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Pituitary tumor symptoms: joint, muscle and body aches

Neuroendocrine Tumors (NETs) | Last Active: Mar 26 5:03pm | Replies (144)
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@astaingegerdm

@cheryl1 - You are right, Cushing’s does a lot of damage to your body. Good thing though, your muscles will return. I remember my daughter actually needed pelvic floor physical therapy- all muscles are affected.
Bone density is also diminished- my daughter’s kidneys showed very tiny calcium deposits- causing blood in urine. This went back to normal fairly soon too. The body will repair itself -
Wishing you a speedy recovery without much pain.

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Replies to "@cheryl1 - You are right, Cushing’s does a lot of damage to your body. Good thing..."
j77 | @j77 | Mar 26 12:38am

Hello!I have been ill for over a year and I am trying to figure out what I have.The specialists have not been much help.I just saw that you mentioned your daughter having a weak pelvis from Cushings.I met with a neurologist who thinks I might have a metabolic muscular disease.I had blood tests done that showed low deha sulfate.When I looked that up I saw Addison's Disease can cause that.I thought I might have Cushings though.I keep on gaining weight and have no control over it and the muscle is completely gone in my arms,legs,pelvis,etc.I haveva big belly,arms and legs though.I saw that Cushings is usually skinny arms and legs.
Have you seen any cases where the deha sulfate in Cushings would be low instead of high?

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j77 | @j77 | Mar 26 5:03pm

Thankyou so much for responding.I am going to the endricinologist this week so hopefully I will get more answers.They are not finding much.They did find a Borderline antibody for Myasthenia Gravis too.I dont know if it is possible to have MG and Cushings at the same time.

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