 16 when all hell broke lose in my body. I absolutely can not fathom if I were to have had little ones. You are going through some hell of your own and I'm very sorry. I was unable to mom the way I used to throughout my daughter's last 3 years of high school and on to college, and it crushed me. Prior, when she was 13, I also had different health issues which disrupted our normalcy as well. It truly is heartbreaking. I learned a huge amount of perseverance, like it or not. You sound determined and if having 5 children isnt enough to push you, I dont know what is! You just keep being amazing by advocating for yourself, hold those Drs accountable and try as best you can to remain hopeful. HOPE and POSITIVITY can make all the difference in the world when fighting uncertainty. And when you may struggle, please know Connect is here for you with compassion, brain storming and support. If you are able, please keep us updated on your progress. Best of everything to you.
Sending good vibes your way~
Rachel

Lots of tears reading your post! It's been such a struggle going from 100% mom to barely functioning. My youngest is 10, oldest 22 so they are very self sufficient, but I want to be hands on with them and doing things with them and I can only be up so long. It's really the oddest symptoms and pain that I have never experienced before.
My husband had been such a trooper and promises I won't be like this forever. He will take me anywhere to get help.
Aimee

@brayimee Aimee - I feel you and am here for you if you need to vent, cry, rejoice or share your health escapades. Please know that I do understand alot of what you are going through emotionally and some physically. Try hard to not beat yourself up over being less of a mom and focus on what you still can do for them...love unconditionally. This is temporary and your husband is a good man telling you such. He sounds alot like mine. I'm happy you have a solid support system. Now, the rest is medical and you will get to the bottom of it. Sounds like you are well on your way! 💪🏼

@brayimee If you would like to seek help from Mayo Clinic, contact one of the appointment offices. The contact information for Minnesota, Arizona and Florida can be found here http://mayocl.in/1mtmR63.

This means a lot. I am in tears again. I pray every night and every day that I will wake up feeling better so I can jump on the trampoline with my son, go running with my daughter or sit at the beach with my family again. I feel like I am morning the loss of mobility, oddly using the restroom normally and just feeling "normal". I am happy to report that my brain MRI is normal. Tomorrow I will see the cardiologist again to gain some insight on why I suddenly developed SVTs and PACs and I have a lower lumbar MRI to see if that will give answers to the weak legs, bathroom issues and left abdominal nerve/muscle spasms.
You are so very kind. Sending you a virtual hug x

Hello! nice to meet you 🙂

I have not encountered any fevers. I will occasionally exprience profuse sweating, but only during a very bad flare up. I use to wake up soaked, but that has lessened. I take 2 Gabapentin and a muscle relaxer just to let me sleep for 8hrs. I know how very important sleep and hydration is. I do not believe I have been bitten by a tick, at least not to my knowledge. No Endocrinologist at this time, maybe the next step?
Right now as I type, I felt the internal vibration and when it stopped, I feel this tingling rush up into my head, and like a nerve sensation in my left abdomen and going down into my glutes. I know it sounds like the strangest thing, but it has been incredibly painful and likes to stick to the left side. I think one of the worst parts is my bowels don't work properly. Passing gas is so incredibly hard and I get so very bloated. Occasionally I can shift positions or do movements to help. Urinating has been better, but I would get so much pain on the left side from to being able to use the bathroom for both. PT has helped with some muscle relaxation and I see minimal improvement with the chiropractor. The chiropractor said I did have a lot of muscle tension and my spine was off in a few places, but I have had 6 adjustments with minimal improvement.
As far as the hemangiomas, I have this theory that because they are vascular tumors in my vertebrae, they swell when my heart rate goes up cause some radiating nerve pain. Such as the T11 if it swells with increased BP/Pulse, is it firing nerves?
This is what I have read about T11 nerves :These vertebrae are important in the control of your kidneys, ureters, colon, small intestines, lymph circulation system, buttocks, and the uterus (in women). As with any of your vertebrae, the T11 can be the culprit of a wide range of health problems. So these are areas I have had issues. As far as T1, this is what I have read: The T1-T4 thoracic sections control primarily chest muscles and organs, such as the heart and lungs. I do get tightness of chest and during this whole crazy issues, my heart started PACs and STVs. I have never had heart health issues and woke up one day having them. So Like I said these are theories, but I just wonder if something is misfiring with nerves and my heart?? I am occasionally able to help my bowels with tennis balls lined up against the spine. Strange!

Thank you for your reply. All advice and questions are welcome!

@brayimee Aimee, I've done some poking around on the web and I am wondering, have you ever been tested for Guillain-Barré syndrome? Its an autoimmune disease that attacks the peripheral nervous system. A lot of your symptoms sound similar, like the leg weakness, the numbness and tingling, the bowel and bladder issues, back pain, abnormal heartbeat or BP, I mean it sounds like you have a lot of these things. You should ask your doc about this possibility. Did you have any sort of vaccination or have a flu or anything in the weeks leading up to when this started? GB is often triggered by these kinds of things and apparently can start rather suddenly after such a trigger. Anyway, it's an idea if it has not been mentioned to you so far. Hank

Hmmmm! I did just now read about it. I do have some symptoms. I will see if my doctor wants to take a look, he hasn't been open to many of my suggestions.
I was sick most of January this year and was put on antibiotic doxycycline in February. That is the only thing I can think of. I woke up end of March with upper left abdomen pain that wrapped around to flank. It lasted a few days and subsided. Then a few weeks later, I woke up with the same pain and it never went away. Everything got worse. Some pain has subsided, but my left side has so very many symptoms ( and sometimes the right side also gets tight around the abdomen) and the heart rate?? I was a weight lifter, runner, HIIT junkie and now going up my stairs causes a 150 pulse. And these weak legs scare me.
I just don't understand and it makes me so very sad that I just lay around all day after being so active. I'm not a quitter, and this has stopped me in my tracks.
Thank you so much, Hank!!
Aimer