Multiple system atrophy (MSA) and Neuropathy

Posted by kachris @kachris, Feb 8, 2020

I went to all the tests & everything’s good & normal. But i still have problem with speech & writing b my bp b is normal. First diagnosed with parkinsons but turned out my dormamine is ok. Now they say I have msa. Don’t believe them anymore Help!

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Rachel, Volunteer Mentor | @rwinney | Feb 10, 2020

In reply to @rwinney "I'm sending you many, many positive thoughts and energy for a productive trip to Mayo. All..." + (show)

...and flowers!

Robin | @birdierobin | Feb 10, 2020

Thanks everyone for your positive thoughts. I am scared. Life has taken such a turn & not what anyone wants for their life

Robin | @birdierobin | Feb 10, 2020

In reply to @artscaping "@healingone, Thanks for trying @healingone, sometimes those things just happen to the best of us. Let..." + (show)

All 4 suspected disorders match so well, unfortunately. Makes my diagnosis tough! I don’t really have involuntary movements, just real slow. I forgot to mention I do have the bladder issues. So far the brain is in tack, depending on who you ask ha ha

Robin | @birdierobin | Feb 10, 2020

Oh @kachris I am feeling ya all the way. First you have this, then that! I suffer from the same fate. MSA is rare & unkind. My mom has a nurse friend who’s best friend passed away with it. It was tough. Forgot also to mention my speech is affected too. Godspeed with your diagnosis & life.