1. < Neuropathy

Vitamin B12 and Neuropathy

Posted by lorirenee1 @lorirenee1, Dec 9, 2019

I went to my Neurologist and saw the nurse, because my neurologist had to cancel all her appointments. The nurse went thru all my blood work, and said my B12 is way too low for someone with Neuropathy. She repeated that B12 test, and again it is low. Because it is in a low, but normal range, 2 neurologists, 2 pain specialists, and 1 primary care physician of mine, did not catch that it was low. Only this nurse did, and now I need a week of daily Vitamin B12 shots, and then weekly, for a month. If you have neuropathy, B12 level should be at least at 400. Mine is at 185. I am praying Vitamin B12 helps. I really know nothing about Vitamin B12. Just found out mine is way too low for neuropathy. These doctors need to read the actual numbers, not just the highlights of what blood work is out of range. Maybe this could have been caught 2 years ago. I don't know if Vitamin B12 will help, but I am giving it a try. We all go thru so much.... Lori Renee

Interested in more discussions like this? Go to the Neuropathy Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Dec 16, 2019
In reply to @goldleaf "I have tried a couple of sites in the past few years in the hope of..." + (show)
@goldleaf

I have tried a couple of sites in the past few years in the hope of finding other people with similar medical problems like mine. It turns out that there are very few who are even close. I can live with that. What I hear from everyone though is that they are suffering from pain and there are no real solutions coming from the people who are suppose to be qualified to help. Doctors, research institutions. This is insanity at it’s finest. To top this off is the very thing that tops this off is the stress this causes. This morning and yesterday, I noticed that the replies that I am getting are going to my spam file so I am assuming that my replies to the people who were trying to be helpful that was happening to. Since I most of my spam file I just delete because it has nothing but crap on it. My replies are not crap to me! So I see I am wasting my time again. Very disappointing but I have experienced this before. Blaming Verizon’s bullshit is also crap. I retired a few years ago from that other telephone company. They were always bullshit artists. The organizers of this site are to blame in my opinion. Anyone who has ever had to deal with a major corporation and that includes medical institutions, when it come to people with problems, the don’t give a dam. As a matter of fact they go out of their way to make things worse for people. I have had enough of this an I am leaving this site. My time left in this world is too important to me.

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Hi @goldleaf, I can see that you are upset. Your replies and the posts made by fellow members are of high quality, demonstrating caring members who are knowledgeable and supportive, and who wish to make meaningful connections to help improve health and well-being.

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How to add Connect to your Safe Senders List https://connect.mayoclinic.org/page/about-connect/newsfeed-post/what-to-do-if-you-arent-getting-connect-email-notifications-anymore/

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Colleen

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Mentor
John, Volunteer Mentor | @johnbishop | Dec 16, 2019

I thought I would share the following Nov 2019 article from Medical News Today that talks about supplements for neuropathy. The only one that provides a little worry for me is B6 because too much can cause B6 toxicity and make neuropathy worse. But that's just from what I've read. The other side of the coin would be if you have a deficiency which would make sense then to supplement.

Which supplements can help with neuropathy?
-- https://www.medicalnewstoday.com/articles/326917.php

B6 info...

B6 section it explains -- too much or too little gives neuropathy
-- https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/
Vitamin B6 Toxicity Revisited: A Case of Reversible Pyridoxine-associated Neuropathy and Disequilibrium. (P4.021)
-- http://n.neurology.org/content/90/15_Supplement/P4.021

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maryv449 | @maryv449 | Dec 16, 2019
In reply to @kanaazpereira "Hi @maryv449, You may be right about the link between low vitamin B12 levels and neuropathy...." + (show)
@kanaazpereira

Hi @maryv449,

You may be right about the link between low vitamin B12 levels and neuropathy. Like most vitamins, B12 can’t be made by the body. Our bodies need vitamin B12 to make red blood cells, DNA, and carry out other functions. So, we have to get it from food or supplements.

Here are 2 recent journal articles that might interest you:
- https://www.medicalnewstoday.com/articles/324265.php
- https://emedicine.medscape.com/article/1152670-overview#showall

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I have been doing some research on ultrasound and the charot foot, peripheral neuropathy. I do have an ultrasound machine and it helped me when I had a heel spur. I am researching if this would help the burning feet and for people with numbness. One can buy it at this site for $44.95 free shipping if you buy a bottle of the get to get it to $49. This is the least expensive that I found, https://www.tenspros.com/portable-ultrasound. Mine, I bought 8 or 9 years ago ($175) and when I get back home for Xmas, I am going to try it. I will let you know if it helps at all or not. To me it is worth a shot. https://intermountainhealthcare.org/blogs

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1 reply
mcgatt | @mcgatt | Dec 17, 2019

Sounds good to me...(Pun intended)

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Lisa Lucier | @lisalucier | Dec 17, 2019
In reply to @maryv449 "I have been doing some research on ultrasound and the charot foot, peripheral neuropathy. I do..." + (show)
@maryv449

I have been doing some research on ultrasound and the charot foot, peripheral neuropathy. I do have an ultrasound machine and it helped me when I had a heel spur. I am researching if this would help the burning feet and for people with numbness. One can buy it at this site for $44.95 free shipping if you buy a bottle of the get to get it to $49. This is the least expensive that I found, https://www.tenspros.com/portable-ultrasound. Mine, I bought 8 or 9 years ago ($175) and when I get back home for Xmas, I am going to try it. I will let you know if it helps at all or not. To me it is worth a shot. https://intermountainhealthcare.org/blogs

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Hi, @maryv449 - just wanted to verify the tens-related link you mentioned, as I'm getting a 404 "page not found" error when I click on the link?

Are you finding the Vitamin B-12 you mentioned is helping somewhat is making your feet or fingers feel better, or both?

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1 reply
maryv449 | @maryv449 | Dec 17, 2019

Try http://www.tenspros.com/portable-ultrasound-devices.html. I am ordering after Christmas because I am leaving for the holidays for Buffalo, NY but coming back to Florida in January. I am doing the research for Charot foot and ultrasound because my friend has no feeling in her left foot. I am hoping that it will work for burning feet. I never thought of the portal tibia for treatment. Try googling charot foot and ultrasound for more information, that is how I found it. Sometimes our computers block sites so we can miss them. BTW, my doctor used the ultrasound on my heel when I had plantar fasciitis and I had forgot about it until I was reading this. I don't know if the B12 is going to work yet, I just started it.

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Lisa Lucier | @lisalucier | Dec 18, 2019
In reply to @seniordon09 "I thought that I had neuropathy in my feet for the last 10 years, but then..." + (show)
@seniordon09

I thought that I had neuropathy in my feet for the last 10 years, but then my primary doctor mentioned to me that I might not have enough blood flow to my legs and feet ! I had an ultrasound done on my legs a I don't have enough blood flow to my legs and feet ! I go next Monday to have an angiogram done on my legs to see if there are any blockages in my legs !

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@seniordon09 - so, has neuropathy now been ruled out as a diagnosis for you with the issues you've had with your feet?

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pfbacon | @pfbacon | Dec 21, 2019

I have axonal sensory neuropathy, and RLS. My Neurologist tested my blood - it showed 0 iron. She said that she also has RLS (not neuropathy) and she also tested 0 iron in her blood. We're both taking 325 mg of ferrous sulfide every day. My RLS symptoms have eased some after about 2 months of the ferrous sulfide. My neuropathy symptoms haven't -- they are getting progressively worse. The next time I see her I will ask her to test my B12. I take a B12 tablet every day during the summer so that I get fewer bug bites (it makes us smell like we're 'not food' to insects). Peggy

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maryv449 | @maryv449 | Dec 21, 2019

I hope that you get some relief soon and that B12 helps.

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maryv449 | @maryv449 | Dec 21, 2019
In reply to @lisalucier "Hi, @maryv449 - just wanted to verify the tens-related link you mentioned, as I'm getting a..." + (show)
@lisalucier

Hi, @maryv449 - just wanted to verify the tens-related link you mentioned, as I'm getting a 404 "page not found" error when I click on the link?

Are you finding the Vitamin B-12 you mentioned is helping somewhat is making your feet or fingers feel better, or both?

Jump to this post

I have just started the b12 and am hoping for some sign that it works. the site that I mentioned is http://www.tenspros.com and they sell ultrasound devices, tens devices and lots of medical equipment at really good prices. I paid a lot more for mine because I didn't know about this site. The cold laser therapy device is too pricey here, though. I bought mine on Amazon. I am really serious about getting rid of this terrible pain and lack of sleep because of it.

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