Gastroparesis with severe symptoms!

Thank you for the article @ken82. My gastroenterologist thoroughly researched domperidone before putting me on it. He also had me make an appointment with a cardiologist to make sure he approved as well before giving me the prescription. (I don’t have any heart issues.)

Here is the statement from the FDA website about why they issued a warning about domperidone in 2004 — “FDA took this action because of the concern about the potential serious health risks associated with the use of domperidone by lactating women to enhance breast milk production.” That’s definitely not an issue for me as I approach age 70 — lol.

Since it has helped me so much with stomach emptying with no side effects, I’m very comfortable taking it. It’s also comforting to know that it’s available throughout the rest of the world — appears that only the USA has not approved it. In some countries it requires a prescription but in most countries it’s over the counter.

What is the source of the 2 quotations you shared. They weren’t included in the Mayo Clinic link so I just wanted to read more about those statements made November 11, 2014. Thanks!

@1950 Domperidone is a prescription motility aid drug to help move the food from stomach into the intestine faster.

@pdilly Domperidone is available in Canada in prescription. I have had no ill effects or interactions with it. I used to take it at bed time any night I had had a heavy meal but for the past few years I have stopped eating from 9:00 p.m. through the night so I have not needed it.

Please let us know what you find out at Mayo.

Too many interactions with my MCTD drugs.

Thanks for the info!!

Yes! I get it from Canada too. I take it in the morning and at bedtime — have been on it for about 2 years now and no more monsters in my belly! (I had a bezoar one time - I hate to say that word!)

I am going to mayo in Jacksonville next month to see Dr. lacy he is supposed to be one of the best GI's in the country. I was just researching domperidone and it says it is no longer available in the US. That's crazy, if it works that well then why can't they make it in the US and how would we get it?

@brandywine .. terrible but I cannot remember the gastroenterologist's name I saw back in 2013 when was prescribed domperidone. I am now under the car of Dr Frances and her NP Lois Hemminger. .. my local GI refused to do endoscopies on me because my surgery repair was so extensive... he still does my colonoscopies. I'm glad to have a doctor admit that something is out of his league.

When I was prescribed domperidone I was told which compounding pharmacy to take it to in my town. You might call a compounding pharmacy to see if they compound it. I am including a link to the fda site that says this this information was accurate up until February this year... I would think if it had changed since then they would alter the information.

I think.. but not positive.. for a two week supply back then it was around $40. .. probably increased a lot since 2013. We had Tricare Standard then and it did not pay anything that I recall. My husband is retired Army. Now that we are Seniors we have Tricare for Life and Medicare. .. still probably no payment for the medication.
https://www.fda.gov/drugs/investigational-new-drug-ind-application/how-request-domperidone-expanded-access-use

I was just diagnosed with gastroparesis 5 days ago. At first I didn't know what to say or think all I knew was I love food and now I couldn't eat sing I love. I also love to cook which is my hobby and I do that for friends which I will continue to do. My wife has made me wonderful in the Crock-Pot melting everything down for /8 to 12 hours. This works wonders I have flavor I find that potatoes very well cooked I can tolerate. So we're expanding experimenting pureeing food after she cooks it. I have found or I should say my wonderful woman is found a way to make a beautifully Blended smoothie in the morning with these Frozen fruits and vegetables that are ready for blending. We put protein powder 2% milk and all these Frozen fruits and vegetables it's in the blender with ice any cues mean Irishman it is very delicious. Can someone advise me on how to continue take the many oral medications I must take. I feel as if they get stuck or maybe that's just the food it is very uncomfortable bloating and some pain. I also found that by making a t with ginseng honey and green fix mixed with these other tea spices if my wife found create movement in my stomach gas moving both ways which actually feels good. I feel as if it helps me empty out. I pray that everybody with this issue find ways to manage actual is a normal life. I must say in the last few months I have lost nearly 40 lb but it feels good I was 255 lb to start. The cause of this issue they are telling me can be attributed to gastric bypass surgery I had 20 years ago. At that point I was 439. So it's been a long ride I am a survivor I will continue to conform whatever it is I have to do to live a happy healthy life. I hope this post can help somebody and if anybody has any tips on some way to eat a steak without it being pureed let me know