What do you do for Neuropathy itch?

The Doxepin did not help me. The only thing that has helped are products containing Lidocaine.

@jesfactsmon Oh my goodness. Linda has also been in itch anguish, complete with sobs and screams. Jay saw this and was also shocked. He lay me down on the cool tile floor and began just to rub my body all over. He is not a therapist and yet somehow all of a sudden he had the "gift". Once it was released I fell into bed...with an extra dose of my nighttime medical cannabis. The inside pain is just excruciating. Has she had another incident? If not, how have you prevented it? Does the toothbrush work for inside pain? I can't seem to make it work for me.
Thanks for participating in this amazingly horrible affliction. Let's see what else we can find that has potential.
May you be safe and protected.
Chris

Chris @artscaping I need to clarify something. I think the reason the soncicare is so effective for Linda is that she only has PN in her feet & ankles. I don't think the sonicare would work as well in parts of the body where there is more fat tissue. Feet are mostly skin over bone on the tops and some pretty firm and tough skin on the bottoms. If one were to use it in certain other areas, like the stomach or the thigh, for example, it might not work so well. Just my theory. I don't know for sure as Linda only does it on her feet/ankles. Another thing is, even though the itch feels deep in her feet, deep is a relative term. I mean the deepest part of a foot is only a few centimeters in whereas a deep itch in the torso can be inches deep. I know this is pointing out the obvious but just to complete the explanation of why the sonicare works on feet but maybe not as well elsewhere.

She had this the worst during the April-June 2019 timeframe. That was when it was the most severe, and for her scary as it was SO intense. It seemed to become less regular and more sporadic after that (helped by the sonicare), with bouts occurring and then stopping. But she got into the habit early on of NEVER giving in to the scratching impulse so that probably helped too. At this point I think it has become a less prominent component in her overall constellation of problems.

Best, Hank

Chris @artscaping I need to clarify something. I think the reason the soncicare is so effective for Linda is that she only has PN in her feet & ankles. I don't think the sonicare would work as well in parts of the body where there is more fat tissue. Feet are mostly skin over bone on the tops and some pretty firm and tough skin on the bottoms. If one were to use it in certain other areas, like the stomach or the thigh, for example, it might not work so well. Just my theory. I don't know for sure as Linda only does it on her feet/ankles. Another thing is, even though the itch feels deep in her feet, deep is a relative term. I mean the deepest part of a foot is only a few centimeters in whereas a deep itch in the torso can be inches deep. I know this is pointing out the obvious but just to complete the explanation of why the sonicare works on feet but maybe not as well elsewhere.

She had this the worst during the April-June 2019 timeframe. That was when it was the most severe, and for her scary as it was SO intense. It seemed to become less regular and more sporadic after that (helped by the sonicare), with bouts occurring and then stopping. But she got into the habit early on of NEVER giving in to the scratching impulse so that probably helped too. At this point I think it has become a less prominent component in her overall constellation of problems.

Best, Hank

Hello bjbednarz, @lorirenee1 , @artscapint, I have a lidocaine 4% "solution". It's very liquid like water. I use a Q-tip to apply it. It is the strangest stuff but I think works somewhat. It's worth a try. I also have 5% lido patches for my painful back. The 4% are OTC but I find the 5% work better, Problem is, they cost a fortune!!! Just a thought......All the best, Sunnyflower

Thank you for the information. I have had two prescription compounds with 5% lidocaine solution. One was an ointment and the other was a lotion. However, neither worked as well as the Aspercreme with Lidocaine 4%. I get the roll on and it easily goes on everywhere.

Good Afternoon, I've had two different Lidocaine compounds made for me, but neither of them worked as well as the Aspercreme. The benefit only lasts a couple of hours, but anything to give some relief is a blessing. I read the information in the link and I think I'm going to email it to my dermatologist. She keeps trying to give me more oral medicine to break the itch cycle, and it just doesn't work. I had an MRI of my brain, but the doctor said she saw nothing to indicate a problem.

Good afternoon, @bjbednarz Thanks for the feedback. I agree with your conclusion. And I also had an MRI of my brain at the insistence of my neurologist. (you can see how much I did not know in the beginning). When I asked what he saw....he said "nothing concerning". When I asked for more feedback......he simply said, it only shows some signs of aging....which I couldn't disagree with at my age. The "Chris of today" would insist on seeing the results and given an explanation.

So @bjbednarz, Have you heard from your dermatologist? If so, please share what you are comfortable sharing. And don't go away....we are learning from you and your experience.

May you be content and at ease.
Chris