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C Diff

Posted by TiaraDee @tiaradee, Jul 11, 2012

I first got sick on May 1st thinking it was the stomach flu. I weight 157lbs and every er that I went to told me to sleep it off and that the longest it could last is two weeks. Two weeks later no difference. I finally saw a gastroenterolgist sometime in June. At that point it was 1 month of no appetite, nausea and diarrhea with tons of mucus(sorry to be so graphic). I did a stool test and he said I had inflammation somewhere and to eat bland and it would go away. It didn't so finally he said I could have Giardia due to having yellow poop since march 🙁 so he put me on flagyl and ciprofloxacin. I guess I put all my eggs in one basket and hoped and prayed that would be it. I started feeling better until one day after I ate I had the urge to throw up. No nausea or anything. Finally had a colonoscopy on June 19th. Got diagnosed with C. Diff colitis. He put me on flagyl three times a day for two weeks. I had my good days and bad days. Fourth of july came around I had a hot dog and pasta salad and that's the last day I ate something delicious. Since that day I've felt horrible. I finished my antibiotics that Saturday and I've become worse. All I taste is blood now. Anything I drink makes me want to throw up. I have to sleep sitting straight up :(. I'm miserable and I currently weight less than 120. So to go from 157-120 in a matter of two to three months is taking its toll on my body. I'm losing hope. I'm 22 years old and Monday April 30th was the last time I was actually happy. If anyone has information or anything to help me please respond. I know I could have something way worse but to go from being perfectly healthy to being labeled anorexic because you want to eat but you can't is really hard. I'd love to hear other peoples stories on this horrible infection.

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sue6408 | @sue6408 | Jan 27, 2020
In reply to @sandyabbey "I had Cdiff caused by antibiotics ( clindamycin ) for a sinus infection. I relapsed 4..." + (show)
Profile picture for sandyabbey @sandyabbey

I had Cdiff caused by antibiotics ( clindamycin ) for a sinus infection. I relapsed 4 times after 4 tries on meds. I was down to 85 pounds. I then had an FMT last February 28th. I’m in remission now but lots of foods still hurt me. Sometimes for it seems like no reason , I have severe cramps. They go away fairly quickly, but at the time I can barely stand it. I get constipated too. I then have to take miralax. It seems to work somewhat, but just small amounts several times a day. Also when I’m constipated my bladder feels like I have a UTI. I went ti my urologist & the culture was somewhat normal, just a few leukocytes. I just took AZO & that helped. As soon as I had a good BM it stopped. I’m now getting that bladder feeling again & I’m not Having good BMs I going e everyday but not enough. I sent to my GI also because I can’t take antibiotics unless life or death. It will mostly cause Cdiff again. I can’t take that again. I almost died. Any input about this appreciated.

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Hi, after having c-diff. for a year I can no longer digest sucrose in my small intestines. Request a sucrose breath test from your G.I. Dr. It took me 3 years to find out the cause of extreme bloating and cramps after the c. diff. nothing was back to "normal". The test is non-invasive.

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bborth | @bborth | Jan 27, 2020
In reply to @sandyabbey "I had Cdiff caused by antibiotics ( clindamycin ) for a sinus infection. I relapsed 4..." + (show)
Profile picture for sandyabbey @sandyabbey

I had Cdiff caused by antibiotics ( clindamycin ) for a sinus infection. I relapsed 4 times after 4 tries on meds. I was down to 85 pounds. I then had an FMT last February 28th. I’m in remission now but lots of foods still hurt me. Sometimes for it seems like no reason , I have severe cramps. They go away fairly quickly, but at the time I can barely stand it. I get constipated too. I then have to take miralax. It seems to work somewhat, but just small amounts several times a day. Also when I’m constipated my bladder feels like I have a UTI. I went ti my urologist & the culture was somewhat normal, just a few leukocytes. I just took AZO & that helped. As soon as I had a good BM it stopped. I’m now getting that bladder feeling again & I’m not Having good BMs I going e everyday but not enough. I sent to my GI also because I can’t take antibiotics unless life or death. It will mostly cause Cdiff again. I can’t take that again. I almost died. Any input about this appreciated.

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I had a bad reaction to cirpro and flagyl post roux en y surgery 4 months ago that I am still dealing with. Seems to have gotten into my CNS. So I feel for you when you try to take something to help your situation, but then end up doing something else bad for you. It is so hard to deal with feeling like this day in and day out. Certainly takes the optimism out of life.

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sandyabbey | @sandyabbey | Jan 28, 2020
In reply to @sue6408 "Hi, after having c-diff. for a year I can no longer digest sucrose in my small..." + (show)
Profile picture for sue6408 @sue6408

Hi, after having c-diff. for a year I can no longer digest sucrose in my small intestines. Request a sucrose breath test from your G.I. Dr. It took me 3 years to find out the cause of extreme bloating and cramps after the c. diff. nothing was back to "normal". The test is non-invasive.

Jump to this post

Thank you, I’ll certainly do that. Cdiff is a monster.

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sandyabbey | @sandyabbey | Jan 28, 2020
In reply to @bborth "I had a bad reaction to cirpro and flagyl post roux en y surgery 4 months..." + (show)
Profile picture for bborth @bborth

I had a bad reaction to cirpro and flagyl post roux en y surgery 4 months ago that I am still dealing with. Seems to have gotten into my CNS. So I feel for you when you try to take something to help your situation, but then end up doing something else bad for you. It is so hard to deal with feeling like this day in and day out. Certainly takes the optimism out of life.

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It really does. Most people don’t understand unless they’ve had it. My life is forever changed. I have heart issues ( afib ) & my meds for that slow me down too.

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fde11 | @fde11 | Jun 9, 2020

hello, i am very worried, lately my bowel movement is diarrhea but i see small pieces of food, i was wondering if anyone else has had the same symptoms, i really appreciate a reply, i ty in advance

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 9, 2020
In reply to @fde11 "hello, i am very worried, lately my bowel movement is diarrhea but i see small pieces..." + (show)
Profile picture for fde11 @fde11

hello, i am very worried, lately my bowel movement is diarrhea but i see small pieces of food, i was wondering if anyone else has had the same symptoms, i really appreciate a reply, i ty in advance

Jump to this post

Hello @fde11,

I can understand your concern about diarrhea with undigested food. How long have you had this problem? In looking on the internet there appear to be many different reasons for this to happen including IBS (irritable bowel syndrome). Have you had a history of IBS or other digestive problems?

Have you talked with a doctor about this problem? If not, please do so.

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1 reply
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fde11 | @fde11 | Jun 9, 2020
In reply to @hopeful33250 "Hello @fde11, I can understand your concern about diarrhea with undigested food. How long have you..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @fde11,

I can understand your concern about diarrhea with undigested food. How long have you had this problem? In looking on the internet there appear to be many different reasons for this to happen including IBS (irritable bowel syndrome). Have you had a history of IBS or other digestive problems?

Have you talked with a doctor about this problem? If not, please do so.

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yes, i had gastrites, after a couple of years i had h-pylori and after i had a gastroscopy and found peptic ulcer, and now i am worried . it's been a month that i have diarreha and little pieces of undigested food, ty for replying

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1 reply
Profile picture for Teresa, Volunteer Mentor
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 10, 2020
In reply to @fde11 "yes, i had gastrites, after a couple of years i had h-pylori and after i had..." + (show)
Profile picture for fde11 @fde11

yes, i had gastrites, after a couple of years i had h-pylori and after i had a gastroscopy and found peptic ulcer, and now i am worried . it's been a month that i have diarreha and little pieces of undigested food, ty for replying

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@fde11 Since you do have a history of digestive disorders, I would certainly recommend contacting your doctor, either by phone or through the patient portal. It is important for your medical provider to know about these symptoms.

Will you contact your doctor's office and inform them about these symptoms?

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1 reply
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fde11 | @fde11 | Jun 10, 2020
In reply to @hopeful33250 "@fde11 Since you do have a history of digestive disorders, I would certainly recommend contacting your..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@fde11 Since you do have a history of digestive disorders, I would certainly recommend contacting your doctor, either by phone or through the patient portal. It is important for your medical provider to know about these symptoms.

Will you contact your doctor's office and inform them about these symptoms?

Jump to this post

ty for your response, i did call the doctor and he give me a prescription for stool test and c-diff, i am so worried now about my health

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1 reply
Profile picture for Teresa, Volunteer Mentor
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 11, 2020
In reply to @fde11 "ty for your response, i did call the doctor and he give me a prescription for..." + (show)
Profile picture for fde11 @fde11

ty for your response, i did call the doctor and he give me a prescription for stool test and c-diff, i am so worried now about my health

Jump to this post

Hello @fde11,

I'm so glad that you contacted your doctor! Now you need to deal with your worry, don't you? I know that this is easier said than done. When we let worry take over our mind it is very hard to think clearly. What activities could you do to take your mind off of your health issues? Could you take a short walk a couple of times a day? What about reading or listening to music? Do you have a friend you could call and talk to (not necessarily about your health issues but just to check in and say hello)?

Connect has discussion groups on Depression/Anxiety. Here is the link to one of those discussions, https://connect.mayoclinic.org/discussion/importance-of-focusing-on-positive-with-depression-anxiety/.

Have you had worry/anxiety problems before this health issue?

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