Gastroparesis with severe symptoms!

Posted by paarak @paarak, Jul 17, 2011

Does anyone have gastroparesis (low stomach emptying) and what are you doing to manage the problem. I was finally diagnoised with this condition this year after at least 3plus years of unexplained illness. Most of my symtoms were related to pain in the chest; deep back shoulder pain; lightheaded/dizzyness; I always felt like I was having a heart attack. But each time I went to the ER all the heart test came back fine and was told it was just acid reflux. I have been to cardiology; neuralogy; gastrology. I have had heart test; stress test;;thryrod; diabectic test; all kinds of blood test (only showed low vit D) MRI of brain; spinal tap. Finally had stomach emptying test in March – which showed 85% food still in stomach after 3 hours. I have had to switch to a no fat; low fiber diet – pretty much all liquid; soft (babyfood like) foods. If I do experiment and eat something that doesn’t move through – then I end up with the deep shoulder pain; lighthed/dizziness;; numbness in the arms/fingers and over all wekness. In order to overcome this feeling – It seems to work by drinking just water /gator aid for at least a day. I just don’t know if this all started by a nerve damage issue or if it is reverserble. I have done a lot of internet reading and there doesn’t seem to be anything to do except eating habit changes. And no one else seems to associate the pain I have with the stomach – I never seem to have stomach pain – Only fullness; nausea; bloating/gas. I also am not diabetic. Which my understanding is a reason for this condition. If you have this condition – what are your symtoms and how are you managing? Thanks

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@peggyjean

Very Difficult….never know what kind of day I will be having even with the best intentions….🙏❤️

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I know! I follow my diet strictly but have been in bed all day cramping.

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Does gasx help you? I just take one 2 times everyday because I always have gas & it’s usually helps.🙏❤️

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well, I'm doing a lot better, finding out that a part of it was "Flexure splenic syndrome" kinda like IBS, some say a side order of IBS, it's been a year and a couple months, that and cutting out gluten/wheat, then garlic, onion, hot/chili peppers, brocolli, cut back on red meat, supposedly not to have beans, mostly rice, fish, oats in smaller amounts and/or oatmeal bars, lettuce, bell peppers, berrys, etc. I was on linzess, but had to microdose, or get the trots, was also doing glycol, possibly a combination of both, and of course, should ad fiber/metamucil/etc. Gas X, yes, small amounts of pepto bismo occasionally if things move to fast or too much, or too irritaed flare up. Oh yes, and don't forget that I added probiotics, after surgery diet, and/or amoxillin for a tooth infection might have wiped out the good backteria. I just reviewed the GI from a year ago, and he recommended Iberogast, a herbal mix out of Germany, kinda a tonic, but gotta make sure that I don't do all three, llinzess, glycol, and iberogast, different actions I'm pretty sure, but the combo might make me have the trots! good luck to all, blessings for a happy belly

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@dragonfly123

well, I'm doing a lot better, finding out that a part of it was "Flexure splenic syndrome" kinda like IBS, some say a side order of IBS, it's been a year and a couple months, that and cutting out gluten/wheat, then garlic, onion, hot/chili peppers, brocolli, cut back on red meat, supposedly not to have beans, mostly rice, fish, oats in smaller amounts and/or oatmeal bars, lettuce, bell peppers, berrys, etc. I was on linzess, but had to microdose, or get the trots, was also doing glycol, possibly a combination of both, and of course, should ad fiber/metamucil/etc. Gas X, yes, small amounts of pepto bismo occasionally if things move to fast or too much, or too irritaed flare up. Oh yes, and don't forget that I added probiotics, after surgery diet, and/or amoxillin for a tooth infection might have wiped out the good backteria. I just reviewed the GI from a year ago, and he recommended Iberogast, a herbal mix out of Germany, kinda a tonic, but gotta make sure that I don't do all three, llinzess, glycol, and iberogast, different actions I'm pretty sure, but the combo might make me have the trots! good luck to all, blessings for a happy belly

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Little or no fiber for most gastroparesis patients…. I know if I need anything for constipation relief my go to is miralax….I usually take a half portion daily to keep things moving & walking after meals helps also. If I walk right after eating I have less bloat.
Good Luck & God’s Blessings!

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Do muscle relaxers make Gastroparesis pain worse???

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Will having endoscopy procedure Pyloriplasty help relieve pain of Gastroparesis?

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My gastropanesis was caused by damage to the hairnet nerve system that controls the pushing of food
out of the stomach.. so making the stomach outlet larger wouldn't help me..

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The emptying test I took did not indicate a problem, but the gastroenterologist said she did not diagnose by test; she treated the symptoms.
My symptoms then (several years ago) and still today (if I eat the wrong food) are nausea and vomiting.
At first I did not want to follow the food plan she gave me (What? I can’t eat salad? I LOVE salad!)
Only after I gave in fully to the food plan did I no longer experience the vomiting. I still occasionally experience nausea, but only briefly.

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@idan

The emptying test I took did not indicate a problem, but the gastroenterologist said she did not diagnose by test; she treated the symptoms.
My symptoms then (several years ago) and still today (if I eat the wrong food) are nausea and vomiting.
At first I did not want to follow the food plan she gave me (What? I can’t eat salad? I LOVE salad!)
Only after I gave in fully to the food plan did I no longer experience the vomiting. I still occasionally experience nausea, but only briefly.

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This diagnosis is a new one for me. Have not been to a dietician yet, but I cannot see myself not eating salads or raw fruits or nuts. What is left?

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@idan

The emptying test I took did not indicate a problem, but the gastroenterologist said she did not diagnose by test; she treated the symptoms.
My symptoms then (several years ago) and still today (if I eat the wrong food) are nausea and vomiting.
At first I did not want to follow the food plan she gave me (What? I can’t eat salad? I LOVE salad!)
Only after I gave in fully to the food plan did I no longer experience the vomiting. I still occasionally experience nausea, but only briefly.

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I had to learn what I could and couldn't eat over many years. for about 30 years I woke up with nausea and vomiting almost every day. I slept in a recliner because I couldn't lay down without reflux. I have learned what I can tolerate and what time of day I can chance it with some foods. mostly now I don't miss the old "favorites" but occasionally I will still indulge though I know I will pay the price. Sometimes just a mouthful of something to get the taste but then I spit it out without swallowing can end the craving.

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