Transplant anti-rejection medications. What's your advice?

I am lucky i guess. I've never had any side effects. For me they raise or lower my tacrolimus intake occasionally.

I had my transplant at UMC in Tucson. In 2003, it was the only transplant center in AZ. Dr. Jack Copeland was the chief of the CT group. He developed a very successful program.

That is part of the protocol of the transplant center.

Hello Rosemary!
I have been having my transplant meetings via video chats. This has worked wonderfully well, as it saves my husband and I ,6 hours of travel and an overnight hotel stay, each month. I really like it! I sign in a few minutes before the meeting time and have my questions or concerns written out ahead of time. I actually had never met my doctor before the video meetings and feel that it works well, because I can see his face and he can see mine.

Thank your for your advice concerning taking meds at the same time each day.

Have a great day!

From the beginning in 1981 I have been on 125mg imuran and 5mg of Prednisone for my kidney transplant. Only side affects that I am noticing is on my skin according to my dermatologist.

I was at Mayo Rochester last week for my two year checkup. Labs and other tests were good, buts my labs showed some signs of the BK virus. I’ll have it retested next week. She said if it comes back with signs of the virus again, she’ll lower my Cellcept dose. Has anyone else experienced this?

@cmael hi yes that is one way of trying to combat a virus. Mine is Parvo b19 and I actually get monthly ivig treatments but they cut back my immunsupresent to just 1.5 mg tacrolimus twice a day and no cellcept as long as there is no rejection issues to help your immune system combat the virus. Realize also I'm not a doctor and I'm also 2.4 years post transplant so each case may be different. But I hope that helps and I also have a lot of faith in my team at Mayo.
I hope you have a blessed day
Dana

Transplant Medications, anti-rejection medications, immunosuppressant medications - We all take them! Here is a Trending Newsfeed Posts that I want to share with you:
Immunosuppression: Watching For and Managing Side Effects
https://connect.mayoclinic.org/page/transplant/newsfeed-post/immunosuppression-watching-for-and-managing-side-effects/
FYI -The Trending Newsfeed Posts are seen at the lower half of the opening Mayo Connect Page - or can be accesses at Pages>Transplant>Newsfeed https://connect.mayoclinic.org/page/transplant/
The transplant page is written ans presented by the transplant staff. It designed to bring relevant and informative transplant information directly to you.

Enjoy your day. I would love to hear from you. How are you handling or learning to live with any side effects?

@ladydidehart, I'm just wondering, have you been able to go for your 4 month check-up yet?

The 4 month check-up is a big event and I want to invite you to share some of your exprience like the schedule of tests, .procedures, and maybe any suggestions for those who are anticipating their first follow-up. Here is a discussion - Transplant Surgery and Early
Recovery: What's normal? https://connect.mayoclinic.org/discussion/post-liver-transplant/

What did you learn about your hair loss?

I have heard this before but yesterday I got a message from CVS pharmacy with my Tacrolimus prescription. It said do not drink grapefruit juice or eat grapefruit while taking Tacrolimus. Has anyone heard this?