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Donation after cardiac death

Posted by birdienanie @birdienanie, Apr 29, 2020

I am listed at the Mayo Clinic PHOENIX location. I have polycystic kidney and liver. So far I have had 8 false alarms for transplant- all DCD (donation after cardiac death) organs. My MELD is 23. When the Covid virus precautions began, my transplant center stopped directed kidney transplants, but liver transplants continued. I have not been called for 2 months now. Has anyone else had this experience?

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Apr 29, 2020

@birdienanie, I can understand your concern. The stress of waiting and the deafening silence are nearly unbearable in the best of times. Why don't you call them? They might have some comforting or reassuring words for you. If nothing else, you might sleep betterknowing that you made contact.

I had a simultaneous liver and kidney transplant in 2009 for PSC. And the wait is complicated because both organs have to be healthy and approveed for transplant.
How are you feeling? What kind of monitoring is being done as you wait for your call?
Hugs.

REPLY
1 reply
birdienanie | @birdienanie | Apr 29, 2020
In reply to @rosemarya "@birdienanie, I can understand your concern. The stress of waiting and the deafening silence are nearly..." + (show)
@rosemarya

@birdienanie, I can understand your concern. The stress of waiting and the deafening silence are nearly unbearable in the best of times. Why don't you call them? They might have some comforting or reassuring words for you. If nothing else, you might sleep betterknowing that you made contact.

I had a simultaneous liver and kidney transplant in 2009 for PSC. And the wait is complicated because both organs have to be healthy and approveed for transplant.
How are you feeling? What kind of monitoring is being done as you wait for your call?
Hugs.

Jump to this post

Thank you Rosemary. I will be in the clinic later this week. It’s on my long list of questions!

REPLY
1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | May 19, 2020
In reply to @birdienanie "Thank you Rosemary. I will be in the clinic later this week. It’s on my long..." + (show)
@birdienanie

Thank you Rosemary. I will be in the clinic later this week. It’s on my long list of questions!

Jump to this post

@birdienanie, I am thinking about you and wondering if you were able to get your questions answered. I hope that your health is holding steady. Are you back to waiting for a transplant? I am here and would love to hear from you.

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