Pituitary tumor symptoms: joint, muscle and body aches

I am going to pain management doctor and a physical trainer to rebuild muscle. Cushings disease has taken away all of my muscle. I find it difficult to even walk due to all the damage this disease has created.

I am on 25mg hydrocortisone . the surgeons and nurses at Mayo have been wonderful. I was in good hands. I am currently trying to rebuild muscle. Dr Chaichana Dr Elli and Dr Alamu I would highly recommend. I have a long road ahead., thankful to be alive.

@cheryl1 - You are right, Cushing’s does a lot of damage to your body. Good thing though, your muscles will return. I remember my daughter actually needed pelvic floor physical therapy- all muscles are affected.
Bone density is also diminished- my daughter’s kidneys showed very tiny calcium deposits- causing blood in urine. This went back to normal fairly soon too. The body will repair itself -
Wishing you a speedy recovery without much pain.

I had a few joint aches, but primarily I lost muscularity. I couldn't do activities I wanted - ie walk a distance. Also check your face - is it puffy. Check your blood cortisol values. Have you been diagnosed as having Cushings disease? I had a benign pituitary tumor, that constantly send out messages of run-flight to my adrenal glands. which in turn drove my muscles to move, move, move - not that I literally always did. Gradually over several years my muscularity lessened and I thought I was just getting older! By the time I arrived at Mayo, I couldn't raise my arms. I had a large biopsy of my pituitary, and both adrenal glands removed. Subsequent MRIs has shown it has not grown. Please work diligently with a physical therapist to recover your muscles. I waited 8 years and only recently realized that I needed to be doing so immediately after returning home. I take daily cortisol pills and any time I recognize I am under stress. Good luck.

I have had 2 pit surgeries and both adrenal glands removed on 5/7. I have been going to personal trainer to attempt getting back muscle. It is both painful and difficult.

I'm so sorry to hear of your struggles right now, @cheryl1. Have you or your trainer noticed any improvement in your muscle? Does your doctor offer you any other suggestions?

@cheryl1 - If you had surgery 2 months ago your body is still in healing mode. I admire your determination to regain your muscle mass. You will get there soon.
Recuperation is not easy- your body has been through the wringer, but now it will get better day by day.

After my surgery, I did not realize I could regain my muscle mass: I thought I would always be weak - no doc encouraged otherwise. Only 6 years later, did I engage the help of a physical therapist. My advice is to begin exercising the day you return home!

Hello @jodiforan,

I'm so sorry that you had to wait so long before you got back your strength. Who was it who advised you to seek physical therapy?

I am walking 2.5 miles almost every day which does exhaust me physically. I am also seeing a physical therapist to help me strengthen myself. It was my doctor’s recommendation. I want to rebuild my muscles but I need to be realistic. It only been 4 months since my surgery and then 33 radiation treatments With chemo pills. I am still taking a stronger dose of chemo pills each month. Be patient with yourself!