1. < Neuropathy

Palmitoylethanolamide (PEA): Anyone had success?

Posted by wisfloj @wisfloj, Jan 26, 2020

Palmitoylethanolamide (PEA) user for at least 6 months. Seemed to work after several weeks, then not, then somewhat, now not at all and the burning pain is spreading to most of my body. Anybody find success? Is this how it works for you as well? Just hate to throw away money and continue unnecessary/ ineffective supplements. I use the Ergomax brand.
Thank you fellow sufferers! Appreciate this forum and people willing to share, advise and encourage!

Interested in more discussions like this? Go to the Neuropathy Support Group.

Mentor
Rachel, Volunteer Mentor | @rwinney | Jan 28, 2020

Sugar is highly antagonistic for me.

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maryv449 | @maryv449 | Jan 28, 2020

Block her. or him. Sounds like you got a troll on your back. Only a creep would do that.

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1 reply
lioness | @lioness | Jan 28, 2020
In reply to @helennicola "I take 250 mg. magnesium 2xday which has greatly reduced my nightly leg and foot cramps,..." + (show)
@helennicola

I take 250 mg. magnesium 2xday which has greatly reduced my nightly leg and foot cramps, I also do calf stretches before retiring. Hope this helps. Helen

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I also have neuropathy and take Gabapentin but befote bed I also use Epsom Salts on my neuropathy either by bath and soak which I cant do anymore bur use a washcloth and soak it in E.S. and pat on area let it soak in for awhile I do take mag. at night all this helps me .

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lioness | @lioness | Jan 28, 2020
In reply to @darlingtondoll "Wow! I never even considered that the horrible burning in my legs could be influenced by..." + (show)
@darlingtondoll

Wow! I never even considered that the horrible burning in my legs could be influenced by what I eat. I always feel confused when the burning is bad one night, but I have no burning other nights. I need to keep a journal that contains what I ate that day. Tomato meat sauce gives me diarrhea, so I try to avoid that, but I do love nightshade vegetables. Hmmmm. Thanks for your post.

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@darlingtondoll I have fibromyalgia symptoms and neuropathy and cant do night shade vegetable at all No tomato sauces and If I want the tomato flavor I have to dilute it with water to make it less acidic . The peppers I can only eat are the yellow,orange or red. they don't seem to bother me like the green ones. You just have to journal for yourselve and see what harms you . Good luck

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1 reply
maryv449 | @maryv449 | Jan 28, 2020

I am curious, have you tried an antacid before you eat tomato sauced pasta? I wonder if it would help you.

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1 reply
Jane | @darlingtondoll | Jan 28, 2020

Thanks. I plan to start today. I have some leftover chicken Parmesan that I had yesterday at a restaurant with some spaghetti. I will scrape off the tomato sauce and cheese and rinse off the spaghetti. It gave me diarrhea anyway. My intestines are partially paralyzed and most restaurant foods don’t agree with me. Tomato sauce and cheese are indigestible. I need the chicken for the protein, so I will be very careful today. I haven’t had pizza in seven years. I really miss it when my husband orders one with everything on it.

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1 reply
Jane | @darlingtondoll | Jan 28, 2020
In reply to @maryv449 "I am curious, have you tried an antacid before you eat tomato sauced pasta? I wonder..." + (show)
@maryv449

I am curious, have you tried an antacid before you eat tomato sauced pasta? I wonder if it would help you.

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It doesn’t help me.

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maryv449 | @maryv449 | Jan 28, 2020

Which ones dd you try? I use Zegerid in the AM ( Gastro Dr. prescibed even though it is otc)
, then Omeprazole when I am out for dinner and simethicone (GasX)if I need the booster. Try it and see if that helps.

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lioness | @lioness | Jan 28, 2020
In reply to @darlingtondoll "Thanks. I plan to start today. I have some leftover chicken Parmesan that I had yesterday..." + (show)
@darlingtondoll

Thanks. I plan to start today. I have some leftover chicken Parmesan that I had yesterday at a restaurant with some spaghetti. I will scrape off the tomato sauce and cheese and rinse off the spaghetti. It gave me diarrhea anyway. My intestines are partially paralyzed and most restaurant foods don’t agree with me. Tomato sauce and cheese are indigestible. I need the chicken for the protein, so I will be very careful today. I haven’t had pizza in seven years. I really miss it when my husband orders one with everything on it.

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@davidhegedus That's what I do go with what food is good for my body I had a pizza that had tomato paste as the base I was up all night trying all naturel ways to stop it from hurting I don't like to take meds for my stomach problems sometimes thatcreates other problems that's just me

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Moderator
Lisa Lucier, Moderator | @lisalucier | Jan 28, 2020
In reply to @maryv449 "Block her. or him. Sounds like you got a troll on your back. Only a creep..." + (show)
@maryv449

Block her. or him. Sounds like you got a troll on your back. Only a creep would do that.

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Hi, @maryv449 - wondering to whom you were suggesting to block him or her? If you add the username (@___) to your post, that Connect member will be notified you responded to them and will be likely to get back to you.

@catro - the topic you brought up about food/what you eat and neuropathy is a good one. It would merit its own discussion, if you'd be willing to start one in the Neuropathy group https://connect.mayoclinic.org/group/neuropathy/. You'd want to click on the gray button that says "Start a discussion" on the lefthand side, a bit down from the top.

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