Vitamin B12 and Neuropathy

Posted by lorirenee1 @lorirenee1, Dec 9, 2019

I went to my Neurologist and saw the nurse, because my neurologist had to cancel all her appointments. The nurse went thru all my blood work, and said my B12 is way too low for someone with Neuropathy. She repeated that B12 test, and again it is low. Because it is in a low, but normal range, 2 neurologists, 2 pain specialists, and 1 primary care physician of mine, did not catch that it was low. Only this nurse did, and now I need a week of daily Vitamin B12 shots, and then weekly, for a month. If you have neuropathy, B12 level should be at least at 400. Mine is at 185. I am praying Vitamin B12 helps. I really know nothing about Vitamin B12. Just found out mine is way too low for neuropathy. These doctors need to read the actual numbers, not just the highlights of what blood work is out of range. Maybe this could have been caught 2 years ago. I don’t know if Vitamin B12 will help, but I am giving it a try. We all go thru so much…. Lori Renee

@seniordon09

I thought that I had neuropathy in my feet for the last 10 years, but then my primary doctor mentioned to me that I might not have enough blood flow to my legs and feet ! I had an ultrasound done on my legs a I don't have enough blood flow to my legs and feet ! I go next Monday to have an angiogram done on my legs to see if there are any blockages in my legs !

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I had that done also, and it came back no problem. I was really discouraged that there is still no answer. I hope that you have better luck.

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@johnbishop

@trishj46, I think the issue is your verizon.net email address. Verizon.net got out of the email business Dec 2017 and migrated all of their email services to Yahoo email. I'm pretty sure you are not receiving the Connect email notifications because they are being blocked by your spam filter.

I'm guessing that Verizon is your Internet service provider. If this is the case, I would stop by one of their stores and see if you can get a service rep to help you check your spam filters to see if your connect emails are being blocked.

You mentioned having a Chromebook so you should be able to make a shortcut on your desktop so that you can easily get to Connect. Here's how to do it.

1. Go to Connect: https://connect.mayoclinic.org/
2. Click the 3 vertical dots at the upper right corner of the Google Chrome web browser screen.
3. Select More tools…
4. Select Create shortcut
5. Type Connect in the box (currently will be showing the name of the discussion) or leave the default discussion name.
6. Check the Open as window box – this will make a shortcut on your main desktop screen that you can click on to go to the Connect website.

If you are still not able to figure it out, please use the following form to contact our director @colleenyoung
https://connect.mayoclinic.org/contact-a-community-moderator/

I'm also sending this as a private message so that hopefully you will receive one of them.

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I have tried a couple of sites in the past few years in the hope of finding other people with similar medical problems like mine. It turns out that there are very few who are even close. I can live with that. What I hear from everyone though is that they are suffering from pain and there are no real solutions coming from the people who are suppose to be qualified to help. Doctors, research institutions. This is insanity at it’s finest. To top this off is the very thing that tops this off is the stress this causes. This morning and yesterday, I noticed that the replies that I am getting are going to my spam file so I am assuming that my replies to the people who were trying to be helpful that was happening to. Since I most of my spam file I just delete because it has nothing but crap on it. My replies are not crap to me! So I see I am wasting my time again. Very disappointing but I have experienced this before. Blaming Verizon’s bullshit is also crap. I retired a few years ago from that other telephone company. They were always bullshit artists. The organizers of this site are to blame in my opinion. Anyone who has ever had to deal with a major corporation and that includes medical institutions, when it come to people with problems, the don’t give a dam. As a matter of fact they go out of their way to make things worse for people. I have had enough of this an I am leaving this site. My time left in this world is too important to me.

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@goldleaf

I have tried a couple of sites in the past few years in the hope of finding other people with similar medical problems like mine. It turns out that there are very few who are even close. I can live with that. What I hear from everyone though is that they are suffering from pain and there are no real solutions coming from the people who are suppose to be qualified to help. Doctors, research institutions. This is insanity at it’s finest. To top this off is the very thing that tops this off is the stress this causes. This morning and yesterday, I noticed that the replies that I am getting are going to my spam file so I am assuming that my replies to the people who were trying to be helpful that was happening to. Since I most of my spam file I just delete because it has nothing but crap on it. My replies are not crap to me! So I see I am wasting my time again. Very disappointing but I have experienced this before. Blaming Verizon’s bullshit is also crap. I retired a few years ago from that other telephone company. They were always bullshit artists. The organizers of this site are to blame in my opinion. Anyone who has ever had to deal with a major corporation and that includes medical institutions, when it come to people with problems, the don’t give a dam. As a matter of fact they go out of their way to make things worse for people. I have had enough of this an I am leaving this site. My time left in this world is too important to me.

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@goldleaf, no offense but spam is a major problem for all Internet service providers. I have worked in the giant tech corp world and I've also worked the last 20 years in a local telco as their Internet helpdesk and computer repair person. You are correct just because some emails go to the spam folder or are blocked from even reaching your inbox doesn't mean the email is spam to the user. Real spam is a major source of virus and phishing emails used for identity theft and the reason why Internet service providers have been beefing up their email spam appliance even though us techies don't like. The organizers of this site do their best but due to the way mail servers work it's an impossible task without help from each user. The purpose of Connect is to help members share their health experiences, ask questions and learn what others are doing to help with their symptoms.

Hopefully we can help each other when the tech problems arise for members without blaming the site or others. As far as the Verizon BS, the truth is what it is…. https://www.verizon.com/support/residential/email

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@trishj46

I did not receive any notifification for this post. I found it by accident. Thanks John but I don't think I am getting it I am on chrome laptop. I wrote everything down and will try again. Why did I not receive notification for this post and others I wrote to for help?? I am stillmconfused. I have tried every night and don't know if I should just drop out. I would have nerver got your directions if not by accident. Feelmsomething is wrong. Thanks very much John. trishj46

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@trishj46 Hello and welcome. I am Carol, a retired teacher for 45 years, and I am a diabetic 2. When I first found Connect, I had big problems trying to understand the way the site works. I am not a computer person but knew the basics and had courses and instructional meetings since all of the teachers had computers. This kept me up to date, but when I retired, I didn't bother to stay up to date with technology. I was satisfied to email and write letters on Word and make spreadsheets—-the usual. Anything more complicated was just that—more complicated. I have been on Connect for three years and I still have to have someone who is tech savvy help me through new steps so that I can participate. Please don't drop out but give the tech members and Mentors a chance to help you get connected. @johnbishop is a master of the computer. He will work with you as long as it takes to help you. There are many others who will help also. @kanaazpereira has posted steps also. There are others. Just have patience. There is probably one little step you are missing and when you hit it, you will have everything you need to communicate with anyone on Connect. I know how you feel, but you can do it. Breathe and step back for a while and then try again.
Carol

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@goldleaf

I have tried a couple of sites in the past few years in the hope of finding other people with similar medical problems like mine. It turns out that there are very few who are even close. I can live with that. What I hear from everyone though is that they are suffering from pain and there are no real solutions coming from the people who are suppose to be qualified to help. Doctors, research institutions. This is insanity at it’s finest. To top this off is the very thing that tops this off is the stress this causes. This morning and yesterday, I noticed that the replies that I am getting are going to my spam file so I am assuming that my replies to the people who were trying to be helpful that was happening to. Since I most of my spam file I just delete because it has nothing but crap on it. My replies are not crap to me! So I see I am wasting my time again. Very disappointing but I have experienced this before. Blaming Verizon’s bullshit is also crap. I retired a few years ago from that other telephone company. They were always bullshit artists. The organizers of this site are to blame in my opinion. Anyone who has ever had to deal with a major corporation and that includes medical institutions, when it come to people with problems, the don’t give a dam. As a matter of fact they go out of their way to make things worse for people. I have had enough of this an I am leaving this site. My time left in this world is too important to me.

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Hi @goldleaf, I can see that you are upset. Your replies and the posts made by fellow members are of high quality, demonstrating caring members who are knowledgeable and supportive, and who wish to make meaningful connections to help improve health and well-being.

Email companies are continually tightening their security in order to help filter out unwanted spam and to protect their clients. However, as security increases, sometimes emails that you've subscribed to receive get caught in the spam filter. As the Mayo Clinic Connect community grows and activity increase, we discovered that more and more members are experiencing that their email notifications are being sent to their spam folder. In this blog post, we explain how you can add Mayo Clinic Connect to your safe sender list and continue to receive the emails notifications you want.

How to add Connect to your Safe Senders List https://connect.mayoclinic.org/page/about-connect/newsfeed-post/what-to-do-if-you-arent-getting-connect-email-notifications-anymore/

I hope this helps. If you have any questions or concerns about how Mayo Clinic Connect is managed, please write to me using this form: https://connect.mayoclinic.org/contact-a-community-moderator/
Colleen

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I thought I would share the following Nov 2019 article from Medical News Today that talks about supplements for neuropathy. The only one that provides a little worry for me is B6 because too much can cause B6 toxicity and make neuropathy worse. But that's just from what I've read. The other side of the coin would be if you have a deficiency which would make sense then to supplement.

Which supplements can help with neuropathy?
https://www.medicalnewstoday.com/articles/326917.php

B6 info…

B6 section it explains — too much or too little gives neuropathy
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4199287/
Vitamin B6 Toxicity Revisited: A Case of Reversible Pyridoxine-associated Neuropathy and Disequilibrium. (P4.021)
http://n.neurology.org/content/90/15_Supplement/P4.021

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@kanaazpereira

Hi @maryv449,

You may be right about the link between low vitamin B12 levels and neuropathy. Like most vitamins, B12 can’t be made by the body. Our bodies need vitamin B12 to make red blood cells, DNA, and carry out other functions. So, we have to get it from food or supplements.

Here are 2 recent journal articles that might interest you:
https://www.medicalnewstoday.com/articles/324265.php
https://emedicine.medscape.com/article/1152670-overview#showall

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I have been doing some research on ultrasound and the charot foot, peripheral neuropathy. I do have an ultrasound machine and it helped me when I had a heel spur. I am researching if this would help the burning feet and for people with numbness. One can buy it at this site for $44.95 free shipping if you buy a bottle of the get to get it to $49. This is the least expensive that I found, https://www.tenspros.com/portable-ultrasound. Mine, I bought 8 or 9 years ago ($175) and when I get back home for Xmas, I am going to try it. I will let you know if it helps at all or not. To me it is worth a shot. https://intermountainhealthcare.org/blogs

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Sounds good to me…(Pun intended)

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@maryv449

I have been doing some research on ultrasound and the charot foot, peripheral neuropathy. I do have an ultrasound machine and it helped me when I had a heel spur. I am researching if this would help the burning feet and for people with numbness. One can buy it at this site for $44.95 free shipping if you buy a bottle of the get to get it to $49. This is the least expensive that I found, https://www.tenspros.com/portable-ultrasound. Mine, I bought 8 or 9 years ago ($175) and when I get back home for Xmas, I am going to try it. I will let you know if it helps at all or not. To me it is worth a shot. https://intermountainhealthcare.org/blogs

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Hi, @maryv449 – just wanted to verify the tens-related link you mentioned, as I'm getting a 404 "page not found" error when I click on the link?

Are you finding the Vitamin B-12 you mentioned is helping somewhat is making your feet or fingers feel better, or both?

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Try http://www.tenspros.com/portable-ultrasound-devices.html. I am ordering after Christmas because I am leaving for the holidays for Buffalo, NY but coming back to Florida in January. I am doing the research for Charot foot and ultrasound because my friend has no feeling in her left foot. I am hoping that it will work for burning feet. I never thought of the portal tibia for treatment. Try googling charot foot and ultrasound for more information, that is how I found it. Sometimes our computers block sites so we can miss them. BTW, my doctor used the ultrasound on my heel when I had plantar fasciitis and I had forgot about it until I was reading this. I don't know if the B12 is going to work yet, I just started it.

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@seniordon09

I thought that I had neuropathy in my feet for the last 10 years, but then my primary doctor mentioned to me that I might not have enough blood flow to my legs and feet ! I had an ultrasound done on my legs a I don't have enough blood flow to my legs and feet ! I go next Monday to have an angiogram done on my legs to see if there are any blockages in my legs !

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@seniordon09 – so, has neuropathy now been ruled out as a diagnosis for you with the issues you've had with your feet?

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I have axonal sensory neuropathy, and RLS. My Neurologist tested my blood – it showed 0 iron. She said that she also has RLS (not neuropathy) and she also tested 0 iron in her blood. We're both taking 325 mg of ferrous sulfide every day. My RLS symptoms have eased some after about 2 months of the ferrous sulfide. My neuropathy symptoms haven't — they are getting progressively worse. The next time I see her I will ask her to test my B12. I take a B12 tablet every day during the summer so that I get fewer bug bites (it makes us smell like we're 'not food' to insects). Peggy

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