COVID-19 and Transplant Patients
As a kidney transplant recipient I have been extra vigilant/worried about protecting myself as COVID-19 spreads. Like most transplant patients I am used to washing my hands, carrying hand-sanitizer, avoiding sick people, getting flu shots, etc. The COVID-19 outbreak has caused me to take additional steps to try to remain safe but I am worried for my health. I would like to hear what you are doing to stay safe and how you are feeling.
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Greetings-
Thank you for sharing your navigation of getting weekly labs. 🙏
Sounds like me. I am going a little stir crazy cooped up at home. Any business I have to take care of is extremely difficult. In Mn. Bank lobbies are closed-government buildings are closed so even if you now have all this free time it’s very difficult to get anything done. I had to chuckle when you mentioned your husbands co-workers admonishing for being at work. I work with outside vendors on a daily basis and they all pretty much know about my transplant. And when they started to quiz me as to why I was still working in a job that had such a high volume of foot traffic I started to consider a LOA. But it wasn’t until I got a text message from my daughter in all caps that I did the right thing. Hope to get back to work in the upcoming months and until then its me and the dogs and a very long honey-do list.
I did not see Sirolimus mentioned.
To you who are commenting about this article, I urge you - Please note that it is dated 2011 and, of course, makes no mention of Covid 19."
Background:
This post is in response to a questionable statement made in another discussion several days ago. The member had heard "that both cyslosporin and tacrolimus have been effective in stopping the replication of some types of coronavirus in the past." Not wanting to start a rumor or spread false information I asked for someone to share where that information originated. I want to thank @wildcat for locating and sharing the information with us in the COVID-19 discussion.
I beg all of you to remember that scientists are constantly researching and exploring medicines and treatments even in the best of times - that is what they do! Please take this article and information for what it is, namely research. Please do not take it out of context.
Let us be careful to not misinterpret the results as they are 9 years old. Instead take it a a sign of hope and give credit to our transplant researchers who are always looking out for our well-being.
@jerrynord, @jolinda, @contentandwell, I hope this makes sense.
@rosemarya I would like to add that I know first-hand how quickly researchers are responding.
Last week my niece and her research team at the U of Minnesota immediately set aside their long-term stroke research, and within 48 hours applied for and received a grant, and started a study to identify effective treatments to prevent or mitigate Covid-19 in people who are known to be exposed, but are not yet showing severe symptoms. (There are also studies there for developing treatments for the currently infected, developing a vaccine, and quickly making basic ventilators from readily available supplies, among others. The teams are working round-the-clock to find answers, while putting their own lives on hold and relying on family & friends to care for their kids.
But we need to understand the process - postulate, experiment, test for effectiveness, repeat until an effective treatment is found, test for safety, apply for & receive approval, produce & disseminate.
This is not instantaneous, which is why it is so important to do all we can to slow the spread. And to not jump to conclusions based on early anecdotal reports of "breakthrough" treatments.
For the immediate future, our most effective treatments are distance or isolation, good sanitation and staying home (as in do not travel unless truly necessary - why I am still in South Texas instead of home with my family.)
Please everyone, take this seriously and stay safe.
Sue
I think it is good information and understand that COVID-19 is brand new and relevant studies are being done currently around the globe. I have NO intention of changing my meds or asking for something different. @rosemarya you are smart to point out it's simply a glimmer of insight and possibly hope. Still great info and I appreciate having been able to read the info. Thanks @wildcat
@sueinmn
Godspeed to your niece and her fellow researchers at the U of MN. So many brilliant people are working 'round the clock. Tell he we sent our prayers and gratitude.
Thank you for the valuable information.
I apologize sincerely if I have been responsible for any rumour regarding cyclosporin and tacrolimus. It was most certainly not my intention. I thought I had made it perfectly clear that the efficacy of these drugs was against coronavirus ( a generic term for a whole number of viruses) and definitely not against Covid-19. I did not think that my message was 'questionable' in any respect or I would not have sent it to you all. I hope it is now abundantly clear that these drugs do not kill Covid 19 but that perhaps immunnosuppressant drugs may play some part in the search for a cure.
I had assumed that our readers would take my words at face value and not jump to unwarranted conclusions. This is obviously not the case and I, for one, have most certainly learnt my lesson on sharing information online.
@wildcat
You are a valued member of our community! I appreciate that you did research and shared the study you found, especially since research is so difficult to find on transplant patients. I think the whole world is just on edge these days. I know you brought the information forward with the intention of bringing us all hope and that's a pretty wonderful thing to want to do. I look forward to your continued participation, you add so much!