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High WBC and platelet count

Posted by eoconner @eoconner, Mar 10, 2020

Hi i've had a high WBC every time i've been to the doctor. and in november last year i as hospitalized for having a wbc of 25 when it's supposed to be at the highest like 10. i'm going to a blood doctor but they are literally treating it like they couldn't care less that they have no idea why it's so high. look i'm glad they ruled out cancer that's great but they still have no idea why my platelet count and WBC is so high. last time it as taken it was 17 which was on friday and i didn't have a fever. and before that it was 13 and 14. when i as at the hospital they could only tell me it wasn't due to an infection. what do i do to have the doctor take my concerns seriously?

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eoconner | @eoconner | May 18, 2020
In reply to @eoconner "yeah i'm home now recovering. the JAK2 was negative as was the calr and mpl the..." + (show)
@eoconner

yeah i'm home now recovering. the JAK2 was negative as was the calr and mpl the first hematologist did. the hospital kept me 3 days and they told me my WBC was high all during my stay along with my platelets and they wanted to keep me longer but i told them it's been high since january of last year. so they let me go home. i'm on blood thinners and currently bridging from heparin to enoxaparin to warfarin. giving myself shots is weird but it's necessary so i'm glad needles don't bother me. i have bruises all over my hands and arms from how much blood they kept taking every few hours. but i'm hoping to get some answers and not just more questions my next appointment. my parents think i might have an autoimmune disorder but obviously we don't know that for sure.

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New update! my antithrombin III levels are low even after stopping the heparin. so i may have a blood clotting disorder. *sarcastic hurray*
and on the blood thinners my platelets have gone down to normal levels. no idea why my wbc is still high though.

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Moderator
Colleen Young, Connect Director | @colleenyoung | May 19, 2020
In reply to @eoconner "New update! my antithrombin III levels are low even after stopping the heparin. so i may..." + (show)
@eoconner

New update! my antithrombin III levels are low even after stopping the heparin. so i may have a blood clotting disorder. *sarcastic hurray*
and on the blood thinners my platelets have gone down to normal levels. no idea why my wbc is still high though.

Jump to this post

@eoconner, while hearing you may have a blood clotting disorder isn't great news, I'm glad that investigations are leading somewhere. What are the next steps?

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eoconner | @eoconner | May 19, 2020
In reply to @colleenyoung "@eoconner, while hearing you may have a blood clotting disorder isn't great news, I'm glad that..." + (show)
@colleenyoung

@eoconner, while hearing you may have a blood clotting disorder isn't great news, I'm glad that investigations are leading somewhere. What are the next steps?

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well i see my doctor on the 26 and she'll tell me where we go from here. i just heard the people at the hostpital saying i had a blood clotting disorder. she'll tell me for certain. she did say it would dictate how long i'm on blood thinners though.

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sunnyside17 | @sunnyside17 | May 20, 2020
In reply to @eoconner "New update! my antithrombin III levels are low even after stopping the heparin. so i may..." + (show)
@eoconner

New update! my antithrombin III levels are low even after stopping the heparin. so i may have a blood clotting disorder. *sarcastic hurray*
and on the blood thinners my platelets have gone down to normal levels. no idea why my wbc is still high though.

Jump to this post

Hi, I have high platelets as well due to ET. What blood thinners are you on that brought your platelets down??
Trying to avoid the chemo as long as possible.

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1 reply
eoconner | @eoconner | Jun 30, 2020
In reply to @sunnyside17 "Hi, I have high platelets as well due to ET. What blood thinners are you on..." + (show)
@sunnyside17

Hi, I have high platelets as well due to ET. What blood thinners are you on that brought your platelets down??
Trying to avoid the chemo as long as possible.

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I'm on coumadin. and will be for the foreseeable future. i noticed they went down but i can't be sure the blood thinner is the cause.

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eoconner | @eoconner | Jun 30, 2020

I just saw my hematologist today. i officially have antithrombin 3 deficiency and if i'm understanding right i also have protein s deficiency *sarcastic huzzah* i will likely be on blood thinners for the rest of my life. *sarcastic huzzah* no word on the wbc though.

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