Erectile dysfunction (ED) treatments: What works for you?

Posted by Jim, Volunteer Mentor @jimhd, Feb 12, 2020

I've been seeing a urologist for a couple of years. The reason for my first appointment was mostly about urinary urgency and frequency. Oxybutinin has reduced the frequency, but not the urgency. At my last appointment, last week, we focused more on ED.

He listed 4 options for treatment. #1 was Viagra and its siblings. Done that and they quit working. #2 was a pump, which I tried. It's great for masturbation, but a real mood killer when used during intimacy with my wife. Even so, part of ED is the inability to maintain an erection. #3 is injecting a drug into the penis. Doesn't that sound like fun? But I know that it works for lots of men. That leads to #4, a penile implant. An implant has the highest success and satisfaction rate.

I'd like to hear what has worked best. I can read the articles online, but I'd rather hear about what your experiences have been.

Jim

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@glenner075
It’s supposed to straighten it out but after reading these reviews which arent good I wonder, although these represent a fractional number of patients treated.
The doctor might have accurate statistics on how often it fails vs its successful outcomes.
I read surgery was most successful and Xiaflex treatment has a success rate of 66% supposedly. From the reviews I saw it doesn't look like the treatment for contractures is much better at least for the few who posted.
Jake

March 24, 2020
“I went through 6 series of shots. A series consisted of get a shot, wait 2 days, get another shot. Then you wait 5 weeks, start the next series. Each time after getting the first shot my penis, scrotum and entire groin area would bruise badly. Real struggle to go in 2 days later for that next shot... Literally one of the hardest things I've had to do in my life was lie there while a needle was stuck in my penis. But getting rid of that curve? Totally worth it - if it had worked, but it didn't. Unlike some of the other reviewers, I guess I should be grateful it's not worse.”

1 / 10

Keith
·
Taken for 6 months to 1 year
February 29, 2020
“I went through 3 sets of injections they came out with the bill before the last set of injections $51,000 dollars and didn’t help at all.”

1 / 10

Nineandonehalffingers
·
Taken for 6 months to 1 year
February 26, 2020
“Hi everyone, after suffering from Peyrones disease with 90 percent curvature I finally agreed with my urologist to have the xiaflex treatment. It was a disaster ,I am worse off than before the injections incredible shrinkage and still curvature I wish I had never gone through with it. Ruined my intimacy with my wife and psychologically messing me up. I highly recommend not having the treatment because it just doesn't work I have had 8 injections.”

1 / 10

Xiaflex hater
·
Taken for 1 to 6 months
January 17, 2020
“Terrible experience with Xiaflex! This is a very bad drug! It left me worse than I was! I wish I would have never done this. I felt a burst, worst bruising ever. So very painful! I still don't feel right, this has messed me up big time!!! This drug should not be used for this!! Rating this drug as a 1 is too high!”

1 /10
Didn’tWork123
·
Taken for 1 to 6 months
November 20, 2019
“Went though 2 cycles of shots. My 30 degree bend turned into a 90 degree bend. Sex is impossible now.”

1 / 10

Dave
·
Taken for 1 to 6 months
November 5, 2019
“The bend moved to the top middle from being closer to the tip. The bend is somewhat lesser but now the length and girth is a lot less also. Take your chances on that it will go away by it self. Not worth the cost, pain and decrease in size. Now what can I do ? Should be lawyers begging for my business with law suit. So annoyed!!!”

3 / 10

Mark
·
Taken for 6 months to 1 year
October 22, 2019
“Have peyronies with 90 degree bend. Did 3 cycles of Xiaflex total of 6 injections. Got a hematoma after the sixth injection. End of Xiaflex treatment. Still have a 92 degree bend up and now a 30 degee bend to the right. Total waste of time and money. Not to mention the pain of the injections and the hematoma. Insurance paid $30,000 for this treatment and total failure.”

Penisnomore
September 10, 2019
“Warning to men considering this treatment for Peyronie's. I had a curvature to the left which I wish for the love of God I had back. After months of treatments with Xiaflex I now how have it right in the top middle and worse than ever. Penis shrinkage and all. Hurts like hell to have sex, not to mention the emotional part. It is embarrassing. I do not know what to do.”

1 / 10

Sexlifegone
·
Taken for 1 to 2 years
August 6, 2019
“I was diagnosed with Peyronie's 2018. My primary physician sent me to a urologist who recommended Xiaflex injections. He said that the success rate was high. Well, that was a false statement. Xiaflex ruined my sex life and now instead of having curvature on the left side of my penis, it's now moved on top which the curvature is worse then ever. This has been an emotional struggle for me and don't know what to do. I'm sure a lot of men with this condition are struggling as well with emotions. My advice to all men with Peyronie's disease. DON'T GET INJECTIONS! IT DOESN'T WORK!”

1 / 10

Taken for 6 months to 1 year
June 19, 2019
“Three series of 2 injections (2 injections-1 injection, then the other in 2 days, 3 months between series, had 6 shots in 9 months). Horribly expensive and very uncomfortable during and after injections. No improvement---worthless---a medical businessman's scam. At least a auto mechanic guarantees his work.”

1 / 10

Bob
May 13, 2019
“I couldn't complete the full treatment of 4 double injection cycles. During the 3rd cycle, after both injection #5 & #6, I developed excruciating pain, radiating from my hips to my knees. Both times, the pain was so intense, I lost control of my legs and fell to the floor. The pain lasted 15 minutes. The doctor told me no other patient had experienced that reaction. During a subsequent visit, I was told that a second patient had. The treatment did decrease the Peyronie's bend from 40º to 30º. Another serious, negative side effect was that flaccid and erect penis length and girth shrank dramatically after treatment. The doctor attributed it to the Peyronie's disease, but I took pictures just before Xiaflex treatment, (10 months after the onset of Peyronie's) and after treatment, and the size difference is dramatic. ”

2 / 10
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Mike
·
Taken for 1 to 6 months
March 24, 2019
“Useless after five shots :(”

REPLY

Thanks for your input on Xiaflex! I'm certain I won "t try it. Thanks much! Glenn

REPLY
@jakedduck1

@glenner075
I’d be leary to try it too.
Jake

Jump to this post

Jake, Foregoing the “mysterious eliminate the Peyronies “ drug. Without trying, I can see the Prosteses surgery would be less Invasive and more successful. Best, Glenn

REPLY
@jakedduck1

@glenner075
Hello,
Has your doctor mentioned Xiaflex as a treatment? It’s an injectable medication. I believe it basically desolves the scar tissue. Do you feel any bumps? One downside is it’s cost, I understand it’s more expensive than surgery.
Good luck,
Jake

Jump to this post

Jake, Dr. hasn’t recommended the drug that I cannot even spell!

REPLY
@glenner075

Jake, Dr. hasn’t recommended the drug that I cannot even spell!

Jump to this post

@glenner075

I'm approved to have a 3 part prosthesis implanted, but Covid19 has ended non-essential surgery. As far as I'm concerned, it's essential! ED for 4 years is not good. I've had ED much longer than 4 years, but no erection for 4. My wife is even more unhappy about it than I. I don't know what to do to get on the schedule. It doesn't seem to me that covid19 is affecting our local surgery centers significantly. There have been very few positive cases where I live, and only 1 or 2 at any given time in the ICU. I'm tired of waiting. I hope you can get yours done in a reasonable amount of time.

Jim

REPLY
@jimhd

@glenner075

I'm approved to have a 3 part prosthesis implanted, but Covid19 has ended non-essential surgery. As far as I'm concerned, it's essential! ED for 4 years is not good. I've had ED much longer than 4 years, but no erection for 4. My wife is even more unhappy about it than I. I don't know what to do to get on the schedule. It doesn't seem to me that covid19 is affecting our local surgery centers significantly. There have been very few positive cases where I live, and only 1 or 2 at any given time in the ICU. I'm tired of waiting. I hope you can get yours done in a reasonable amount of time.

Jim

Jump to this post

Good point brother! You deserve the surgery and Hospitals have need to throw out excuses for delaying patients (and surgery). Just keep trying my friend!

REPLY
@jakedduck1

@glenner075
It’s supposed to straighten it out but after reading these reviews which arent good I wonder, although these represent a fractional number of patients treated.
The doctor might have accurate statistics on how often it fails vs its successful outcomes.
I read surgery was most successful and Xiaflex treatment has a success rate of 66% supposedly. From the reviews I saw it doesn't look like the treatment for contractures is much better at least for the few who posted.
Jake

March 24, 2020
“I went through 6 series of shots. A series consisted of get a shot, wait 2 days, get another shot. Then you wait 5 weeks, start the next series. Each time after getting the first shot my penis, scrotum and entire groin area would bruise badly. Real struggle to go in 2 days later for that next shot... Literally one of the hardest things I've had to do in my life was lie there while a needle was stuck in my penis. But getting rid of that curve? Totally worth it - if it had worked, but it didn't. Unlike some of the other reviewers, I guess I should be grateful it's not worse.”

1 / 10

Keith
·
Taken for 6 months to 1 year
February 29, 2020
“I went through 3 sets of injections they came out with the bill before the last set of injections $51,000 dollars and didn’t help at all.”

1 / 10

Nineandonehalffingers
·
Taken for 6 months to 1 year
February 26, 2020
“Hi everyone, after suffering from Peyrones disease with 90 percent curvature I finally agreed with my urologist to have the xiaflex treatment. It was a disaster ,I am worse off than before the injections incredible shrinkage and still curvature I wish I had never gone through with it. Ruined my intimacy with my wife and psychologically messing me up. I highly recommend not having the treatment because it just doesn't work I have had 8 injections.”

1 / 10

Xiaflex hater
·
Taken for 1 to 6 months
January 17, 2020
“Terrible experience with Xiaflex! This is a very bad drug! It left me worse than I was! I wish I would have never done this. I felt a burst, worst bruising ever. So very painful! I still don't feel right, this has messed me up big time!!! This drug should not be used for this!! Rating this drug as a 1 is too high!”

1 /10
Didn’tWork123
·
Taken for 1 to 6 months
November 20, 2019
“Went though 2 cycles of shots. My 30 degree bend turned into a 90 degree bend. Sex is impossible now.”

1 / 10

Dave
·
Taken for 1 to 6 months
November 5, 2019
“The bend moved to the top middle from being closer to the tip. The bend is somewhat lesser but now the length and girth is a lot less also. Take your chances on that it will go away by it self. Not worth the cost, pain and decrease in size. Now what can I do ? Should be lawyers begging for my business with law suit. So annoyed!!!”

3 / 10

Mark
·
Taken for 6 months to 1 year
October 22, 2019
“Have peyronies with 90 degree bend. Did 3 cycles of Xiaflex total of 6 injections. Got a hematoma after the sixth injection. End of Xiaflex treatment. Still have a 92 degree bend up and now a 30 degee bend to the right. Total waste of time and money. Not to mention the pain of the injections and the hematoma. Insurance paid $30,000 for this treatment and total failure.”

Penisnomore
September 10, 2019
“Warning to men considering this treatment for Peyronie's. I had a curvature to the left which I wish for the love of God I had back. After months of treatments with Xiaflex I now how have it right in the top middle and worse than ever. Penis shrinkage and all. Hurts like hell to have sex, not to mention the emotional part. It is embarrassing. I do not know what to do.”

1 / 10

Sexlifegone
·
Taken for 1 to 2 years
August 6, 2019
“I was diagnosed with Peyronie's 2018. My primary physician sent me to a urologist who recommended Xiaflex injections. He said that the success rate was high. Well, that was a false statement. Xiaflex ruined my sex life and now instead of having curvature on the left side of my penis, it's now moved on top which the curvature is worse then ever. This has been an emotional struggle for me and don't know what to do. I'm sure a lot of men with this condition are struggling as well with emotions. My advice to all men with Peyronie's disease. DON'T GET INJECTIONS! IT DOESN'T WORK!”

1 / 10

Taken for 6 months to 1 year
June 19, 2019
“Three series of 2 injections (2 injections-1 injection, then the other in 2 days, 3 months between series, had 6 shots in 9 months). Horribly expensive and very uncomfortable during and after injections. No improvement---worthless---a medical businessman's scam. At least a auto mechanic guarantees his work.”

1 / 10

Bob
May 13, 2019
“I couldn't complete the full treatment of 4 double injection cycles. During the 3rd cycle, after both injection #5 & #6, I developed excruciating pain, radiating from my hips to my knees. Both times, the pain was so intense, I lost control of my legs and fell to the floor. The pain lasted 15 minutes. The doctor told me no other patient had experienced that reaction. During a subsequent visit, I was told that a second patient had. The treatment did decrease the Peyronie's bend from 40º to 30º. Another serious, negative side effect was that flaccid and erect penis length and girth shrank dramatically after treatment. The doctor attributed it to the Peyronie's disease, but I took pictures just before Xiaflex treatment, (10 months after the onset of Peyronie's) and after treatment, and the size difference is dramatic. ”

2 / 10
Was this helpful? Yes No
14 · Report

Mike
·
Taken for 1 to 6 months
March 24, 2019
“Useless after five shots :(”

Jump to this post

Common advertising on Radio has a procedure called the "Wave" as a current procedure for correcting ED. The Wave, somehow clears the blood vessels associated with the Penis, allowing blood too flow into the Penis as expected, where-upon the Penis fills with blood providing a hardened Penis ready for intercoarse. Has anyone, participating with this forum, had any experience with "The Wave"?

REPLY
@glenner075

Jake, Dr. hasn’t recommended the drug that I cannot even spell!

Jump to this post

Trimimixe is a Drug for ED promotion which works well but is way expensive. Requires simple push of needle (gentle) without much pain at all. Try it under Prescription.

REPLY
@glenner075

Common advertising on Radio has a procedure called the "Wave" as a current procedure for correcting ED. The Wave, somehow clears the blood vessels associated with the Penis, allowing blood too flow into the Penis as expected, where-upon the Penis fills with blood providing a hardened Penis ready for intercoarse. Has anyone, participating with this forum, had any experience with "The Wave"?

Jump to this post

I'll check out the wave, @glenner075

REPLY
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