Do you have pre-seizure issues or symptoms?

@cdupont1234
@lsittll
Look here kids. Question is what is the key protein and is it in the protein we eat? If it’s naturally occurring in our brains can we get more? I need to read the study.

Is protein good for seizures?
Boosting key protein in brain could improve seizure treatment, Stanford study finds. STANFORD, Calif. - A naturally occurring protein in our brains could be the basis for a more promising epilepsy treatment - without the nasty side effects caused by many of the current medications.Aug 15, 2006
med.stanford.edu › news › 2006/08

Can protein cause seizures?
- Diets deficient in amino acids -- chemicals that make up proteins -- can significantly increase susceptibility to epileptic seizures in rats, according to a study by researchers at the University of California, Davis.Jul 11, 1996

Jake

@cdupont1234
I’ve never heard of anyone improving their seizure control by using protein but anything is possible. Everyone is different. There is the man in Canada who has 100% control of his seizures by using B vitamins. Vitamin B6 deficiency is the only vitamin deficiency known to cause seizures. Low sodium, magnesium & calcium are also causes.
I would be more concerned about what you were doing around the time you had these seizures than the particular time frame except the time of day. For example were you stressed, poor quality sleep, If your photosensitive flashing, blinking, flickering lights (tv, theaters, video games, computers, lights in stores/offices even patterns (straps, checkerboard etc.) if you have a reflex epilepsy reading a book can cause a seizure. Musicogenic epilepsy is also a reflex epilepsy. I have a friend in England who has it and he has a key here every time he plays his banjo. Menstruation (catamenial epilepsy), stress, alcohol, medications, illicit drugs, fever, infection. Even food or drinks, excessive caffeine. Granted a number of what I listed are rare but who’s to say who will have rare reaction.
You mentioned you take
“Elequis to prevent blood clots if seizures occur.”
That seems like a mighty big “if” to me. Whats the relationship between blood clots and seizures?
Do you have a history of clots? I’d love to know your doctors reasoning for prescribing blood thinning medication to someone based solely on a seizure diagnosis and especially a seizure every 6 months. Certainly new to me. I wouldn’t take it.
I also have a problem with Trilepital. Probably not justified but I would take other meds first although I know of quite a few people who have good results with it. But it has been known to increase seizures in some usually children I believe and is suspected to increase them in some adults too.
You mentioned the limit drink sugar. How about artificial sweeteners? Although artificial sweeteners haven’t been proven to cause seizures I know many people who claim aspartame causes seizures for them. My drivers license is too important to me to risk losing it by taking the medication or artificial sweeteners regardless of how small the risk.
You might wanna consider keeping a seizure diary/log/journal or whatever you choose to call it. It could end up being very beneficial to you and your Neurologist.
Hope you find the answer to stop the seizures,
Jake

I had not heard that about a vitamin B6 deficiency. My daughter has suggested the Vitamin B deficiency idea. That would be worth a try. No risk in trying it. No artificial sweeteners in my diet. i was just sleeping in my lazyboy chair or sleeping at night when the seizures occurred every 60 days.

@cdupont1234
I don’t know if you were thinking supplements or better nutrition but be careful with supplemental vitamins & minerals. You may want to be tested first and talk over your plans with a doctor. You body needs less than 2mg of a day. Pyridoxine (B6) in 100-300mg doses over time have been known to cause nerve damage in a few people. Higher doses are normally required. I don’t understand why some take hundreds or thousands of times more of something the body doesn’t require. Remember just because a little is good doesn’t mean a whole lot more is better. Except candy of course.
Take care,
Jake

I will be very careful with the vitamin B as a supplement. In reference to the increase in protein, my sister has used that for a number of years. She tried that on on the recommendation of a naturopath. It has worked for her, at least 12 years to date. She is bothered by flurorescent lights and a number of the other items that you mentioned. When she feels one coming on she will eat a can of sardines on toast or salmon. I did not believe her as she believes in no drugs and some vitamins. This has been successful for her. Thanks for your input to date. It is very helpful.

@cdupont1234
@lsittll
Look here kids. Question is what is the key protein and is it in the protein we eat? If it’s naturally occurring in our brains can we get more? I need to read the study.

Is protein good for seizures?
Boosting key protein in brain could improve seizure treatment, Stanford study finds. STANFORD, Calif. - A naturally occurring protein in our brains could be the basis for a more promising epilepsy treatment - without the nasty side effects caused by many of the current medications.Aug 15, 2006
med.stanford.edu › news › 2006/08

Can protein cause seizures?
- Diets deficient in amino acids -- chemicals that make up proteins -- can significantly increase susceptibility to epileptic seizures in rats, according to a study by researchers at the University of California, Davis.Jul 11, 1996

Jake